Anyone had an umbilical cord cyst diagnosed on ultrasound?

[Junebug_CJ]

I'm just looking to find other women who's babies were found to have umbilical cord cysts. It was identified at my first ultrasound (around 8 weeks) and is associated with a 1/10 risk of chromosomal problems. I was hoping someone could share with me their story, I must not be alone in this... Thanks,
CJ

 

[E&L's mummy]

oh hun. im sorry i havent any advice or experience to share with you. just wanted to send you loads of PMA and hugs. its gonna be tough but you seem to be a really strong individual. wish i had something more reassuring to say to you. xxxxx

 

[Junebug_CJ]

Well, I knew it was rare. Still, I was hoping someone on this forum would have experienced it... My OB told me that he hadn't seen one in nearly 30 years, then I'm the second one in the last 2 months. Apparently his other patient went on to have a CVS, which was normal, and she's in her second trimester now. I just hope I'm that lucky...
CJ

 

[juleslane]

Hi CJ,

i just received a phone call from my doc a few hours ago, telling me that at my 9 wk sonogram, they found a cyst on the baby's umbilical cord. I have been on google ever since, and not liking what I see. No advice for you, but wanted to let you know that you are not alone. Any new updates???

 

[Junebug_CJ]

YES! I did some research myself in the medical literature: appears that the ones identified in first trimester tend to resolve by second trimester and there is NO increased incidence of chromosomal problems in these babies who are born completely normal. I thought this was very reassuring! On the other hand, the risk of chromosomal problems seem to be quite high (I've read 10-50%) in babies with umbilical cord cysts identified in the second and third trimester. So while I thought this was reassuring, I didn't know if the cyst found on my U/S would resolve or not (and I didn't want to just sit back, wait and see), so I had a CVS done on Thursday. Expecting the results back on Tuesday... Did they offer you any testing for baby's chromosomes? I understand what you're going through, PM me if you want to chat some more off thread.
CJ

 

[juleslane]

Thanks CJ for replying!! I couldn't find the PM button(new here), but please please please PM me and fill me on on the CVS if you are comfortable with it. I am so worried I called to get a second opinion from the new doc I will be seeing. She basically told me what I already knew. To get an opinion from a high risk doc. I have an appt for a Nuchal Translucency scan already on Dec 3rd, and that's the soonest I can be seen with the holiday near. It's killing me to wait! My doc also said, her gut is telling her they were wrong. She said she has never seen this before(doesn't mean anything to me!), and she thinks they over judged this, cause at 9 weeks, the cord is so fat and coiled, and it wasn't a high tech sonogram, so she said they can't see much. I am taking that all in with a grain of salt, but I pray she is right.
I have already decided, if it is still there at 12 weeks 3 days when I go on the 3rd, I will most likely opt for testing. Scary though. Did the CVS hurt at all???

 

[JillianMac]

My doctor just found a cyst on my baby's umbilical cord at 9 weeks. I was wondering if you were given any information about the size, location etc. of the cyst, as I wasn't. Also, were you given the option for the CVS right away? I haven't really had any information given to me and information is hard to come by on the internet. Hope your test went well.

 

[Junebug_CJ]

My doctor just found a cyst on my baby's umbilical cord at 9 weeks. I was wondering if you were given any information about the size, location etc. of the cyst, as I wasn't. Also, were you given the option for the CVS right away? I haven't really had any information given to me and information is hard to come by on the internet. Hope your test went well.

Hi there, was not given info about the size, just that it was on the umbilical cord and the risk for chromosomal problems was 10%. Yes, I was offered the CVS on the spot. Test went well, no cramping or bleeding. Got the results yesterday, no trisomies and a girl!!!
PM me if you want to chat more!!!
CJ

 

[E&L's mummy]

CJ this is seeming more and more comman. i did wonder if it is getting more comman or that scans are advancing so easier to detect iyswim.

so pleased you have all found someone else to talk to about this. xxxxxxxxxxxxxxx

 

[juleslane]

Hi CJ,

Thanks for sending me a message. Maybe it's because i am new here, but I can't PM for some reason?? Not sure why?? I would love to know how things turned out, if you don't mind sharing?? You can write on my visitor board if you don't want to post here. I have my nuchal scan tomorrow, and will be talking to the specialist about the cyst. I have been worried sick for the past 2 weeks waiting for this appt. I hope thing went well for you!!

