Left ovarian vein thrombosis

[Angelkissiz]

Here is my story, I really do not know where to post this so sorry I just had my 2nd baby 6 weeks ago, and after his birth I was in severe pain, I went to the h ospital2 or 3 times, finally I was diagnosed with left ovarian vein thrombosis!I was hospitilized for days I am now on coumadin, and my husband and I plan on having more kids in the future, I was just curious if anyone has had this, and knows how it will affect chances of conceiving again!! Again I am sorry I just had no Idea where to post this:/ HAS any, one else out threre had this after delivery I was told it is quite rare, but it is pregnancy related!

 

[emzul]

Hi didnt want to read and run!! Sorry I dont have any knowledge about Ovarian Thrombosis? I had a Deep Vein Thrombosis in my calf, which broke off to form a Pulmonary Embolism (in my lung) and had to be in hospital for 2 weeks and on a 6-monthly course if Warfarin. Is coumadin also a blood thinner? How long have you been on these for?
Since finding out I was pregnant I have been put on daily injections of Tinzaparin... I dont know if this would be the same for you? Have they said that the clot has gone now?
I dont see why you wouldnt be able to have anymore, I think they would just keep a very close eye on you and put you on blood thinners from the start like they have with me? Sorry I couldnt be more helpful! xx

 

[Angelkissiz]

coumadin and warfarin are the exact same thing, and I should be coming off of it this week fortunetly I just hope I will be able to have more kids!!

 

[emzul]

ahh I see, yeah I reckon you will! They will probs class you as "at risk" like me, but apart from the injections and being under the care of a specialist I think mine will go as normally as poss.... they probs would have said something to you if they thought you shouldnt have anymore?

Oh thats good you get to come off the tablets soon, have you had to go for blood tests loads? I had to stay on warfarin for 6 months and have blood tests each week for the first 3 months, it was a right pain in the arse LOL

 

[Angelkissiz]

lol yeah I had tons of tests done, but I just got bad news I have to be on Warfarin for another 4 months, this totally stinks, I was looking forward to coming off of them

 

[petitpas]

I'm the same as emzul: dvt/pe. It is normal to stay anticoagulated for six months. It'll be over before you know it! Next time you are pregnant you should start blood thinning injections (clexane or similar) as soon as you get a bfp and continue until six weeks after giving birth.
My mum had a pregnancy-related dvt when her last child was born and hasn't had one since. Mine was due to being on the pill and I am therefore at high risk when pregnant (hormone related thrombosis).
If/when you go back on the pill it is probably not advisable to take the combined pill ever again. The mini pill (aka progesterone only pill) is considered safe, I believe, as is the coil.
When discussing your options you should definitely remind your doctor of your thrombosis.
Then again sod the pill - we're all for babies in here
Hope you recover well

 

[emzul]

I'm the same as emzul: dvt/pe. It is normal to stay anticoagulated for six months. It'll be over before you know it! Next time you are pregnant you should start blood thinning injections (clexane or similar) as soon as you get a bfp and continue until six weeks after giving birth.
My mum had a pregnancy-related dvt when her last child was born and hasn't had one since. Mine was due to being on the pill and I am therefore at high risk when pregnant (hormone related thrombosis).
If/when you go back on the pill it is probably not advisable to take the combined pill ever again. The mini pill (aka progesterone only pill) is considered safe, I believe, as is the coil.
When discussing your options you should definitely remind your doctor of your thrombosis.
Then again sod the pill - we're all for babies in here
Hope you recover well

Hi, did you have to have injections all the way through? I have been on Tinziparin since finding out I was pregnant, but have been told if my blood is thin enough then I may be coming off them? I had some bloods taken last week (one lot before my injection and another lot 2 hours after) but I dont find out until next Tuesday what the results say. The MW said I will either come off them completely, stay on the same1 injection dose, or they will double my dosage.... Just concerns me about labour...... loosing blood whilst on blood thinners?!! Thanks x

 

[petitpas]

Hi emzul, they do need to run regular anti-10a tests, whatever those are. Sometimes they need to adjust your dose based on the results, but I was told this is quite rare, especially as you've probably been on tinzaparin or similar before.

