Factor 5 V Leiden..

[petitpas]

Congratulations Emily!
Lol, it just goes to show. I'm only heterozygous and I had tons of clots in my lungs

 

[Emilyc]

Hi there,

Thanks for the congrats x . I guess I have always done lots and lots of exercise. I used to run daily, ride my horse, swim and walk 8-12 miles a day with the dog.
I drink lots of fluid and eat a good diet, all of which Im not doing now due to pregnancy complications.

I think the trick is to be mobile and drink lots x

 

[petitpas]

Oh no! Are you very ? Boo hiss! How far along are you?

 

[Emilyc]

I have an weak cervix so im on light duties, but due to my factor v I cant go on bed rest ! Im now 18 weeks 5 days and praying for this baby to make it to atleast 30 weeks x

 

[petitpas]

Oh Emily, I hope everything goes well for you!
Have you spoken to a haematologist? If you are on the treatment dose of lmwh you should be protected from clots so bed rest wouldn't be a problem from that respect? Unless they are worried about it affecting the baby somehow?

I have my fingers crossed for you fxfxfxfxfxfxfxfx

 

[ElmoBumpToBe]

Oh petitpas i have just noticed you got your bfp!! HUGE congratulations are they going to put you on shots?? xx

 

[petitpas]

Thanks Elmo!
I was still on the shots from my miscarriage (have to take them for six weeks after last known pregnancy i.e. positive poas/blood test) when I got my bfp so I just stayed on them
I am on double the preventative dose at the moment, which is just a little less than the treatment dose (treatment for active clots that is). I am having my anti-Xa blood test tomorrow and the DVT nurse is looking at moving me up to the treatment dose as there is no reference for what I am at the moment (somewhere between the two)

I am also on baby aspirin.

Fingers crossed please that we see a heartbeat tomorrow!!!!!

 

[ElmoBumpToBe]

Oh is it your scan tomoro! I have everything crossed for you, let me know how it goes hun! x

 

[petitpas]

Thanks. I'll let you know...

 

[momomom]

Good luck, petitpas! I hope everything went well!

It's good to see what other people are going through. There's so little information out there about all this stuff!

I think I'm going to go ahead and do the Lovenox shots. The alternative is that they will just watch closely to make sure the baby is still growing. They may also have me take a baby aspirin, but the doctor said that the only thing that really works is the Lovenox. I would rather take the discomfort of the shots, personally. I think the worry of something going wrong would just be too much stress.

 

[petitpas]

momomom, I'm on both: tinzaparin (another brand of lmwh, like lovenox) and aspirin.

Had a bit of a scare before the scan as I started bleeding, but we saw a heartbeat!!!
We're not totally out of the woods yet. The gestational sac is too small and I am going back next week to see if our little hippo makes it...

 

[Emma 21]

hi i too am heterozygous factor v leiden they found out when i was 26 weeks pregnant with my last baby after doing a thrombophilia screening as a precaution cuz my bro had a blood clot. I started on clexane then 1 a day until 6 weeks post partum. And Jaime was born healthy 6lb 12 0z on boxing day 2009.

They think this is the reason i had 3 miscarriages before my eldest.

I am now 10 weeks pregnant with my 3rd baby, i have been on 2 clexane injections a day since 7 weeks pregnant as well as 75 mg of aspirin. I have a subchorionic haematoma under the placenta so i am being monitored closely... but so far all is good.

I have an appointment at walsall manor hospital with a haematologist next tuesday and my 12 week scan next wednesday.

I will also have growth scans at 28 and 34 weeks to monitor the baby.

 

[Emilyc]

Hi Emma,

I too had a subchorionic hematoma early on they say it can be due to the thinners but the benifits of being on them out weigh the risks.

I have factor v both genes and im on fragmin 7,500 iu at night and 75mg asprin am daily. I am also on cyclogest for an incomplete cervix which isnt great.

If you fancy a chat im here

 

[Emilyc]

I am homozygous * two copies *

 

[ElmoBumpToBe]

Hi ladies, quick update from me, found out were having another little boy

Had my 1st consultant appointment up here today (moved areas, hospitals) really pleased with the care here so far, they are saying they will give me extra growth scans at 28 weeks and 30 something weeks so thats brilliant news! Also made it so easy to get my clexane, i can just literally walk into the local clinic when i run out of it and they will give me it straight from the cupboard as long as i have my notes with me!

Petitpas - any news hun is everything alright?? xx

 

[momomom]

Congrats about your boy! I'm glad to hear that all is going well with you and your little one!

I just started the shots yesterday. The nurse said I can give them to myself in my thigh, which is fantastic as far as I'm concerned. Much better than the belly! Also, now that there is a generic, I'm paying a pittance for my prescription. Also very very good. I was certain I was going to have to pay $1,000 a month or something for the shots. (Cheesy American health insurance!)

 

[petitpas]

Elmo and momo, that's great news!

AFM, unfortunately my hippo didn't make it
I've now been referred to the top miscarriage clinic in the country at st Mary's. Apperently they specialise in women with congenital clotting issues and have access to more tests and treatment than our local recurrent miscarriage clinics. Fingers crossed that they can help me be fourth time lucky fxfxfx

 

[momomom]

I'm so sorry to hear that, petitpas.

Best of luck to you. I hope they give you the care you need! fx!

 

[petitpas]

Thank you Momo!
I will keep you updated xxx

Still on the tinzaparin shots for another month and then we'll see what the London people say. I am actually quite excited to go see them. I have only ready positive things about the doctors working there.

 

[ElmoBumpToBe]

Petipas im so sorry to hear that but very very pleased that they are doing something so positive to help you, sounds like you couldnt be in better hands!

Thanks momomom, good news that they are not costing you a fortune! Funny you should say that about your leg, i cant stand having them in my leg its so painful! OH does them in the sides on my stomach, we tried it in my arm the other night and it didnt hurt at all as he did it but it did hurt afterwards xx