Hydrocephalus

Sal76

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Our little man has hydrocephalus and is currently being monitored everyday and the neurosurgeons are coming to assess him in a couple of days. Has anyone had experience of this? Struggling a little as he has done so well and now faces surgery and a life long condition x any advice would be very welcome

Sarah xxx
 
I don't have personal experience of it but the wee boy beside my dd had it and he had a shunt put in. His had started to resolve as he got to term. He had the shunt removed last year a few months before his 3rd birthday. He has hemiplegia on one side but he started walking just before his 2nd birthday and his speech is amazing.

I hope the neurosurgeons give you some good news xx
 
My LO has hydro, PM me if you want to talk as I imagine you've been through some stuff by now x
 
My nephew was hydrocephalic. It was very difficult for my sister, but he was the sweetest little boy ever. I pray that your little is okay.
 

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