Anyone had a baby with Craniosynostosis

[SparklesHeart]

Hello,

So we have just been told that our baby has this and will need surgery on his skull in the next few months (he's 5weeks old at time of writing this)
Just feeling a bit scared and worried about my tiny baby having such a major operation and was wondering if anyone had been through this.

 

[xLaura]

So sorry your all dealing with this ATM. I've got no advice regarding the operation but they wouldn't be doing it if they didn't know he is strong enough to cope with it.

Hope someone is able to give you some advice regarding the condition.