Choroid Plexus Cyst

[Sunshine7125]

I just wanted to share my story. My baby has been diagnosed with a choroid plexus cyst. This was found at 18w4d anatomy scan. I have a follow up ultrasound on September 19th. My quad screen came back normal and my ultrasound did not reveal any other markers from what the Dr told me.

I have read a lot of positive stories and I am hoping all is well with my baby boy

 

[blav]

I was diagnosed with this today as well. I am 15+6 so they couldn't really see much anatomy to determine if this was the only issue or not. I have another scan in two weeks and I'm hoping for good news. Everything I've read sounds promising but I am nervous as well. We have had two second trimester losses due to my incompetent cervix so to have a third due to a genetic condition would just be unimaginable.

 

[Sunshine7125]

I'm so sorry. I hope you get good news. My follow up ultrasound revealed that both cysts were gone. I didn't even know he had more than one but he did. He had bilateral cysts which were pretty good size. I am still concerned about genetic issues as well. I didn't do any further genetic testing so now we will just have to wait until he gets here. Keep me posted on your results. I am here if you need to talk

 

[DaisyBee]

Hi girls, I just posted on a different thread from Blav. Jordan had cpc's found at her scan. She has no genetic problems. We had a more in depth scan with a specialist dr to look for other markers - none were found. The genetic counselor said that cpc's are more common in healthy babies than those with genetic issues. The only reason the cpc's are an issue is the correlation with t18. Whether they go away or not... Doesn't matter. Although as a mom it was a relief to hear jordans had gone away. I totally understand the worry and the fear. It was really hard on me during pregnancy. The tears I cried when she was placed on my chest.. It was the most relief I've ever felt in my life. To see that she was ok after months of worrying... We had 2 miscarriages between Megan and Jordan as well, so that had been on our minds wondering if it could be related.

Anyway - just wanting to be a support and good story for you. Im here if you want to talk or ask any questions, please feel free to pm me.

Good luck and try as hard as you can not to worry..

 

[Sunshine7125]

Thank you so much! I am still alittle concerned about the baby being healthy. The Dr has pretty much ruled out T18 but said Down Syndrome T21 isn't always detected on ultrasounds. That concerned me. My csection is scheduled for Dec 27th. I just want to see him and know he is ok. It seems like such a long wait

 

[DaisyBee]

I was told cpc's and t21 weren't related at all. They actually told me there was less chance of t21 with the cpc's than without statistically speaking if that makes sense. ( mayo clinic genetic counselor told me this) so if this marker is the reason you are worried about t21 I was told it wasn't even on our radar.

 

[capegirl7]

Hey hun my daughter who is now 19 months had CPC on her brain as well at 18 weeks. When we went back at 20 weeks they were still there. They were the only marker for T18. The doctor said she has never seen an isolated case of CPC turn into anything and that it shouldn't even be a marker because they are very common. She also said that T21 and CPC are not related. Oh and my daughter is 100% healthy

 

[Bunnikins]

In the UK they are no longer mentioned.. in the notes or to patients, because of more recent research finding no link between isolated cysts and trisomy 18.

 

[Sunshine7125]

Thank you girls so much for the responses You have no idea how much better you have made me felt! I can't believe I will be meeting my baby boy soon. I never had any issues on ultrasounds with my other two children so this was a huge shock for me. I am glad to know the CPCs aren't related to T21. I just want a healthy boy