High prolactin? A bit long - but please help!

[mohini12]

Hello

Just wondered if anyone could help me please.

I have had results recently for recurrent miscarriage, three so far. The nurse said all looked fine with the results however someone I showed my results to pointed out that my prolactin level was a bit high. My prolactin was at 430?

I have tried to research what is normal ranges and have seemed to find that there are two ways the levels can be calculated (in ml or ng etc) To be honest I'm quite confused! My other results were FSH at 7.3, LH at 6.3, oestradiol at 96 and prolactin at 430.

Hope anyone could offer me any advice, you all seem to know far more than me about this. Thanks so much in advance.

Aisha

hi
i agree that high level of prolectine may cause miscarrige although some dr.are not agree with it.but i have my personal experience with high prolectine and miscarrige.i am going through this problem since 2006 and finally my new endo dr advice to control prolectine before next pregnacy which is not easy to control by medicine for me.you should consult to endo dr. for high prolectine.he will advice you for MRI if required.goood luck and keep posting here.

 

[aisha54211]

Thank you so much for the reply, yes I know what you mean, I did google it and saw TUMOR and thought oh noooo this is something really bad. But I am reassured with your information. Yes the nurse didn't seem concerned, so hopefully it's nothing and yes I am able to conceive (thank God) just not able to keep them, so far anyway. So fingers crossed. I am in the UK and they seem to do everything backwards hahaha so perhaps it is the way they calculate the levels. I will see my doctor though and ask for clarification. I will let you know what I find out about how they calculate those levels. My best wishes are with you and I appreciate your reply so much. Take care, all the best Aisha xxx

 

[aisha54211]

hello aisha! Im not sure as far as how the levels are actually calculated, but i can tell you this... I have always been told that a normal prolactin level is around 5-7. So if your levels are at 430, then that is definitely high. my levels range from 60-200s. They can go as high as in the thousands. Im not sure about the other results you mentioned, but i thought i would comment since i have elevated prolactin levels myself. However, I do not ovulate or have periods due to my prolactin level. so the fact that you CAN get pregnant is encouraging, but i am terribly sorry to hear of your losses. Again, maybe the way your levels are being calculated (as far as ml or ng) is not the same as how mine are calculated. I would assume that if a nurse saw levels that high they would let you know if it is abnormal, but maybe they didnt know to look? Let me also warn you that if you start doing research about elevated prolactin, you may see something about a "tumor on the pituitary gland". Do not be too alarmed! They are commonly benign and you might end up having an MRI to check it out if your experience is anything like mine. I hope this helps a little. Please keep us updated about what you find out! but i would definitely ask about those levels

Thank you so much for the reply, yes I know what you mean, I did google it and saw TUMOR and thought oh noooo this is something really bad. But I am reassured with your information. Yes the nurse didn't seem concerned, so hopefully it's nothing and yes I am able to conceive (thank God) just not able to keep them, so far anyway. So fingers crossed. I am in the UK and they seem to do everything backwards hahaha so perhaps it is the way they calculate the levels. I will see my doctor though and ask for clarification. I will let you know what I find out about how they calculate those levels. My best wishes are with you and I appreciate your reply so much. Take care, all the best Aisha xxx

 

[aisha54211]

hi
i agree that high level of prolectine may cause miscarrige although some dr.are not agree with it.but i have my personal experience with high prolectine and miscarrige.i am going through this problem since 2006 and finally my new endo dr advice to control prolectine before next pregnacy which is not easy to control by medicine for me.you should consult to endo dr. for high prolectine.he will advice you for MRI if required.goood luck and keep posting here.

Thanks for the reply, I am sorry you have been going through this since 2006, my thoughts are with you and I wish you all the best for the future... It's certainly a long and disappointing journey, lets hope we get there in the end! I will keep you updated... Thanks again so much xxxxx

 

[nobump]

Slightly different issue, my doc did day 21 test, that showed I was ovulating, but had high prolactin levels, lab did some test on prolactin and they said it wasn't due to a tumour... now my left nipple has turned purple and is sore all the time.. not sure if the 2 are related. Been trying for more years than I can remember 3+

Sorry was googling prolactin and pregnancy and this thread appeared... didn't realise this was maybe not the most appropriate to post on..

 

[mohini12]

nobump- welcome and sorry you are trying from long term.but prolectine can easily control by medicines like cebergoline or brom if you had not dignosed with prolectinoma.with medine you'll also start ovulate on cd 14..goodluck

 

[nobump]

Gdoing to see my doc on Tuesday to discuss options. Been referred for IVF but wait is very long. Waiting for a miracle. Being referred to breast clinic as well hope it nothing sinister

 

[mohini12]

nobump-goodluck for appointment and for IVF too.but if your prolectine can control with medicine then no need to IVF .you will conceive naturally.
Lot of babydust to you.

 

[Tonelle24]

Hello,

I've recently experienced something very similar and I'm sorry for your loss. A couple months ago I started taking cabergoline to bring down my prolactin levels (caused by a micro adenoma). Before the meds my level were around 80. I conceived by accident but lost the baby at 6weeks. After the mc my bloodwork showed my prolactin was still at 34 so my endocrinologist has increased my dosage to bring levels down more before ttc again. My question for the doctors was whether my high prolactin and not ovulating for 4 years may have created an inhospitable uteral lining? The doctors don't seem to know and won't look into until I experience more miscarriages. So I guess we're both wondering the same things? If anyone else has more info on this please share..

