Hypermobility Syndrome.

[AimeeM]

Does anybody have a child with this? After tons of tears and doctors appointments it took our new doctor 5 mins to diagnose Ds1 with it. We were told time and time again it was growing pains, even in his neck. He gets a lot of pain and it really gets to him. We were refered to podiatry for his leg pain and he has just got inserts for his shoes. The nurse there said without a doubt he was hypermobile so we went to our new doctor but he said it was this without me even mentioning first. After a few simple tests.
He said if the pain carries on, which we know it will, he will refer him. I just wanted to know if anyone has been through it and knows what they could do for the pain. I am worried after reading up that he could have Ehlers Danlos Syndrome as he does got a lot of stomach aches too.

 

[sun]

Is hypermobility the same as hypermobility syndrome? My son has hypermobility and also hypotonia (low muscle tone). However, he doesn't have pain from it - I actually didn't know that it could cause pain. For us it did cause delayed development and the hypotonia affects his speech. I hope you can get some answers soon for your little guy!

 

[AimeeM]

Hypermobility turns in to hypermibility syndrome when they suffer from significant pain from it. I have read it does cause general developmental delays but my son who is 9 now was am early crawler and walker. He did complain of leg pin from when he was able to talk though x

 

[Lownthwaite]

My DD is hypermobile in all her joints. She is under the care of orthotics for insoles for her shoes although these don't help a great deal as most of the issues with her walking stem from the rotation in her hips and her ankles swinging in.

Personally I think my daughter has Ehlers Danlos. She has a lot of characteristic symptoms and we also have a family history of hypermobility and joint / reflux issues. Her GP agrees with me and referred her to the hospital however the doctor we saw was totally useless - dismissed the family history totally, treated me as an irrational first time mum and said as her skin doesn't stretch far enough she's not got EDS. (Even though it's well known that not all EDS types present with stretchy skin!) The doctor we saw wasn't a specialist - he was a general pediatric consultant so when I take my daughter back to her own GP in March to review her hernia (another symptom!) I will discuss it with him again to hopefully get a referral to a rhuematologist or somebody who will hopefully know what they're dealing with!

My DD does complain of pain from time to time; mainly in her ankles and elbows but she struggles majorly with fatigue.