As you put on weight you may need to have your dose increased, too.
In general, you should be anticoagulated throughout your pregnancy and especially 6 weeks post partum. If anyone offers to take you off medication beforehand you should seriously question them and if necessary ask for a second opinion on the matter.

As for labour, you should ask your doc. I wasn't given specifics as I never got that far, but basically you get to take a break while you are in labour and there is a minimum waiting time between your last shot and an epidural (something like 12 hours if I remember correctly - something to discuss with your doc). The effect of the injections wears off quite quickly and in any case the dose you are on isn't too high. After your initial clotting episode you'll have been on twice or three times the dose plus starting up warfarin at the same time... As an example, I've been on tinzaparin for the past year. In that time I spent three months miscarrying my first pregnancy, regularly gushing blood, passing egg-sized clots, the lot and had three further losses, which were thankfully a little less dramatic. I had to undergo four operations and for each one I took my last shot 12-24 hours before surgery and my next shot 6-8 hours after surgery. Yes, I got a bit tired and looked very pale over the first dramatic three months, but my blood count remained within the normal range and I wasn't even anaemic!

I am sure you will be fine and they will take extra special care of you with this pregnancy

Angelkissiz, how are you doing at the moment? Are you still in any pain or anything? Are they planning on following you up with another scan or something?

 

[emzul]

Hi emzul, they do need to run regular anti-10a tests, whatever those are. Sometimes they need to adjust your dose based on the results, but I was told this is quite rare, especially as you've probably been on tinzaparin or similar before.

As you put on weight you may need to have your dose increased, too.
In general, you should be anticoagulated throughout your pregnancy and especially 6 weeks post partum. If anyone offers to take you off medication beforehand you should seriously question them and if necessary ask for a second opinion on the matter.

As for labour, you should ask your doc. I wasn't given specifics as I never got that far, but basically you get to take a break while you are in labour and there is a minimum waiting time between your last shot and an epidural (something like 12 hours if I remember correctly - something to discuss with your doc). The effect of the injections wears off quite quickly and in any case the dose you are on isn't too high. After your initial clotting episode you'll have been on twice or three times the dose plus starting up warfarin at the same time... As an example, I've been on tinzaparin for the past year. In that time I spent three months miscarrying my first pregnancy, regularly gushing blood, passing egg-sized clots, the lot and had three further losses, which were thankfully a little less dramatic. I had to undergo four operations and for each one I took my last shot 12-24 hours before surgery and my next shot 6-8 hours after surgery. Yes, I got a bit tired and looked very pale over the first dramatic three months, but my blood count remained within the normal range and I wasn't even anaemic!

I am sure you will be fine and they will take extra special care of you with this pregnancy

Angelkissiz, how are you doing at the moment? Are you still in any pain or anything? Are they planning on following you up with another scan or something?

Wow you have been through alot yeah I was on warfarin for 6 months after the first clot I had and they adjusted my dosage on a week-by-week basis. I have been told that I will either come off it or dose will change poss.... but this was the MW and she did say she wasnt an expert so I didnt take what she said as gospel.

I recall being anaemic at first and had to take Iron tablets for a few weeks, but was fine after them, I am hoping (bet all expectant Mothers say this LOL) to do it without an epidural and just G&A, but I guess it all depends on things progress and such.... but I am meeting my Consultant on Tuesday as I will be on a Consultant Led Unit rather than MW led, so I am sure she will explain it all, you sound like a bit of an expert yourself!!

Thanks for your input, its all well and good hearing it from Dr's but its nice to get the perspective of someone who has actually been through something similar x

 

[petitpas]

Emzul, there don't seem to be that many clot-survivors our age and even less embarking on motherhood after. I am interested to hear how your consultant appointment goes. If your consultant is anything near as nice as mine I am sure you will feel very cared for
Do you mind me asking, what did they say was the cause of your clots? Surgery, the pill, unknown?
Take care, hon xxx

 

[emzul]

Emzul, there don't seem to be that many clot-survivors our age and even less embarking on motherhood after. I am interested to hear how your consultant appointment goes. If your consultant is anything near as nice as mine I am sure you will feel very cared for
Do you mind me asking, what did they say was the cause of your clots? Surgery, the pill, unknown?
Take care, hon xxx

Yeah she is apparently a lovely lady the Consultant, so I am hoping she will be!! LOL

I had a stillbirth a few years back and it was after that I had the clot, I was quite lucky as I was at home and just had a pain in my left leg, and it was warm to touch but I just thought it was a strained muscle, but my Mums friend is a MW and she made me go to the Dr who rushed me to the hospital... they then did a chest scan and injected me with some weird radioactive stuff to highlight my lungs and found the Pulmonary Embolism.... and was told if I had left it more than a day or 2 longer I may have dropped dead!!!


