anyone with perinicous anemia? Help needed

[mummyof3babas]

i was diagnosed in my last pregnancy,
im having 3 monthly injections but within a week the symptoms come back, the exhaustion, the upset tummy, dizzyness, crazy heartrate i just feel bad everyday, i dont want to feel like this when i have 3 young kids to look after i feel like a failure tbh because i cant do alot with them without feeling poorly im seeing my doc thursday so will ask y my symptoms are returning so soon but is anyone else going through this? what are the future complications? i have done a lil reserch but my doc hasnt really told me anything thankyou x

 

[lhancock90]

I have just plain normal anemia with iron tablets but that sounds awful lovely.
Definitely push it with a doc or ask for a hospital referral.

xx

 

[mummyof3babas]

i have anemia aswell they just tell me its a life long thing i just have to live with but im really struggling xx

 

[lhancock90]

i have anemia aswell they just tell me its a life long thing i just have to live with but im really struggling xx

I'd definately ask for a referral hun, surely theres a specialist for this kind of thing?

xx

 

[mummyof3babas]

yeh il ask my doc thur:/ i dont know anyone else that has it:/ would be nice to be able to just speak to someone else with the same:/ zxx

 

[CRWx]

Just anaemic over here but hope you can get sorted

xxx

 

[Tasha]

You need a referral to the haematologist hun. Are you having the 1000mg injections? If so it might not be enough (that is the standard dose but doesnt mean it is the right dose for you). I would also request weekly blood tests after your next one for four weeks, so you can see exactly what it is doing x

 

[mummyof3babas]

il mention it to the doc, my doc sed 3monthly blood tests, i dont reli fink they know what there doing

 

[Tasha]

Usually it would be three monthly blood tests but as you're symptomatic so soon after then it probably needs to be more often to see how quickly it is reducing. Def ask to see a haematologist x

 

[mummyof3babas]

Yeh the weird thing is my last blood test showed normal levels:S yet im still feeling really poorly:/ xx