 

[Jasa1911]

Sorry this is a little belated but I havent been able to find you in second tri and I was wondering how you were going on with the news of the cyst.

Im so glad your results have come back fine! And its a GIRL! Wow. You must be so relieved? I know I am relieved fro you!

Hope all the other Ladies on this thread get the results they are also looking for Good Luck all!

S x

 

[mamaof3boys]

I was told today (at 10 weeks) that I also have cysts on my babies' umbilical cord. They didn't say a single thing other than we'll have to watch it. I asked what would happen if they got bigger, and didn't get a real clear answer. I am really nervous after reading about it on the internet. I would like to know why I wasn't offered a CVS? I am due back in 4 weeks with another ultrasound. I also have hemmorghing on the uterus that hasn't gotten better or worse since 5 weeks gestational age.

 

[Junebug_CJ]

I was told today (at 10 weeks) that I also have cysts on my babies' umbilical cord. They didn't say a single thing other than we'll have to watch it. I asked what would happen if they got bigger, and didn't get a real clear answer. I am really nervous after reading about it on the internet. I would like to know why I wasn't offered a CVS? I am due back in 4 weeks with another ultrasound. I also have hemmorghing on the uterus that hasn't gotten better or worse since 5 weeks gestational age.

Hmmmm seems strange they wouldn't have addressed this issue with you... Most of the cysts do go away after first trimester, but there is still a risk of 1/10 of chromosomal abnormality. If it's something you're worried about definitely call your doctor and ask!

 

[Junebug_CJ]

Sorry this is a little belated but I havent been able to find you in second tri and I was wondering how you were going on with the news of the cyst.

Im so glad your results have come back fine! And its a GIRL! Wow. You must be so relieved? I know I am relieved fro you!

Hope all the other Ladies on this thread get the results they are also looking for Good Luck all!

S x

Hey Jasa, everything is fine indeed! I have been hanging out in the second tri thread

 

[mamaof3boys]

Thanks for your reply, I have been so worried about this..I just can't stop thinking about it. I think I will call my doctor.

 

[michiganmommy]

My husband and I had lost twins in a miscarriage a few years ago. Thankfully we now have a healthy 2 year old son...but it was not an easy pregnancy, so with this current pregnancy i am considered high risk. I had an ultrasound done at 8 weeks and was told by my doctor that there was an umbilical cord cyst. I asked her what that meant, and she said that she had no idea--SHE HAD NEVER SEEN IT BEFORE IN HER CAREER! great. why did i get to be the lucky one? So anyway, i am now 11 weeks and just had another conventional ultrasound to check on the status of the cyst. After that? who knows? All the stuff that i read on the net scares me...but its in God's hands.

 

[babygirl1982]

Is there anyone who can give me some advice on umbilical cord cysts? i was told they found one @ 8weeks..i go to a high risk dr on march 1..I am really a nervous wreck..

 

[E&L's mummy]

PM junebug_CJ hun. she knows quite a bit. xxx

 

[babygirl1982]

I dont know how to get ahold of her on here...im stressed to the max

 

[babygirl1982]

Sorry this is a little belated but I havent been able to find you in second tri and I was wondering how you were going on with the news of the cyst.

Im so glad your results have come back fine! And its a GIRL! Wow. You must be so relieved? I know I am relieved fro you!

Hope all the other Ladies on this thread get the results they are also looking for Good Luck all!

S x

Hey Jasa, everything is fine indeed! I have been hanging out in the second tri thread

I was wondering if u could give some advice on cysts..im so worried