Clexane advise? Blood clot on both lungs at 8 weeks pregnant!! HELP!!

[Trissy]

I keep reading these great big warnings about risk of paralysis with epidural because of the heparin so I'm definitely worried about that. I'll be asking at my specialist's appointment on Tuesday how much I really need to worry about that.

Do you have a breathing condition (asthma or anything like that) that would cause more reason for concern? No one wants to be put under if they can avoid it but I can imagine it causing extra anxiety if you an additional condition.

I keep telling myself I want to do this as natural as possible but everyone keeps telling me to not be a hero and take the drugs, haha

 

[Buka345]

Haha!! I have heard the same things about the epidural my consultant said the same things to me, but then said but that Doesnt mean you can't have it!! I need to clear up on Tuesday if it is 12 hours or 24 hours!! But to be honest I really do want to avoid the epidural I am going to try my hardest!! And don't want to put myself at more risk, we can do this haha

I don't have Asthema or anything like that, just with me still struggling with my breathing now and suffering with the blood clot on my lungs!!

Good luck on Tuesday

X

 

[Trissy]

Haha!! I have heard the same things about the epidural my consultant said the same things to me, but then said but that Doesnt mean you can't have it!! I need to clear up on Tuesday if it is 12 hours or 24 hours!! But to be honest I really do want to avoid the epidural I am going to try my hardest!! And don't want to put myself at more risk, we can do this haha

I don't have Asthema or anything like that, just with me still struggling with my breathing now and suffering with the blood clot on my lungs!!

Good luck on Tuesday

X

How long is your anticoagulation therapy going to last for? One year? When I had my bilateral PEs they resolved within six months and I did lung rehabilitation throughout my treatment dosing starting after the 10th week of anticoag therapy. Though my lung clots were thankfully quite small. Have you been doing any breathing exercises at all to improve your lung function? That sucks that you're still struggling with breathing. Doesn't help with a giant baby squashing them!

You're right, we CAN do this.. Maybe with some mild drugs, haha

 

[amjon]

Lol ))

I have already started on my exercise ball walking then up and down the stairs

I guess you are right this was the second opinion I had, so hopefully when I see my original consultant on Tuesday he will agree!! She also said she is drawing a line at 41 weeks and doesn't think it's fair to leave me till 42, which I am really happy about!!

Can I ask you some advice?

I am on 80g twice a day and I will be kept on that until I go into labour or I am induced. Hopefully everything will run smoothly but I got told by the second opinion I had that with this been a large amount, I would not be able to have spinal tap or epidural for up to 24hours after, or if I did need a section I would defintly have to be put to sleep! Which I have be told from the start that the consultant want to avoid
this because of my breathing.

I would like to try and avoid the epidural if I can, think it will be different when I am in labour lol!!

X

I'm only on 30mg at the moment and hope the MFM will up it on Thursday. I have read you can't have an epidural at all if you are on any amount. (Not that I want one anyway. )

 

[Buka345]

I no the baby doesn't help haha no nothing like that!! No breathing exercise at all I havnt been advised to do that, all the after care really my man googled cause slept for like 3months after getting the blood clots described has massive from the consultant haha!! Need to practise tho cause I will need my breathing skills in labour!! I will be on my injection for a year after giving birth and consultant will check and do test that clots have gone!!

X

 

[Trissy]

Your clots sound much nastier than mine were. Yikes!

Sounds like you're being well taken care of though!

There is a group on babycenter called Lovely Lovenox Ladies that has a lot of information on pregnancy and anticoag therapy too, if you haven't discovered that one yet.

 

[Chatterwockin]

ha ha I has 2 massive ( genuine medical term,I asked!) two large and two small... all at the same time... was very lucky by all accounts lol

 

[Trissy]

As much as it sucks doing the shots, thank god for them!

Don't miss being on warfarin though, ugh. If only the shots were as cheap as warfarin.

 

[Chatterwockin]

that was my downfall... I thought I could get away with not taking it after I had my baby... told myself I would take them for him but I would be fine then boom!! won't do that again!!

 

[Trissy]

I've had two massive clots in my left leg in four years, the veins aren't stable enough now to handle another pregnancy for me so this is my one and only.

I can take my chances with an IVC filter placeement but honestly, one perfect little baby is enough for me. After three losses I never thought it would be possible, so I am counting my blessings with this baby.

I still find it strange though that I won't be on anticoag therapy for life though. Not that I'm complaining, I really, really hate warfarin and weekly INRs and being so restricted with my diet but knowing how shot my veins are, still seems odd. I may seek another opinion on that though.

 

[Trissy]

Had my appointment with my MFM specialist and I'm being switched to unfractionated heparin starting next week. Then if I haven't gone into labor naturally by 39 weeks I'll be induced I think the plan is. It was a confusing appointment.

I'll find out for sure next week if I will be induced and when but it sounds like they don't want me to go more than four weeks on the unfractionated heparin.

Then it's back on the tinzaparin for six weeks. Won't need lifelong anticoagulation therapy, though I still want to get another opinion on that, since the hematologist I saw in 2008 said otherwise (if I had recurring DVTs I'd need it for life, regardless of the reason for the subsequent clots.)

Good luck with your appointment on Thursday, amjon! Hopefully your MFM docs will up your blood thinners. Fx!

 

[Buka345]

Hope all is well with you both!!

And the second appointment went well, that's good news been switched to the unfactionated and been induced at 39 weeks!!

Did you find out much more about epidural?

I'm at the hospital on Tuesday for my first check :-/ decided to check me at 38 week then 39 and 40

But still will not reduce my injection due to size of my clot!!

