autism becoming less

[alibaba24]

thank you. One of the questions I said DD used to flap her hands for a couple secondand the doctor saisd "but she doesntdo it now?" which she doesnt. It reminded me I need to stop focusing on oh but she used o do this and she used to do that. i need to focus o what I have which is a bright and happy little 5 year old.

I dont want to get to aheadof myself but knowing now lack of language an cause developmental delys I am very hopeful thoughthat she is going to get to place where she is inidistinguishable from her peers.

I have prayed so hard for this little girl and I jut feel so blessed.

also now I can relieve some pressure from her preshool where we are at

so sorry fo poor typing this computer is not good

 

[Thurinius]

Oh alibaba just saw your post! That is brilliant news! Shows how hard it can be to diagnose asd from normal toddler traits.

 

[alibaba24]

Oh alibaba just saw your post! That is brilliant news! Shows how hard it can be to diagnose asd from normal toddler traits.

thank you

Yes the peaditrican even said we are all on the spectrum somewhere which is just so true. It is considered "traits" when you can just kind of still go through life functionally.

Kind of similar to what an educational pyscologist said to me once that Toddler phases seem like asd behaviour but It only becomes a problem when the child cannot move past it. like lining up toys is a normal developmental phase . If the lining continues and play does not develop then Its more of a problem x

 

[Thurinius]

Oh alibaba just saw your post! That is brilliant news! Shows how hard it can be to diagnose asd from normal toddler traits.

thank you

Yes the peaditrican even said we are all on the spectrum somewhere which is just so true. It is considered "traits" when you can just kind of still go through life functionally.

Kind of similar to what an educational pyscologist said to me once that Toddler phases seem like asd behaviour but It only becomes a problem when the child cannot move past it. like lining up toys is a normal developmental phase . If the lining continues and play does not develop then Its more of a problem x

My son has grown out of some of the traits. Some of his obsessions (carrying round a blue berry all day) he's forgotten about. He is very interactive with his brother now, they are a giggly pair of mischief.
But other ones like the dancing and hand flapping he still has.
We are waiting until June to be seen now. I'm not het up about it because it is very clear he is asd and I don't expect to hear any different. Plus we already have a team around him so really the actual diagnosis won't mean that much to us.
But what a journey! I think you and I hit this at the same time with our children didn't we? Strange how we will have such different outcomes when our kids started off very similar in their ways.

 

[alibaba24]

Oh alibaba just saw your post! That is brilliant news! Shows how hard it can be to diagnose asd from normal toddler traits.

thank you

Yes the peaditrican even said we are all on the spectrum somewhere which is just so true. It is considered "traits" when you can just kind of still go through life functionally.

Kind of similar to what an educational pyscologist said to me once that Toddler phases seem like asd behaviour but It only becomes a problem when the child cannot move past it. like lining up toys is a normal developmental phase . If the lining continues and play does not develop then Its more of a problem x

My son has grown out of some of the traits. Some of his obsessions (carrying round a blue berry all day) he's forgotten about. He is very interactive with his brother now, they are a giggly pair of mischief.
But other ones like the dancing and hand flapping he still has.
We are waiting until June to be seen now. I'm not het up about it because it is very clear he is asd and I don't expect to hear any different. Plus we already have a team around him so really the actual diagnosis won't mean that much to us.
But what a journey! I think you and I hit this at the same time with our children didn't we? Strange how we will have such different outcomes when our kids started off very similar in their ways.

I think we did yes. It really is amazing and just proves that every child on the spectrum is completely individual. I think once you come to accept it in your mind makes the entire process easier. I had become alot more comfortable with the prospect of asd before yesterday the thing I really hated was the complex grey area shes grown away from these behaviours so does it mean shes not asd or does it mean shes asd whos progressing very well. Who really knows when its such a grey area, they are little people we are talking about.

