big appt tomorrow and im scared to death

[tara515]

well as some of you know i got the scary news in regards to my Nt scan, i have a 1-190 odds of carrying a baby with downs syndrome..i have been crying for a week, and tomorrow is my appt with the genetic counslor, followed by a level III ultrasound, and then Amnio if necessary (please pray for my baby, I don't know if have the strength to hear bad news) i know my odds aren't as bad as some who have been thru this, but i guess i just don't beleve that their happy ending means i will have one, since we are all completely different people carrying different babies....i wish i never had the nt scan..good news is the baby looked good on my early scan, its my bloodwork that failed us...so we are taking a peak tomorrow to see if baby is ok...i may get the worse news of my life tomorrow, OR i may get the best nights sleep i have had in months...pray for us

 

[SabrinaKat]

MY age related risk (at 43/44) was 1/27, but after NT/bloods went to 1/162; after anomaly scan to 1/300. Try not to worry too much, honey -- we decided not to do the amnio or cvs and continued pregnancy scans seem to show that baby is ok....just get as much info as possible and then, think about what you want to do....

best wishes

 

[tara515]

thank you and good luck to you as well, if my scan looks fine, we will opt not to have amnio, i don't want to risk miscarriage..hopefully we will both have healthy little babies and this will just be a bad story someday

 

[BeachComber]

HI, just wanted to say that you will be in my thoughts and prayers for a good appt!

 

[goddess25]

I know how you feel.

With my first baby I was given a 1:150 risk, had a scan and they found an echogenic focus in the babies heart and our risk was increased. We decided to do no further testing and continue our pregnancy. Despite this we had a healthy boy. I did however spend my entire pregnancy thinking that DS was a real possibility and trying to prepare for it. In hindsight I wish I had done some further testing, not sure if I would have done the amnio but wishing you lots of luck.

 

[Chelsea.ann1]

One of my closest friends has a 5 month old baby girl with downs.

She's the sweetest thing ever, sooo freakin cute too!!!!!! & beyond happy..

They're young, she's 18 & he's 19, but they're doing great. Thing's are hard for them, but not because their child has downs. They love her so much that they don't even see the differences.

I know i don't belong here but everytime I see a post about a possible downs outcome I try to tell their story because it's a beautiful one. I know a few children with downs and they're great. Before knowing them I probably would have been scared myself.. But now I'd love to have a child with downs. It's a blessing. They're so much more happy, so much more loving and accepting than alot of the population. & try to remember even worst case he/she does have ds. It could always be worst. xxxxx

 

[Andypanda6570]

You are in my thoughts and prayers
I know it is hard but try to relax, you will be ok and the baby is ok, i just know it..
Good Luck XOXOO

 

[Torontogal]

Thinking of you, hope baby will be ok, remember there is a 189/190 chance baby DOESN'T have Downs!!! I know it is hard waiting, you will get through it though!

 

[tara515]

its 3 hours before i leave for my scan, and i feel like my legs are Jelly, my heart is pounding and my eyes are hot with the threat of tears at any moment, I just feel so helpless right now, I don't know if i can see this day ending happily, i feel like this is the beginning of what will be the darkest days of my life...my husband isn't supportive of continuing a pregnancy if this baby is DS..he is 46 and we have 3 children, I see why he feels the way he does, but its hard for me to imagine not having this baby, I wish i could feel like the rest of the world and say it wouldn't matter, then maybe my stress level would go down a notch but we had talked about this before i had gotten pregnant and i know how he feels, and i thought i felt the same way until now..i feel almost dizzy with fear...i wish i could dig a hole and hide inside it..you really can't imagine the different emotions i have within a minute..i just want to feel like a myself again..please continue to pray for my baby

 

[Maple Leaf]

I am thinking of you, let us know how you get on today. I'm sure it will all be fine. X

 

[tara515]

Just got back from my ultrasound and the baby looked perfect, we decided against the amnio, i just want to say thank you ladies for your support..its been a horrible rollercoaster ride, one i wouldn't ever want to repeat..i live in a 3 strikes your out state so my dr wasn't going to risk getting sued and lose a license so i had to go through all of this to protect her practice, i will be angry later..right now i am so happy we are having a healthy baby BOY

 

[Andypanda6570]

Just got back from my ultrasound and the baby looked perfect, we decided against the amnio, i just want to say thank you ladies for your support..its been a horrible rollercoaster ride, one i wouldn't ever want to repeat..i live in a 3 strikes your out state so my dr wasn't going to risk getting sued and lose a license so i had to go through all of this to protect her practice, i will be angry later..right now i am so happy we are having a healthy baby BOY

I am SOoooo happy for you..Great news!!!! What a relief..

Congrats, now you can relax

 

[honeysuckle.]

I'm glad it turned out okay. I don't think that telling you your odds is bad medicine. Just saying.

 

[MonalisaH]

I hope everything goes well and I pray that you get good results.

 

[goddess25]

Congrats and what great news.

 

[ZoeZo]

great news, congratulations! x

 

[tara515]

I'm glad it turned out okay. I don't think that telling you your odds is bad medicine. Just saying.

thank you im gladd he is ok too, according to my counslor, she herself is very upset with the amount of False positives that are handed out daily to women who's babies were NEVER in a real risk of downs, they are actually going to be RAISING the second number to be a FAil number in the future, meaning if you heard 1 -350..you have gotten a positive screen and follow up is suggested, she said soon everyone will be failing that test to cover their Dr.s butts...my thoughts, if the test is unreliable, DON"T take it..its soo hard to go through the process, its not a one day event...it takes weeks, ....of worrying. To add to why this test can do more harm then good, My girlfriends mother owns an adoption agency and she is against this test because girls that are already thinking of placing their child up for adoption, would hear the high odds of downs, then abort because they don't want to deal with all the testing for a child they don't intend to keep...i don't mean all of course but enough to where my friends mother is very against this test

 

[ZoeZo]

I agree with you Tara, for me all these tests and screening has just put worry on what should be a joyous time, I can't fully enjoy my pregnancy yet as I'm paranoid I could still lose baby or get bad test results, I'm sure it was easier in the past when they didn't have all these tests, scans and screening? Of course I am not saying that there isn't a place, there certainly is!
My friend works in the NHS, she said 'have the screening, it'll make our figures look good'...

So glad you can enjoy your pregnancy now

 

[tara515]

I agree with you Tara, for me all these tests and screening has just put worry on what should be a joyous time, I can't fully enjoy my pregnancy yet as I'm paranoid I could still lose baby or get bad test results, I'm sure it was easier in the past when they didn't have all these tests, scans and screening? Of course I am not saying that there isn't a place, there certainly is!
My friend works in the NHS, she said 'have the screening, it'll make our figures look good'...

So glad you can enjoy your pregnancy now

I do belive in testing, IF it were a reliable test...this statistical odds crap is what kills me, cuz once they say you fail, they can't UNSAY it..so you freak out worry, cry, it caused discord between my husband and I, panic with my other childrenthey were worried about having a brother with Downs....we had to live with the what if game for nothing...thankfully for nothing but it doesn't negate the fact that wehad to go through the motions of hearing "your child has a high possiblilty of downs" I want more accuracy next time i take a test..this is why i am against the NT from here on out, i didn't have it with my other kids, and guess what i had a very uneventful enjoyable 9 months...good luck with your pregnancy, i pray you will have an uneventful 9 months and a beautiful baby at the end of it