Hypothyroidism.... Help :( :UPDATE PG 6:

[LeighAnne]

Ok, so now I am a little more freaked out. So sorry for your loss Krippy. I lost twins 2nd trimester...

I have an appointment March 1st with a Fetal Maedicine Specialists and they are scheduling me a scan on the baby and on my thyroid gland this week......

Keeping my fingers crossed....

 

[aimee-lou]

Ok, so now I am a little more freaked out. So sorry for your loss Krippy. I lost twins 2nd trimester...

I have an appointment March 1st with a Fetal Maedicine Specialists and they are scheduling me a scan on the baby and on my thyroid gland this week......

Keeping my fingers crossed....

Try not to worry hun, at least they're looking after you

I've never had scans etc, but I've never had a loss either (thankfully). Work with your Dr. If you're worried call your GP and arrange an interim blood test before all of your scans, if nothing else it will give you something to focus on.

Try also reading: https://www.naturalways.com/thyroid.htm

This site (and a lot of others too) have ways and means of promoting healthy levels and a simple thing like a vit c supplement of eating a bit more green veg (things I've been guilty of not doing lately so probably know why my levels have gone out of whack) can help to keep things stable. Also, very good for baby too.

Try not to take iron supplements at the same time as any thyroxine supplements too. This can counteract them.

Do a bit of research on how to help yourself rather than the scary things, and think positive. It works wonders.

 

[LeighAnne]

Thank you so much. This will at least give me something positive to focus on. That way I can at least say I ddi everything I could to try and save my baby....

 

[Hope39]

It does take a while to get it under control if it is anything like mine

I was diagnosed with an underactive thyroid after my 3rd mmc in October, my TSH at this point was 9.27

In November it had dropped to 5.24, december it was 1.3 (perfect for ttc), and then in January it shoots up to 41.3!

I haven't a clue why it has shot up so much, my t4 is now below range so i think my consultant is going to diagnose me with hashimoto's

 

[LeighAnne]

All these stories are at least good to hear. Haven't really heard of anyone with a success story. Of having a high TSH level and the baby living. I guess I should start preparing myself for another loss....

 

[Hope39]

Dont give up hope yet LeighAnne, the increase in thyroid meds may be all that is needed

Normal range is classed as 0.5-5 and you were only slightly over that at 7, i know i was only a little bit higher than you but i also have thyroid antibodies so i have got an auto immune disease also

People witha auto immune diseases sometimes have elevated natural killer cells so it could be that my nk cells are killing the feotus

Don't get disheartened yet

xx

 

[Krippy]

I agree with Hope...have faith in your rainbow! I have met a few ladies on here with hypothyroidism with successful pregnancies and know 2 in person that have had successful pregnancies so please keep holding onto to that rainbow!

Got my blood work from my Doctor and my TSH was 11.06 and my free T4 was 6.9...so mine was way too high to sustain a pregnancy. Hoping that it won't take long to get them back to normal so that we can TTC again.

 

[LeighAnne]

I am trying to stay as calm as possible. I am a very laid back person. There is nothing I can do accept take my meds and follow doctors orders. I will keep you ladies posted... And thank you soooo much for the support. It's really all I have to keep positive right now.

 

[aimee-lou]

Normal range is classed as 0.5-5 and you were only slightly over that at 7,

xx

Precisely what I was about to say.

For endocrinolgist wants my levels below 2, which apparently is 'ideal for pregnancy' but normal levels are anything up to 5 and can fluctuate by up to 2 points within days so the increased dose etc will have done some good.

The increased levels are not a guarantee of an m/c. Try to keep positive and be pro-active. I'm sure you'll be fine hun xxx

 

[Andypanda6570]

I am trying to stay as calm as possible. I am a very laid back person. There is nothing I can do accept take my meds and follow doctors orders. I will keep you ladies posted... And thank you soooo much for the support. It's really all I have to keep positive right now.

Hope everything works out, I agree don't give up ..
XOXOXOO

 

[LeighAnne]

Again. Thank you ladies.

 

[Thyroxy]

New To Hypothyroidism and New To Baby and Bump

--------------------------------------------------------------------------------

Hi, I have just been diagnosed with hypothyroidism and, in some ways bad timing, I was 2 weeks pregnant at the time of untreated diagnosis. I was overtly hypo for the first 2 weeks of pregnancy, then after starting meds, am down to subclinical hypo. My Endocrinologist & fertility specialist both seem to think that because I have had this treated so early in my pregnancy and if we can get the TSh stabilised ...and within normal range before foetal brain development starts at approx 4 weeks, that I wouldn't need to worry about the usual risk of untreated hypo in pregnancy on the baby after birth, in terms of lower IQ and problems with gross motor skills etc. Of course I have been reading everything and anything possible about the risks to a baby later in life if hypo is treated so early in pregnancy, but nearly all of the literature and forums out there only deal with untreated hypo during pregnancy and the risks that come from non treatment. Does anyone have any experience, or know of anyone, or have any relevant and factual feedback regarding risks and outcomes for babies later in life with their IQ etc, when their mother had her hypo treated so early in her pregnancy? Anything would be greatly appreciated.

 

[LeighAnne]

Good question. What were your TSH levels?