I think if anything it gives a good perspective on how to view your child and appreciate them more. The fact hes interactive with his brother is great this is exactly what you want. to see little kids having fun . sometimes I feel all these assesments and reviews robs them of their childghood. maybe and extreme statement but I have decided to just let her be. the analyzing stops .

I did ask the doctor if a future diagnosis was possible she said its possible but unlikely . Im just going to go with it. I cant take another 6 months of fretting

the carrying around a blue berry did he end up with it smooshed into his hand? my youngest sometimes carries food in her hands and it just turns to gunk. great fun cleaning lol

 

[AP]

I'm so glad you got your answers

 

[alibaba24]

Thank you

 

[Starry Night]

I've been reading the same thing regarding the spectrum. It's like autism gradually fades into neuro-typical. Where do we draw the line? I can definitely see autism-like traits in many of my family members and even my DH but no one has a diagnosis and yet seems rather functional in life. I was joking with my DH recently that my family has been circling the drain of autism for so long one of us was bound to go down.

Even though I'm so confused about what will happen in regards to a diagnosis, I keep seeing the difference between my son and my daughter. The past few days I've seen my DD making dolls dance to music. I never showed her how to do that. She just figured it out on her own and she is only 9 months old. My son can pretend play but I've had to show him how to do everything.

Right now we're teaching him how to use "I" correctly. Whenever he wants something I get him to say "I want [x] please". I usually have to prompt with "I" but he is starting to remember more. However, he applies "I" to everyone. He's getting better keeping "you" and "me" straight but "he" and "she" he never uses.

He has grown so much since his speech assessment last fall. Up to that point he was still just shouting and tantruming when he wanted something. Now he can at least say what he wants and he points. He still defaults with babble but it's easier to encourage him to use his words.

 

[alibaba24]

I've been reading the same thing regarding the spectrum. It's like autism gradually fades into neuro-typical. Where do we draw the line? I can definitely see autism-like traits in many of my family members and even my DH but no one has a diagnosis and yet seems rather functional in life. I was joking with my DH recently that my family has been circling the drain of autism for so long one of us was bound to go down.

Even though I'm so confused about what will happen in regards to a diagnosis, I keep seeing the difference between my son and my daughter. The past few days I've seen my DD making dolls dance to music. I never showed her how to do that. She just figured it out on her own and she is only 9 months old. My son can pretend play but I've had to show him how to do everything.

Right now we're teaching him how to use "I" correctly. Whenever he wants something I get him to say "I want [x] please". I usually have to prompt with "I" but he is starting to remember more. However, he applies "I" to everyone. He's getting better keeping "you" and "me" straight but "he" and "she" he never uses.

He has grown so much since his speech assessment last fall. Up to that point he was still just shouting and tantruming when he wanted something. Now he can at least say what he wants and he points. He still defaults with babble but it's easier to encourage him to use his words.

that first paragraph cracked me up

I always wonder where the line is too. It seems to move this elusive line lol. great about his speech pronouns are a big issue for my daughter but I try to pick my battles. she refers to everyone as "he" so we work on "she" I hate picking her up on it too much because I dont want her to lose confidence.

I see a big difference in the way my youngest plays too compared to DD1 . both were interactive babies but DD2 seems a little more on the ball for lack of a better expression. even though DD1 is very clever she just I dunno. DD2 is super tuned in to everything for example when she sees me getting my coat and boats she crawls over to the door at warp speed to make sure I dont forget her lol x

 

[Starry Night]

Because the waiting list for speech therapy is so long, we were given a pamphlet of tips and advice on how to start some basic training techniques at home. So when we correct our son's language we are careful to not say "you're wrong" or "that's wrong". Instead, we repeat the phrase back to him, but correctly. Or if I'm prompting, I will ask "How do you ask nicely?" or I will say "use your words" if he is babbling. The specialist said I was doing the right thing when I told her that I was doing that. It's all about positive reinforcement.

