MYBezalel
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- May 7, 2013
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Hi,
My son has a congenital rubella syndrome. I was infected with the rubella virus back when I was 5weeks preggy with him. It was so sudden, and rubella measles at that time was going around our place and I thought that being infected with measles once guarantees that there won't be any 2nd infection.
His eyes, heart, toes, probably his hearing (we are still waiting for his schedule to check his hearing and it's by Aug) and size were affected.
He has congenital cataracts (to be removed after his PDA Ligation), multiple congenital heart anomalies, IUGR (born 1.3k weight), his toes look like they overlap each other but they don't stick with each other, he does not also respond to sounds/noises that much, he was anemic when he was born (but dr. said this is a sign of rubella infection) & he does not have a philtrum (a pedia said this is a sign of having a syndrome).
Having all this at once and going to different specialists could sometimes be frustrating for a 1st time mom. Not having any background of how to take care a baby, it made me have to learn a lot at once.
At first, I was really sad for causing him these. A lot of doctors have already asked me why I did not get the rubella vaccine before I got pregnant. Who would want to cause their babies so much harm? If only I could turn back time. But all we have is to move forward with our lives, and accepting reality.
I believed it happened for a reason. I may not know that very particular reason but, as a Catholic, I've always had Faith that everything will be ok, that whatever problems we're facing right now, it will pass. God let things happen for a reason. So far, the only reason I found is how much my son changed my life when he was born. How much I was in a roller coaster ride, that I did not mind having as long as I know he's with me.
In spite how people viewed what we're going through, how much they sigh in grief... I still feel blessed. Knowing after 9months of a challenging pregnancy, he's now with us, cutting our days short and the nights longer , opened our eyes and hearts to new things, tested our patience, brought the family into a tighter bond , brought a lot of people together to join his cause, helping us appreciate the tiniest details of every moment we have...
In spite of what we are going through, seeing him smile and laugh despite not being able to see is priceless. Very priceless to me. It proves that even after what he's been through, he still has a reason to be happy. So why can't I? Why can't we? Day by day he taught me so much about life.
I admit it is hard, the things we have to go through and have gone through. It was really tough, and I could just cry all day for the pressure it has that pushed me and my husband to the limits. In a place where congenital anomalies are not widely understood and known, It's hard when people stare at your son as if his anomalies aren't that obvious already.
But who would fight for him? Of course we do, not just as his parents. But because we love him so much for who and what he is. He has brought us so much joy, and we choose to see things in that perspective.
We have learned to see things at a more positive way.
How about you mommies? How were you able to cope up with your LO's special needs?
https://i23.photobucket.com/albums/b353/Kagami-Wings/cd79fe66-620a-48f4-a628-28533b4602fd_zps1736a583.jpg
My son has a congenital rubella syndrome. I was infected with the rubella virus back when I was 5weeks preggy with him. It was so sudden, and rubella measles at that time was going around our place and I thought that being infected with measles once guarantees that there won't be any 2nd infection.
His eyes, heart, toes, probably his hearing (we are still waiting for his schedule to check his hearing and it's by Aug) and size were affected.
He has congenital cataracts (to be removed after his PDA Ligation), multiple congenital heart anomalies, IUGR (born 1.3k weight), his toes look like they overlap each other but they don't stick with each other, he does not also respond to sounds/noises that much, he was anemic when he was born (but dr. said this is a sign of rubella infection) & he does not have a philtrum (a pedia said this is a sign of having a syndrome).
Having all this at once and going to different specialists could sometimes be frustrating for a 1st time mom. Not having any background of how to take care a baby, it made me have to learn a lot at once.
At first, I was really sad for causing him these. A lot of doctors have already asked me why I did not get the rubella vaccine before I got pregnant. Who would want to cause their babies so much harm? If only I could turn back time. But all we have is to move forward with our lives, and accepting reality.
I believed it happened for a reason. I may not know that very particular reason but, as a Catholic, I've always had Faith that everything will be ok, that whatever problems we're facing right now, it will pass. God let things happen for a reason. So far, the only reason I found is how much my son changed my life when he was born. How much I was in a roller coaster ride, that I did not mind having as long as I know he's with me.
In spite how people viewed what we're going through, how much they sigh in grief... I still feel blessed. Knowing after 9months of a challenging pregnancy, he's now with us, cutting our days short and the nights longer , opened our eyes and hearts to new things, tested our patience, brought the family into a tighter bond , brought a lot of people together to join his cause, helping us appreciate the tiniest details of every moment we have...
In spite of what we are going through, seeing him smile and laugh despite not being able to see is priceless. Very priceless to me. It proves that even after what he's been through, he still has a reason to be happy. So why can't I? Why can't we? Day by day he taught me so much about life.
I admit it is hard, the things we have to go through and have gone through. It was really tough, and I could just cry all day for the pressure it has that pushed me and my husband to the limits. In a place where congenital anomalies are not widely understood and known, It's hard when people stare at your son as if his anomalies aren't that obvious already.
But who would fight for him? Of course we do, not just as his parents. But because we love him so much for who and what he is. He has brought us so much joy, and we choose to see things in that perspective.
We have learned to see things at a more positive way.
How about you mommies? How were you able to cope up with your LO's special needs?
https://i23.photobucket.com/albums/b353/Kagami-Wings/cd79fe66-620a-48f4-a628-28533b4602fd_zps1736a583.jpg