Loss after IVF - questions?

K.N

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Questions/advice from those who have misscarried after fertility treatment of sorts.

So my baby/embryo was conceived after IVF; the first cycle was fresh transfer and was unsuccessful. But the second was a success, this was the transfer of one of my frozen embryos. My hcg level was at 1100 at 5 weeks - and i was told that was perfect and i should be really proud of that. However come 6 weeks, find out that levels are only 1800. In a healthy pregnancy it should have risen at least double once. I had period like cramps - over one day, but not since and had been spotting since week 5 too, so I knew in the back of my mind that it was inevitable. Anyway my fertility specialist called me at 5weeks5days after a blood test and pretty much said i was miss carrying, or had already miss carried. Of course I was devastated - especially given how well it was going, how good the embryo was - and considering I was on full luteal support etc too. It seems like it had no reason to not progress :(

I was on progesterone 2 pessaries 3x a day and oestrogen 3x a day. I asked my fertility specialist if since 'technically' there was a rise, I need to be continuing, and her response was "im supposed to say yes, but..." which tells me she is not optimistic, and basically the pregnancy is over. But that she can't "say" yes or no; because technically 700 is still a rise - just a very small one in comparison to how they rose at the start. Apparently they started in the 90th percentile for the first blood test, and in the second blood test they'd dropped down to the 5th percentile. I have had a decent amount of dark red bleeding with the odd black specks for about 3 days now, and on Friday night (2 nights ago) I passed quite a decent chunk of lining 'stuff' so I'm fairly certain it's definitely a misscarriage. But it has definitely not been a "gush" or "chunky" like I have read/heard.

Those who have been in a similar situation, was it the same? obviously 6 weeks is still very early and there isn't going to be a lot of placental tissue or anything. But still - it seems like there isn't enough. It's just thin blood and there's definitely not enough to soak a pad - in fact I've just been using a liner. Also - I decided last night to stop progesterone, because with the bleeding; even though it wasn't a lot still made it hard. And because I've stopped the progesterone - I've stopped the oestrogen. So I definitely would have though that woulda triggered a big "clear out" -- Is this normal? for it to take a few days? Is it normal to expect more than I'm getting, or is it just like a period still at this early?

Everyone keeps telling me to be optimistic, my friend said maybe it was twins and one just passed, but there could be another - even though only a single embryo was transferred. My mum keeps telling me she is feeling positive that because it was "technically" a rise - it still might all be ok. I keep thinking; well maybe I should just still take the progesterone and oestrogen (it's now been about 18 hours since my last lot) - is it too late, eugh. I had just gotten to the 'acceptance' stage of this - but now everyone keeps putting ideas in my head, and I know they're slim. But do I hold onto their hope - or just do what I've been doing an accept the way I've been told to accept this is going? What do you say to people in this situation? I know they're just trying to help - but they're making it so much harder. I'd just rather move on - than try dwell on it.

If anyone has advice, or help - or something. It'd be greatly appreciated right now. I really don't know what to do, or what to think - or even what to say to them.
 
So sorry to hear of what you're going through hun! I know this post was a few days ago so maybe you're situation is different now. If you are still in limbo...I would definitely start back on your progesterone and estrogen! If your numbers were rising at all, I would hold onto hope until given a definite answer that it is over. I hope you are doing okay!
 
I am so sorry that you are going through this! Keep in mind that the oestrogen/progesterone may have prevented an inevitable miscarriage so far ...I would stop, to possibly avoid a D&C and an infection down the line.
 

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