Just need some support

[mummyosborne]

Im really struggling at the moment, my beautiful little girl has just been diagnosed with cerebral palsy, all four limbs are effected, as well as her ability to swollow. Ive been fighting so long to get her a diagnosis but now that she has it, i feel like im drowning. She has about 5 appointments a week with various specialists, which are just well sometimes unbareable, they all seem to have bad news. I just feel like im going to burst out crying all the time, im so worried for her future and its so full of what if's, will she ever walk? will she ever run with friends? will she be able to go to mainstream school? will she ever be able to do everything she wants in life? they are such basic things i want for my daughter and the thought that no matter what i do i might not be able to help her get them just kills me. Sorry for the rambling i just needed someone to talk to, my partner works 80 hours a week so he's almost never home and i just feel like im drowning.

 

[netty]

i'm sorry - don't know what to say but did not want to read and run

 

[faun]

Oh hun you sound so much how i feel at the moment, my son got his asd diagnosis on monday and im falling apart too. I know its completely different and your worries for the future are very different to mine but if you need an ear just pm me. Sending lots of love xxx

 

[RachA]

Just wanted to give you a

 

[sun]

Lots of hugs to you and your girl

 

[blaze777]

Hey hun,

I know how you feel, my girl has just been diagnosed with arthritis, and some of your questions for the future are echoed in my own head. It's horrible thinking that my daughter may not be able to do all the things I wanted, but it's still early days.
Feel free to pm me

Huge hugs xx

 

[vixxen]

Hi,i am also going through similar at the moment but am still waiting for a formal diagnosis.
My daughter also has disphagia so is tube fed and underSALT .And has global delays.
We are still waiting for physio and OT,MRI scan and chromsomal testing .
How old is your lo?

 

[vixxen]

Oh and i don't know if you have the same problem here,but my partner just don't understand!

 

[mummyosborne]

Thanks for all your replies,
Vixxen, me and my Lo's dad aren't together anymore meaning talking to him about it can be really hard and my current partner tries but he just doesn't get it xx

 

[SammieGrace]

I Know how scary all those what ifs can be!