factor v leiden

[McStars]

So, doctor says I have factor V leiden. Does anyone here have this also?? Next time I get pregnant, immediately have to start taking baby asprin and lovenox injections.... I am happy to know there was a real reason behind all of my losses though, and all I have to do to stay pregnant is just give myself a shot a day!

 

[Round2]

I'm hetrozygenous prothrombin (same risks as factor V - just a different gene). I'm curious, do you know if you're also hetrozyganeous (one gene or two genes)? I've known for awhile about my condition and despite 2 MMC my hemotologist is still reluctant to put me on any blood thinners.

 

[McStars]

My doc said that its just one abnormal gene. And also having a protein c deficiency. Its all complicated! I wonder why your doctors dont want to put you on it. As far as I know if you have it and have been having miscarriages that its considered a symptom and the meds are an easy fix! I seem to keep seeing your name pop up everywhere and are in the same situation as me!

 

[Round2]

Errr...that's so fustrating that my doctor won't take it seriously. He's one of those 'purist' type doctors. Unless it's been proven 100% to be effective....then he doesn't buy it. He didn't even want me to go on baby asprin! I have an appointment on Monday to see him, it's the first time I've seen him since my first loss so perhaps he'll change his tune.

Yes, I noticed your name around as well. I always take note of women who've had kids and are going through multiple losses. I think it's somewhat of a different ball game then many others on this forum. I feel like I'm in a state of shock most days. My DD was conceived so easily, I never thought I would end up here. It also makes me feel so grateful for what I do have already. I just hope that I will be able to give my DD a sibling one day.

 

[McStars]

It is all not going to harm you and the baby most likely, especially baby aspirin! Could you go to a different doctor if he doesnt cooperate? I know its hard if they tell you to do nothing, when you know what you need to do!!!
I do feel that its different having a kid already too. I feel like my son must be a little miracle boy!

 

[Round2]

Yes, if my doc doesn't give me the drugs then I will go to my GP and get a referral to a new hemotolagists. I'm not going to sit back and let another baby die because my doc doesn't believe everything that he reads.

My FS and OB both said to take the baby asprin. They're both on the fence about the blood thinners.

So fustrating!!

Yes, I'm starting believe that I just got lucky with DD too!

 

[McStars]

I think that there might be some potential danger to the fetus with the shot, but there are different kinds depending on what your dr wants you on. I think in our cases the benefit will out way the danger. Like the side effect could be possible miscarriage, well we already we have that problem... Why cant the fertility specialist give you a prescription? I dont have to go to a hematologist, bc in my case it is only effecting pregnancy

 

[Round2]

My FS and OB want my hemotoligist to make the decision. My condition is slighty more rare than Factor V, so I don't think as many doctors know about it or understand the potential risks.

That last time I saw my hemotoligist was after my first loss at 12 weeks. Now that I've had a CP at 5 weeks and another MMC at 10 weeks...I'm hoping he takes it a bit more seriously. My appointment is at 8:30 Monday am - I'll let you know how it goes.