So I just hope I havnt injected!!

Hope you're both well x

 

[Trissy]

I comIpletely forgot to ask about the epidural!!

I've had some disconcerting symptoms come up in the last week, severe itching, swelling, vision disturbances, headache, etc. (but my blood pressure is fine?) so I'm being watched over the next week. I haven't had my urine tested yet though for protein? I'm a little on the nervous side.

Hopefully my doctor will do a urine test on Wednesday at my next appointment, though if the vision disturbances stay the way they are I'll be going to the hospital before then.

Did sort of finalize the birth plan though. We'll start sweeps on Dec 19th (at 37 weeks 2 days) and continue those weekly until I hit 40 weeks on January 7th, if I haven't had the baby between the 19th and 7th. At that point we will do medication induction, so anticoagulation can be controlled. Hopefully this will get baby out by January 10th at the latest. Fingers crossed!

How are you doing? You're getting very, very close!! Getting excited?? Glad they are checking you at 38 weeks! Maybe you'll get a pleasant surprise!

 

[Buka345]

Or that's not nice usually high blood pressure comes up first!! So hopefully everything will be ok, I suffer from a lot of headaches and see like silver lines but mine is due to low blood pressure!! So try not to worry I no its hard!!

Is the swelling and itching in the areas you inject or all over?

Really happy that your plan is put together

I am close two weeks on Tuesday, I am very very nervous I am trying to keep calm (trying my best)!!

I'm not sure if I get a sweep on Tuesday at 37weeks or the week after, but guess I will find out!!

Iv had a lot of pain going on pain that I can handle though, the midwife checked and his head is half way engaged

Do you understand what medication we can actually have?

X

 

[Trissy]

As far as I can tell we can have narcotics and gas for pain relief. I think the issue with the epidural is bleeding into the spine. They also, from what I understand, use your own blood to do a blood patch if the epidural is done too aggressively and the dura mater is punctured completely and the injection ends up in the subarachnoid space, so if your blood is too thin, it won't be effective?

Halfway engaged, I'm jealous!! As of Wednesday my baby's head was still floating though I'm pretty sure he/she has dropped a small bit in the last two days. My bump seems a tiny bit lower and I have had lots of pressure going on down there and this really weird grinding sensation when he/she turns their head. Soooo weird!!!

Hopefully you'll be effacing and dilating on Tuesday!!

I'm nervous too, I just keep trying to tell myself that baby and I survived everything so far, we can make it safely through delivery too. (Even with that though, I'm still very anxious about developing more clots. I just have to trust that the doctors know what they're doing and will do the very best they can for us.)

 

[Buka345]

Do not like that epidural!! Need need to avoid it haha!!

That's it isn't we have got this far, just this last bit that we need to do now!!
And the doctors will have give this some good thought, positive thinking till the end.

Can then look back on this with a beautiful child to tell the tale!!

I cud tell my bump had drop, cause it feels soft at the top of my bump now x

 

[Trissy]

Oohh the top of my bump is feeling softer, I hope that is a good sign!

I have my group B strep test on Wednesday so my doctor will check my cervix and see if I am dilated and effacing at all. I sure hope so. I've been having some really intense BH contractions and lots of sharp pains.

 

[familygirl30]

Hello ladies hope you don't mind me joining in,I'm just over 8 weeks pregnant,and I'm on blood thining injections fragmin as I have factor v Leiden and I had a Dvt four years ago.This is my first baby,I don't have my appointment until 9th jan to see my consultant,just feeling really nervous about it all,one thing worrying me is how do they control the bleeding when your in labour?i know they will take u off injections before hand but was happens. If baby comes early!

 

[amjon]

Hello ladies hope you don't mind me joining in,I'm just over 8 weeks pregnant,and I'm on blood thining injections fragmin as I have factor v Leiden and I had a Dvt four years ago.This is my first baby,I don't have my appointment until 9th jan to see my consultant,just feeling really nervous about it all,one thing worrying me is how do they control the bleeding when your in labour?i know they will take u off injections before hand but was happens. If baby comes early!

I'm really not all that worried about bleeding. I'm MUCH more concerned that I'm still clotting too much on the dose they have me. My MFM has said she doesn't consider FVL hetero to be any risk for clotting and really doesn't feel I should be on Lovenox, so she only agreed to keep me on the 30mg. I've had a stillborn, then 2 MC, so I'm sure it IS an issue. I'm going to ask for the anti xa test though, so hopefully they will see that I DO clot too much.

 

[Trissy]

Hello ladies hope you don't mind me joining in,I'm just over 8 weeks pregnant,and I'm on blood thining injections fragmin as I have factor v Leiden and I had a Dvt four years ago.This is my first baby,I don't have my appointment until 9th jan to see my consultant,just feeling really nervous about it all,one thing worrying me is how do they control the bleeding when your in labour?i know they will take u off injections before hand but was happens. If baby comes early!

Whereabouts are you located? I think that makes a huge difference in how you might be treated. In Canada the standard is to switch from low molecular weight heparin to unfractionated heparin at ~36 weeks, but that's not the case in other countries.

I'm really not all that worried about bleeding. I'm MUCH more concerned that I'm still clotting too much on the dose they have me. My MFM has said she doesn't consider FVL hetero to be any risk for clotting and really doesn't feel I should be on Lovenox, so she only agreed to keep me on the 30mg. I've had a stillborn, then 2 MC, so I'm sure it IS an issue. I'm going to ask for the anti xa test though, so hopefully they will see that I DO clot too much.

Can you supplement your Lovenox with baby Aspirin? Might add a little more peace of mind.