angsea
Gloria's Mommy
- Joined
- Jul 8, 2010
- Messages
- 3
- Reaction score
- 0
Hello everyone,
I stumbled across this site doing a random google search and thought I'd take the time register and introduce myself as I am desperately seeking support during this difficult time.
My name is Angel. My husband, Michael and I have been married for almost twelve years. We struggled for over a decade with infertility due to PCOS and stage IV Endometriosis. After over a year of fertility treatments and eventual hysteroscopy and laprascopy, we were finally able to conceive.
I had a beautiful pregnancy until 24 weeks gestation when I went into labor. I received steroid injections to mature my daughter's lungs and was on bed rest and magnesium sulfate for several days. I made it just beyond 25 weeks but they eventually had to stop the mag sulfate as my blood levels were becoming dangerously toxic.
Shortly after stopping the mag sulfate I went into active labor. My daughter was born at 4:49 AM weighing just one pound and eleven ounces. She was eleven inches long.
That was on April 15th. It has been almost three months now and while I thought my journey would be almost over by now, that is not the case and it is very hard on us.
Gloria was born fairly healthy, all things considered, but problems soon arose. The first major hurdle was a massive PDA that coupled with her CDL eventually led to congestive heart failure. She also had an unknown mass in her liver.
She received PDA ligation surgery on May 20th, and the very next day, she was unintentionally given a nearly fatal overdose of dopamine. The nurse who hung it thought it was TPN and gave her 250 times the maximum recommended dose for over 4.5 hours.
After that, Gloria became extremely ill and had to go on the oscillator for the first time in her life. She HAD been on a regular vent since moments after her birth so this step back was very upsetting to us.
She went from oscillator to ventilator several times and eventually started to improve. They weaned her off TPN/Lipids and started full feeds and eventually put her on C-Pap. She was on C-Pap for four days, but she wasn't blowing off enough Co2 so they put her back on the ventilator.
About two weeks ago she really started improving and they were talking about taking her off the vent, but then her ROP rapidly moved from Stage 0 to Stage 3. She had laser surgery on Tuesday and did not handle it very well.
They brought her back into the room bagging her because the ventilator was not giving her enough support. Every time they tried to get her back on it, her o2 saturation levels and heart rate would drop dramatically and they would have to continue with bagging her. Eventually, they managed to get her settings high enough to give her support.
She's on 50% oyxgen, 20% pressure with a peep of 7. These settings are very upsetting to us because they are so high and she is now almost 36 weeks gestation.
It feels like she is NEVER going to get off that damn ventilator! I hate it because I cannot hold her properly, cannot nurse her and it feels as though she is never going to come home.
It's very hard right now.
I know all of you understand. Thanks in advance for your prayers and support for Gloria and for my husband and I.
- Angel
I stumbled across this site doing a random google search and thought I'd take the time register and introduce myself as I am desperately seeking support during this difficult time.
My name is Angel. My husband, Michael and I have been married for almost twelve years. We struggled for over a decade with infertility due to PCOS and stage IV Endometriosis. After over a year of fertility treatments and eventual hysteroscopy and laprascopy, we were finally able to conceive.
I had a beautiful pregnancy until 24 weeks gestation when I went into labor. I received steroid injections to mature my daughter's lungs and was on bed rest and magnesium sulfate for several days. I made it just beyond 25 weeks but they eventually had to stop the mag sulfate as my blood levels were becoming dangerously toxic.
Shortly after stopping the mag sulfate I went into active labor. My daughter was born at 4:49 AM weighing just one pound and eleven ounces. She was eleven inches long.
That was on April 15th. It has been almost three months now and while I thought my journey would be almost over by now, that is not the case and it is very hard on us.
Gloria was born fairly healthy, all things considered, but problems soon arose. The first major hurdle was a massive PDA that coupled with her CDL eventually led to congestive heart failure. She also had an unknown mass in her liver.
She received PDA ligation surgery on May 20th, and the very next day, she was unintentionally given a nearly fatal overdose of dopamine. The nurse who hung it thought it was TPN and gave her 250 times the maximum recommended dose for over 4.5 hours.
After that, Gloria became extremely ill and had to go on the oscillator for the first time in her life. She HAD been on a regular vent since moments after her birth so this step back was very upsetting to us.
She went from oscillator to ventilator several times and eventually started to improve. They weaned her off TPN/Lipids and started full feeds and eventually put her on C-Pap. She was on C-Pap for four days, but she wasn't blowing off enough Co2 so they put her back on the ventilator.
About two weeks ago she really started improving and they were talking about taking her off the vent, but then her ROP rapidly moved from Stage 0 to Stage 3. She had laser surgery on Tuesday and did not handle it very well.
They brought her back into the room bagging her because the ventilator was not giving her enough support. Every time they tried to get her back on it, her o2 saturation levels and heart rate would drop dramatically and they would have to continue with bagging her. Eventually, they managed to get her settings high enough to give her support.
She's on 50% oyxgen, 20% pressure with a peep of 7. These settings are very upsetting to us because they are so high and she is now almost 36 weeks gestation.
It feels like she is NEVER going to get off that damn ventilator! I hate it because I cannot hold her properly, cannot nurse her and it feels as though she is never going to come home.
It's very hard right now.
I know all of you understand. Thanks in advance for your prayers and support for Gloria and for my husband and I.
- Angel
I hope she has been disaplined for that, that is truely awful.
And now look at us! 