Had to stay in hospital for 2 weeks and have the warfarin for 6 months after... I will let you know how I get on meeting her on Tuesday, fingers crossed she is nice! LOL

Wow really? Not many trying for kids? I didnt know that! We must be special?! LOL xx

 

[petitpas]

Oh emzul, I'm so sorry to hear about your stillbirth
A clot on top of all that to deal with is a very cruel twist of fate.
I'm glad your friend recognised the signs and you got taken care of immediately!

 

[emzul]

Oh emzul, I'm so sorry to hear about your stillbirth
A clot on top of all that to deal with is a very cruel twist of fate.
I'm glad your friend recognised the signs and you got taken care of immediately!

Thanks, was a bit of a tough time, but I am looking forward to this one and another reason I think they have put me under the care of a specialist

Yes it was lucky, I hate to make a fuss, so I wouldnt have dreamt of seeing a Dr about a little pain in my leg... good job she was persistent!! x

 

[emzul]

Went for the results of my bloods today, they were slightly lower than they wanted so they have upped my daily dosage of Tinziparin from 4,500 OD to 6,000 OD per day. Have to go back AGAIN in 2 weeks to have my bloods done, again to see if I will need to increase the doage..... and then 1 week after that will be my 20 week scan cannot wait to find out what team we are on!

Heard baby's heart beat for the first time today too.... was soo exciting! OH didnt come as we just assumed I would be getting blood results and that was it, so think he was a bit gutted he wasnt there

 

[petitpas]

Aw, congratulations on hearing the heart beat!
Sorry to hear you have to up your dose, although hopefully it will just be a question of using a different syringe so you don't have to stick yourself twice.
I spoke to my obgyn consultant today and we both agreed to go back to my 4,500 unit dose when I am next pregnant. For the last two pregnancies I had doubled up with injections every twelve hours. It obviously made no difference so I'm going back to 'normal' levels. It'll make my DVT nurse happy because then she can test me again with the twice daily shots she didn't have a reference to test against so just stopped altogether
Good luck with your 20-week scan. I'm going to go all out and guess BOY. Do you have a feeling?

 

[emzul]

She said my clotting levels were normal, but the Specialist wanted to up the dosage for 2 weeks, then test my bloods again to see what dose I will need to be on then.... I dont have to have 2 injections, just a higher dose one, but its awkward because I have a 10,000 dose injection, so have to remember not to inject the whole thing.... since I do the jabs first thing in the morning, I will probs be half asleep and forget lol Ahh bless you for having to inject twice, its bad enough doing it the once!

Oooh I am glad you said boy, I have a feeling its a boy, nothing to back it up lol just have a "feeling" OH originally said girl, but think he is backtracking now!

Thinking Cameron Joseph for a boy

Evie Mae for a girl... what do you think?! lol

 

[petitpas]

Oooh-er, naming your little boy after the Prime Minister! Very fancy

Of course I'm kidding, the names are lovely!

 

[emzul]

Oh NO I didnt think of that! LOL

Ahh well, his name is David though so thats not too bad ha ha
I liked Charlie too, but OH has decided its def Cameron now and apparently we are not allowed to change it again (we have changed it LOTS!)

He originally wanted Frank because he thinks it sounds "like a gangster name" (his surname is Costello, so he thinks he is from Italian mafia blood LOL, when infact my Mum did his family tree and he is infact from Ireland!!)

 

[petitpas]

Lol, Irish gangster Frank!!!
Keep me updated on the no-change status I will keep wondering whether you'll end up with something completely different

Big hugs to the original poster, by the way. So sorry we've been hijacking this thread

 

[emzul]

Yeah, he thinks Frankie Costello is a cool gangster name?! He is very sad LOL

I will keep you informed, it will no doubt change again in the next week ha ha

Shit yeah, we have kind of taken over! LOL whoops!!