Choroid plexus cysts (CPC)

[kategirl]

I'm just really worried, especially since I'll be 20 weeks tomorrow and may not be able to get a quad marker test done since they can only be done before 20 weeks, so I probably won't be able to see my risk from that. I'll try to get a second ultrasound (my insurance/clinic only will do one unless there are problems) to hopefully at least get reassurance that they still don't see any abnormalities. I really don't want to spend the next 20 weeks worrying - I know the risk is low, but I'm almost never on the lucky side of statistics (it sounds silly, but my mother and father both have very rare health problems, our cat had a 1/10,000 tumor, we got pregnant our first cycle and then miscarried, etc) and 1/100 seems fairly high to me. I already feel like it's making me pull away from wanting to enjoy being pregnant and feeling connected to my baby and getting ready for her because I don't know if maybe we won't actually have her.

I'm trying hard not to worry (or to worry anyone else), but it's so difficult when there's a good chance of a problem!

 

[Bay]

Hi kategirl,

Sorry to to hear of your misfortunes. I hope you can get some reassurance soon.

It's very natural to worry, but try not to let it affect the way you feel for extended periods (easier said than done i know). But when you notice yourself dwelling on the negatives excessively, try to shift your focus elsewhere. I found that works for me anyway. Because in the end, to worry or not will not change the situation. Hope this helps a little.

All the best

 

[kategirl]

Not sure where this website got their numbers from (I'm always skeptical of numbers if they have no references, but they still can be helpful), but they have a table of the risk of trisomy 18 at each age with and without CPC. I found it helpful - according to them, I still only have a 1/400 risk at age 27 (will turn 28 a month before the baby is due, but I figure I'm closer to the 27). That's a lot lower than the 1/100 general statistic.

https://www.womens-health.co.uk/cpc.asp

 

[DaisyBee]

Hi! My daughter Jordan had cpc's that were found and resolved before the pregnancy was over. I was still worried of course, natural to worry as a mom, but she is 100% fine. No chromosome problems at all. I had a level 2 ultrasound done at mayo clinic in Rochester and they didn't find anything else and said with finding nothing else that I had 1/500 odds and didn't recommend amnio.

If anyone wants further details or wants to chat about cpc's please pm me. More than happy to share anything I was told or went through.

 

[kategirl]

I was able to get the quad marker blood test and have low odds based on that (the Trisomy 18 chances were "< 1%", which they say is considered negative. I won't have any more ultrasounds during the pregnancy (insurance only approves one at 8 weeks and the anatomy one at 20 weeks) so it looks good that thibgs are fine but we'll just have to wait until the end of January to know for sure.

 

[DaisyBee]

My ultrasounds later in pregnancy that showed that the cpc's resolved were only growth scans and since they were checking they looked for cpc's for me. Otherwise I wouldn't have known if they had resolved. They said it didn't matter if they resolved or not, it wouldn't affect anything as t18 risk was there whether they resolved or not.

I was told cpcs are very common. Equipment is just so much better than it used to be. They see them more in "normal" babies than babies with chromosome problems. Some hospitals are starting to have a policy that they won't tell you about the cpcs unless they find another marker.

 

[Newt4]

They just found a cpc in my anatomy scan everything else fine. Its so hard not to be scared. Im waiting to hear from my doctor but im going to request a level two ultra sound. My triple screen test came back really good. Im 30 and my chances were of having a child with downs was way lower than the average 30 year old. Im not looking forward to the 20+ weeks of worry.

 

[Bay]

I thought i'd update as i think it may provide a little reassurance to those still cooking their buns

I had my baby boy 18 days ago and he is perfect and healthy.

 

[Newt4]

Thats great to hear Bay.
I never got my level two ultra sound as my doctor doesnt think the risk is really there. I do have a growth scan in the next two weeks though.

 

[Bay]

Good luck at your growth scan, hopefully the cpc's would have disappeared already. Will they be checking for cpc's?

 

[capegirl7]

Thought I'd post that my daughter had 2 cysts on her brain at my 20 week scan. She was born in April PERFECTLY healthy Try not to worry everyone, I know I did.

 

[peanut56]

I just got my ultrasound results back and they found an isolated CPC. My doctor told me that because everything else was normal, that there is a "99%" chance that the CPC is nothing. Thankfully I did the NT ultrasound and all the related bloodwork earlier in my pregnancy, and that helped them to analyze my risks better, and while the numbers aren't quite as good as they were before, they are still very good, and still considered a "negative" result.
But I am beside myself with worry. I'm terrified. I don't even really know what to do with myself.

 

[Newt4]

Peanut you sound exactly like me! Found a cyst and my nt was really good. Its hard not to worry!

 

[peanut56]

Peanut you sound exactly like me! Found a cyst and my nt was really good. Its hard not to worry!

Exactly! My doctor told me multiple times not to worry, and I've had people tell me that some doctors don't even consider these soft markers when they're found on their own...but pretty much nothing anyone says can stop me from worrying.

 

[Bay]

I think if you're hardwired to worry, then maybe just allow yourself to feel it out naturally. Sometimes fighting your emotions can make things worse and add more stress. Having said that, just remember that how you feel about an outcome will not change the outcome itself and that things will most likely be okay.

All the best

 

[StarTX]

We found CPC's at my son's 18 week ultrasound. I was worried sick (I'm a major worrier by nature) but my son was born completely healthy!. Please try not to worry!

 

[Newt4]

My daughter was born completely healthy so happy!

 

[Bay]

that's wonderful news! congratulations