Today I was trying to get him to answer more "I" questions except using "I" to refer to myself. I would play with one of his toys and ask "What am I doing?" He was really confused by that. At first he did some nervous repetitive actions, then he mentioned robots and then he told me what he was doing. (I was playing with his toy Rex from Toy Story) More practice.

 

[alibaba24]

I find the language situation a minefield and utterly confusing the whole

who. what. when. were. why. you. me.I he.she.they. the. here.there.either.neither its endless

Its just awful and when she does get a grip on one thing she then goes onto use it in the wrong context for something else. Such a big confusion for them

 

[pinkpolkadot]

It's funny you guys mention about growing out of things, I was just thinking DD hasn't lined anything up now for a while, she does tend to go through phases though so it could return again.

Her echolalia is bad the last week or so, she will say something and then repeat it several times and this will happen numerous times daily. It seems with her, there is a certain behaviour for a while which then gives way to another and goes in a sort of cycle.

Also interesting about us all being on the spectrum and it running in families. We don't have any relatives diagnosed with ASD but I do see traits in a few of us including myself (especially since reading up on the female presentation, I actually have quite a few!)

Sounds like you guys are doing all the right things language wise! We are lucky I guess on that front, her echolalia being more of a repetitive behaviour issue rather than language delay issue, the only thing really is that she refers to herself in 3rd person often but she does know how to use 'I' and does so probably more often than using her name.

 

[alibaba24]

we had phase lining here too (dunno if thats actually a term) she would stop and start it. I defo believe I have sensory issues I wonder if my daughter gets them from me. certain things really just make my skin crawl. weird stuff. Its very odd. DD has relatives on the spectrum too so seems to defo be a pattern

 

[Starry Night]

My son does echolalia all the time. He can use his own words to ask for things and he can answer direct questions...some of the time. But otherwise he babbles or scripts from movies. When he gets excited he will repeat stuff over and over. I was pretty surprised he didn't script at all during his assessment as it's a continuous thing with him at home.

He only ever really plays with one toy at a time so I haven't really noticed any lining up behaviour. He does like to stack his toys though. He will also use two toys to reenact a scene from a movie. Today he was using his teddy bear and toy dinosaur to play out the opening robot fight from Big Hero 6 (his latest obsession).

Once I saw him reenact a scene from Toy Story with his Superman toy and The Flash toy. He was doing the dialogue from the movie but was inserting the names of the heros into the dialogue where Woody and Buzz's names would usually go. And what made it funnier is he matched the characteristics of the heros to the characters from Toy Story. He had the perfect Superman be Buzz Lightyear and The Flash (who is a bit cocky and sarcastic) be Woody.

 

[alibaba24]

My son does echolalia all the time. He can use his own words to ask for things and he can answer direct questions...some of the time. But otherwise he babbles or scripts from movies. When he gets excited he will repeat stuff over and over. I was pretty surprised he didn't script at all during his assessment as it's a continuous thing with him at home.

He only ever really plays with one toy at a time so I haven't really noticed any lining up behaviour. He does like to stack his toys though. He will also use two toys to reenact a scene from a movie. Today he was using his teddy bear and toy dinosaur to play out the opening robot fight from Big Hero 6 (his latest obsession).

Once I saw him reenact a scene from Toy Story with his Superman toy and The Flash toy. He was doing the dialogue from the movie but was inserting the names of the heros into the dialogue where Woody and Buzz's names would usually go. And what made it funnier is he matched the characteristics of the heros to the characters from Toy Story. He had the perfect Superman be Buzz Lightyear and The Flash (who is a bit cocky and sarcastic) be Woody.