 

[lw0619]

Hello,

I've recently experienced something very similar and I'm sorry for your loss. A couple months ago I started taking cabergoline to bring down my prolactin levels (caused by a micro adenoma). Before the meds my level were around 80. I conceived by accident but lost the baby at 6weeks. After the mc my bloodwork showed my prolactin was still at 34 so my endocrinologist has increased my dosage to bring levels down more before ttc again. My question for the doctors was whether my high prolactin and not ovulating for 4 years may have created an inhospitable uteral lining? The doctors don't seem to know and won't look into until I experience more miscarriages. So I guess we're both wondering the same things? If anyone else has more info on this please share..

my prolactin was always high...the lowest the drs could get my levels were 60s-80s range. and that was on the highest dose of cabergoline (one pill every day). I had never ovulated EVER...no period ever (except when i was on birth control). I finally had surgery to remove the tumor after TTC for over 2 years. The very first time i ever ovulated (barely 2 months after the surgery), i got pregnant. I am now 16 weeks and everything has went great so far. Im still very cautious, but so thankful i had the surgery. hopefully that gives you some hope. if you ever have any questions, feel free to message me or reply here good luck!

 

[mohini12]

Hello,

I've recently experienced something very similar and I'm sorry for your loss. A couple months ago I started taking cabergoline to bring down my prolactin levels (caused by a micro adenoma). Before the meds my level were around 80. I conceived by accident but lost the baby at 6weeks. After the mc my bloodwork showed my prolactin was still at 34 so my endocrinologist has increased my dosage to bring levels down more before ttc again. My question for the doctors was whether my high prolactin and not ovulating for 4 years may have created an inhospitable uteral lining? The doctors don't seem to know and won't look into until I experience more miscarriages. So I guess we're both wondering the same things? If anyone else has more info on this please share..

Hi
Sorry about your loss.i have had 6miscarriges.most of the drs don't agree that high prolectine cause miscarriages.
They always confused me that some other reason may cause it.they did my lot of blood testings and genetic tests.all are normal.my prolectine value is always in 50or more even after high dose of cabergoline .I am taking medicine since 2006 when I was diagnosed with 8,mm microadenoma.I had a MRI last week which shows 5*6*3mm tumor.I requested many time to my endo for surgery but they said no need.I am of 33years and very worried about my future.I don't know what to do.I had an appointment today and they asked me to continue
with same treatment(cabergoline).and try for ivf .what is your tumor size?

 

[mohini12]

Hello,

I've recently experienced something very similar and I'm sorry for your loss. A couple months ago I started taking cabergoline to bring down my prolactin levels (caused by a micro adenoma). Before the meds my level were around 80. I conceived by accident but lost the baby at 6weeks. After the mc my bloodwork showed my prolactin was still at 34 so my endocrinologist has increased my dosage to bring levels down more before ttc again. My question for the doctors was whether my high prolactin and not ovulating for 4 years may have created an inhospitable uteral lining? The doctors don't seem to know and won't look into until I experience more miscarriages. So I guess we're both wondering the same things? If anyone else has more info on this please share..

my prolactin was always high...the lowest the drs could get my levels were 60s-80s range. and that was on the highest dose of cabergoline (one pill every day). I had never ovulated EVER...no period ever (except when i was on birth control). I finally had surgery to remove the tumor after TTC for over 2 years. The very first time i ever ovulated (barely 2 months after the surgery), i got pregnant. I am now 16 weeks and everything has went great so far. Im still very cautious, but so thankful i had the surgery. hopefully that gives you some hope. if you ever have any questions, feel free to message me or reply here good luck!

Hi
Very happy to see your success.can you please send your hospital or dr name who did your surgery?God bless
Because my dr seems not interested in my surgery.and I need a second opinion.

 

[lady124]

Hi,

I just found this thread and wondered where posters are withbtheir struggles. I was diagnosed with high prolactin about a year ago, and have been on bromocriptine ever since. I got pregnant in September, but miscarried at 12 weeks (although baby died at 6 or 7 weeks) Doctors say prolactin did not have anything to do with the m/c, but I am not convinced. I am about to go for a second opinion.

I was just wondering whether anybody has had progesterone supplementation to help with the quality of their ovulation. Or any other options?

 

[mohini12]

hi lady124
sorry about your loss.i 've had 6recurrent losses.everytime my prolectine level was high more than 60.but drs never agree that high prolectine cause miscarriges.i am still ttc but cant even conceive since my last miscarrige in july2011.yes high dose of progestrone my help as my endocronologist suggest me .but not sure is prolectine related to miscarrige .my all other blood testing and hysro laproscopy shows ok report.what is your prolectine value this time?

 

[lw0619]

ladies im so sorry for your struggles. i know exactly how you are feeling. all i can say is the surgery literally changed my life. My FS didnt think i should have the surgery either. It was endo who made me feel like it was a safe and reasonable option. I got pregnant 2 months after the surgery and now have a beautiful, healthy 3 month old. I am having cycles for the first time in my entire life. The high prolactin, may not be what ACTUALLY caused the m/c, but it effects all of your hormones, including progesterone. Therefore, you may have Ovulated, but the high prolactin may have inadvertently caused the m/c bc it didnt allow your progesterone to create a thick enough lining to allow your egg to stick. I sincerely hope you are able to conceive and carry your own precious baby. Its a horrible thing to have to go through but i can say with 100% confidence that I am so glad i did the surgery