Well i guess we belong in here now since hes no longer a baby
Your name: Tara
Your toddlers name: Rohan Thomas (Silent H in Rohan)
Age: 12 months
Favourite foods: spaghetti hoops :s
Recent Milestones: walking
Likes: almost everything
Dislikes: having his inhaler, having his nose cleared, not being allowed his brothers chocolate
Info: Rohan was born at 36+5 (spontaneous labour) via emcs weighing 6lb 8oz. spent a couple days in NICU under the billi lights and on iv antibiotics for strep B. we went home at 3 days old and he was doing grand apart from loosing weight and went down to 6lb 1oz. at 12 days old he stopped breathing and had to be blue lighted to hospital where he was ventilated and sent to a bigger hospital. We spent 3 weeks in intensive care and a further 4 days back in our local hospital before going back home. he had RSV, Bronchiolitis, Pneumonia, collapsed lung, air in his chest cavity and a bacterial infection. He came home at 5 weeks old weighing 6lb 1oz.
a couple months later he had hypothermic temp drops while sleeping which are still unexplained. Then sepsis of the kidney and a severe uti where they found he had a duplux kidney and collection system with grade 5 hydronephrosis, also a large ureterocele in his bladder. He had another indepth kidney scan and then an operation the next month to burst the ureterocele which worked and his hydronephrosis is now much milder (after having another ultrasound). We just last month had his nuclear scan (DMSA) to see how much of his kidneys work and whether the duplex needs removed or if it can be left to see how it goes.
Shortly after that he got a bad viral infection and was admitted to hospital again and put on a drip.
We've had a phew cases on bronchiolitis since which he is prone to and is on an inhaler for Asthmatic tendancies. he also has CMPI
There is a much more indepth story on my journal for anyone interested. Rohan was featured on a BBC ALBA programme called Cobhair Chloinne (scottish channel. Paediatric retrievals, which can still be watched online. hes in episode 1)
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pictures from the first hospital journey
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his christmas photo