Echoalia has been a big issue for us and a sure fire sign my girl didnt understand language. For example I specifically remember collecting her from nursery one day and she said to me. "did you have a good day at nursery?" this is because I usually ask her this and she didnt really realise it was a question directed at her same with the you and I problem. I vaguely remember her copying from tv when she was 2 her favourite programme was sarah and duck and she would walk around saying "oh duck!" Or "Look a rainbow!" honestly I just thought she liked the show I can't believe I really didnt see the bigger issue. even nursery was like yes she just likes that show

it's so great he matched the right characters to the right toy its smart little things like that that makes me smile

my daughter is quite opposite from your boy I think when she was younger she couldnt sit at anything for any length of time she was all over the place trying to play with everything at once so glad shes grown out of that lol actually it was quite funny at the review the doctor said to me "do you remember her griffith assesment she was all over the room! my blood pressure was through the roof lol" .........

do I remember,pffffttt....yes yes I do!!... had nightmares for weeks after

counting down the days with you starry until you hear more about how your appointment went. I really don't like these things hanging over me It feels so heavy. The great thing though is if he is a bit tricky to diagnose and suprising them It means (IF) he does get diagnosed its probably going to be the high function type I would assume.

I know sometimes they just tell you then and there With my friends DS's she took him in and walked out with a diagnosis that day and they made it official a couple weeks later. I think if it is more obvious then they tell you then and there I think dont quote me but iv read it happening alot

 

[Starry Night]

In Canada they have fairly strict rules about only doctors being able to give diagnosis. Like, with all the ultrasounds I had for my various pregnancies the technician would never tell me ANYTHING. A few had pity on me and would at least let me see from time to time but it was always on the hush-hush..

Yeah, I'm pretty sure my son would be more on the high-functioning end. You can talk to him. Not with him, mind you, but there is some basic communication going on.

I'm glad the examiner was surprised by him at parts. It will force her and the doctor to look at DS as an individual and throw any pre-conceived notions out of the window.

 

[alibaba24]

There seems to be different ways to do the diagnosis here I Think just one doctor can rule it out but if they take the testing further to the ados the paedatrican have an educational pyscologist. Health visitor . occupational therapist. speech therapist all observe the child.

my doctor seemed to gather all the evidence using questionaires specific to autism and observe her herself . I think if she was unsure it would go to the ados in our area they use the 5 proffesionals to observe the child my friends daughter had that but came back negative for autism

any communication is a big thing and its great you have it with your son

 

[Starry Night]

Yes, I am grateful for the amount of communication we do have with our son. He can tell us when he needs or wants something though he can't tell us why he is upset or where he's hurt. And he does display some joint attention. It isn't great, but he will point something out he thinks is interesting and won't stop until we repeat back what he is saying. It never goes further than that but it's more than he used to do.

The time is going by so slowly!! It seems Thursday will never get here. The only time time has felt slower has been the last month of pregnancy.

DS had a meltdown at church on Sunday and I'm not entirely sure why. He did NOT want to go to children's church during service and he normally loves going. He had been begging to take his pants off all morning so I don't know if it had something to do with that. Thankfully, his babysitter was leading that day and she was able to bribe him to stay with some snacks. ha ha The other kids were looking at him like "what's his problem" but not in a mean way I guess they're used to him.

 

[alibaba24]

Hoping thursday roles round fast for you starry.

my youngest daughter does NOT like going into the service at all. I still take her in knowing shes going to scream my oldest manages to hold it together but soon as the baby starts they both start crying.. so i usually need to take them both out and go into creche until sunday school starts then my oldest goes to the sunday school quite happily while i sit there trying to content my youngest which is no easy task at the minute lol. kids..

 

[Starry Night]

Church has always been a minefield for us. It's over the time my kids would usually nap as babies. I'm almost always in the nursery with one of them. We have children's church for the 2 to 4 year olds during the service so that's where DS goes. Like I said, he normally loves to go but he had a bad day, I guess. We do have Sunday School before the service as well and in his class the 2 to 4 year olds are together so it's the same kids he is seeing again. I have learned that he often takes his pants off during Sunday School and is running around the classroom. No one ever said anything to me until someone mentioned it in passing once. If they want to put up with it I'm not going to stop 'em....