 

[oldmamamia]

hi leigh anne, im a sucess story, thought you might like to hear, i was diagnosed at 10wks pregnant with over active thyroid in the form of graves disease so it was in my immune system as well, think id had it a while as id lost alot of weight in the last year, was constantly tired and achey and generally unwell but just put it down to a demanding job and busy family, when they 1st found out my t3 score was 18.9! should be between 2 and 3, i was so worried, went on google and then had the most horrible pregnancy convinced baby would be braion danmaged etc, and that was if i was lucky enough to stay pregnant, i was put on meds and had bloods done every 2wks, saw a specialist every month and had growth scans every 6wks, the docs prepared me that my baby would be taken straight to special care when born and monitored for 6 days while they took his blood every 2 days to check his thyroid levels, i was so worried and prepared for the worst, anyway he was born, observed for 2 days , not in special care and had his bloods done at 1 wk which did show he had my antibodies but it hasnt harmed him and after 6wks they had gone from his blood, he is fine, very alert and happy and absoulutly healthy, i on the other hand am not so good , after getting my t3 down with meds in my pregnancy they have now gone off the scale since charlie was born and my thyroid gland is failing, they want me to have the op to remove it which then means a life time on meds to give me some sort of metabalism but whats stopping me at the moment is they inject the neck area with radiactive iodine(??) and have said i wont be able to pick babe up and cuddle him for 6wks, how can i possibly do this?? i really dont care about my health just relieved that charlie was ok, just make sure you take your meds and have all your bloods done and DO NOT google it!!!! xxxx

 

[LeighAnne]

Wow! huge thank you for taking the time to share! I hope all turns out well with you. I try to stay away from Google. It's terrifying.

Keep me posted.... And good luck to you!

 

[aimee-lou]

oldmamamia - how come they want you to have your thyroid re-moved/irradiated? They think I had graves' which caused my thyroid to fail and I am simply on thyroxine replacement (granted for the rest of my life but still). My Mum had a similar experience to me in that she was diagnosed after I was born, but the graves' had been diagnosed much earlier in her lifetime...I think she was 20 and it was picked up in her medical for the RAF. She was then able to have me - I was born in 1983 - and then after having me her thyroid basically shut down. Carbon copy of what happened to me, but I wasn't diagnosed with the Graves' apart from anecdotally by my GP because I have all the hallmarks (sunken eyes, big bags, sallow skin etc).

Thyroxy - In a lot of women actually getting pregnant can cause hypothyroidism. I was even told by my GP that it can go again once you're not pregnant (although it raises the chances of my developing more permanent illness later in life). I can't find the report that gives the stats on this, but it is common for women to find out early on and that then gives the Dr's a good chance of sorting our your levels. The fetal brain development is mainly 'critical' in the first trimester, and from what I've read around the subject, studies have shown a difference of between 10 and 20 IQ points if there is indeed one. This would be from total non-treatment of the disorder, so that fact that you are undergoing treatment and have been since early on says to me that you have nothing to worry about. My Dr was very positive (having the disorder herself she was very knowledgeable) and basically said that risks are roughly the same as if you didn't take your folic acid for example.

 

[Thyroxy]

Hi LeighAnne, my TSH levels when I was first diagnosed were 47, then within a week (and just before I started my meds) they were down to 25. I have more blood tests tomorrow (will have been on the meds for a week) to see where I am at and this is when I hit the 4 week mark of my pregnancy. VERY nervous.

 

[LeighAnne]

Keep me posted, as I will you.

 

[Thyroxy]

OK, so got results last night and am down to 5.2 after just one week on the meds, big yay on that one. Endo has upped my dose to 200mcgrms until Friday when I will have another round of tests and hopefully be down to TSH of around 2. Happy to report that FT4 and FT3 levels are still perfect, it's only ever been TSH that was way out of whack. I then checked my TSH level when I was pregnant with my first child - and throughout my pregnancy it was 4.9 - and no one raised an eyebrow as this issue wasn't as well monitored back then (5 years ago) - so using the 4.9 in my previous pregnancy as a gauge (and my first child is now 4, and smart as a whip with no developmental issues whatsoever), we've decided to continue with this pregnancy. Delighted to say the least. Now I just need to lose all this freaking weight!!

Good luck on 1st March with the specialist and the scans LeighAnne, keep me updated. Am more than happy to keep chatting our way through our pregnancies, even though we're on the otherside of the world from each other (I'm in Australia), we can still be a support to each other. There's not many of us out there going through this is there?

 

[aimee-lou]

Thyroxy - Glad to hear that the levels have worked out! I think it's only in the last 18 months-2 years that this level of 2 in pregnancy has been adopted in the UK. I didn't even have the tests until after Earl was born but I know that my Mum has told me that she was aiming for 5 as normal throughout her pregnancy with me. However, she was hyper (technically) when PG with me so easier for her to achieve that lol.

I rang up to get my results from my Dr's (from the test I had done on thursday). Apparently my GTT was all normal (yay!) but my TSH was registering as 6.0! Ermmmm I'm confused to say the least lol. My level in early Jan when I was on 150mcg was 3.89 which sparked my higher dose. When I had my test last thursday I had been on the new dose just over 1 week, so it's gone up by 50% in that week, despite me being on 33%more thyroxine. The Dr has said that I need to wait until I have my next bloods done (on the 8th March) before they will do anything. I think now I'm out of 1st tri the urgency has gone down slightly.The only thing I can think of is that in the time between my test in Jan (8th) and my new dose of thyroxine, my TSH has gone up massively, so the 6.0 is actually the improving level rather than a reason to worry. Fingers crossed I'm right. Tempted to book a cheeky test in 2 weeks time just to check on it - good old NHS lol.