encopresis?

[SarahJayne_x]

anyone had any issues with this please?
thanks
xx

 

[techheather]

I have with my step daughter. Since age of 6(or earlier) through 10. It's a long process. Make sure you get to good dr with good info. And follow orders. You can find on the net some good reccomendations. It's easily fixed and just as easy to re-occur. With proper care to make sure diet is good and maybe some stool softener a or even laxatives to get started. With our situation we only have her 2/14 days. So what happens at home with the diet is unknown. And we presume diet is on the terrible side at home. So we had/have longer recovery from it. Still withing last few months have a slip up or two. And she is almost 11. Can I help any more?

 

[SarahJayne_x]

thank you so much.. my issue is mainly getting him to actually sit on the toilet. he hates it and will scream and cry not to go. his school have been very understanding, even giving us one of the big egg timers so that he knows he has to sit on there until the time is up, its only a 3 minute timer but he still really really hates it. its my very nearly 5 year old son im having issues with, it seems to stress him out and he gets really worked up, im trying my hardest to make sure that he has a well balanced diet but he hardly eats anything for me so thats hard too. he has been given stool softners and laxatives but i then suffer with overflow and going through umpteen pairs of pants a day.. i genuinely feel at my wits end now :'( xx

 

[aimee-lou]

Bit of a long shot but i didn't want to read and run. My nearly 5yo went through a phase of not wanting to sit on the toilet. We discovered after months of frustration that he was scared of the toilet....the sound if it flushing and refilling upset him so much he just wouldn't go in except for wees or uf we were with him and would undress etc on the landing. Once we had got past that he quickly improved. I hope things get better. X

 

[SarahJayne_x]

your nearly 5yo is only a fortnight younger than mine bit of background information, which i'll keep as short as possible: he had an operation on his bum when he was 14 months old as he had a anal skin tag, ever since then he has had no control over his bowels whatsoever, every single day i seem to go through at least 3 or 4 pairs of pants as he keeps on having accidents. he will wee on the toilet fine with no issues whatsoever its just the other side.. i seem to think that the op has has some sort of effect and maybe some damage that we dont know about, the doctors seem to think its not that but i know my own child.. hes so bright if he could do it he would.. he gets so upset when hes done it and says sorry mammy as if im going to shout at him (which i would never do as i know that he cant help it) ive tried every single thing possible, you name it ive tried it. ive got to the point now where it feels like i just want to bang my head against a brick wall xx

 

[techheather]

Almost sounds like there is some nerve damage maybe?? Unless they didn't go that deep. Idk. Maybe get a second opinion on it.

 

[PresqueVu]

Didn't know the name for it, but looks like this is what we are at the GP for tomorrow for my one - second time we've gone there, normal doctor though so I'm hoping they are more use this time.

 

[RachA]

Do you know that this is what he actually has?

I was just thinking that if he's had an op in that area then his muscles might not be working properly and this could be causing a problem. I had a really bad tear when i had my daughter which required stitching from vagina to anus. I then had a cyst that i had removed a few years later in a similar area. Both things weakened my muscles and even now if i don't do the whole pelvic floor exercises regularly i have issues with my BM.

 

[SarahJayne_x]

ive totally lost count of the amount of times ive been to the doctors and the amounts of specialists we've seen and theyre all adamant that its not to do with the op its him.. i know ive got to keep at it and try my hardest to get him to sit there but its soo hard when hes screaming crying and getting worked up. he gets so sad when hes had an accident in his pants, he keeps asking me to buy him pants with his fave characters on, so i did thinking that if it was him doing it then he wouldnt do it in those pants but it made no difference at all.. yeah the specialist we saw in june diagnosed him with encopresis.. im so confused and i am physically and mentally exhausted with it all and with a 10 and a half month old as well.. i genuinely dont know what else to do.. got another appointment on 31st december so am going into that appointment with all my facts and not taking no for an answer.. i want tests etc done to see if the op did affect him xx

 

[RachA]

Getting them to admit that the op has affected him will be almost impossible as they don't want a potential litigation case.
Is there any way of putting him back in nappies for a couple of weeks and taking the stress of having to sit on the loo away from him?

 

[SarahJayne_x]

i could put him back in nappies but hes 5 now hes been out of nappies for so long.. i know he'll be fine if he is in nappies but i'll be taking a step backwards so its a big no no at the moment for me.. im going to get them to admit it no matter how long it takes xx

 

[RachA]

I can understand not wanting to take the step back into nappies.
If they admit to it though what will that achieve iro what happens next? Obviously you'll still have a child that has toilet issues-but will they be able to do something to help?

 

[SarahJayne_x]

sorry about the major late replies.. no it wont make a massive difference but they keep brushing it off as if it is just something that he can help, well if i can prove that they did do damage then that means that they'll have to accept responsibility and give me more help because im going round in circles and to top it all we now have bedwetting.. every night.. i could cry because i genuinely dont know what to do next xx