Please wear pink Friday November 30th

[Darlin65]

Newborn Heart Defect Screening Awareness Day is Friday November 30th. Please wear your pink!

This is something that hits close to home for me. My son Logan was breech, born via c-section on 7/9/12. We thought he was a happy and healthy little boy with no complications. After his birth we discovered he had a heart murmur. None of this was detected before birth. When we were released from the maternity ward we were sent straight to Children's Hospital cardiology unit where they did an ultrasound of our little man's heart.

We learned that he was missing his left pulmonary artery that connects his lung to his heart, he had 2 holes in his heart, and pulmonary valve stenosis. We have been very blessed that his right lung has compensated and so has his right pulmonary artery. He has good blood pressure in his heart and breathes just fine on his own. We did have a close call at around 6weeks where he turned blue and had to be rushed to the ER. His oxygen levels were in the low 60's and it landed us a stay overnight at the hospital.

I know not all families are as lucky as we have been. I recommend getting heart screening for your LO or for you to pass it on to someone you know. Not all hospitals do simple pulse ox screening. Something that I wish I would have known more about this when I was pregnant.

 

[we can't wait]

^ Love this!

My family has a history of heart defects. My sister died in infancy from a heart defect. I had a geneticist and perinatologist appointment when I was pregnant with LO. Her scan came back perfect! I still get a little anxious at her pediatrician visits when he listens to her heart... I'm always scared he'll hear something abnormal.

 

[canadadiva]

Newborn Heart Defect Screening Awareness Day is Friday November 30th. Please wear your pink!

This is something that hits close to home for me. My son Logan was breech, born via c-section on 7/9/12. We thought he was a happy and healthy little boy with no complications. After his birth we discovered he had a heart murmur. None of this was detected before birth. When we were released from the maternity ward we were sent straight to Children's Hospital cardiology unit where they did an ultrasound of our little man's heart.

We learned that he was missing his left pulmonary artery that connects his lung to his heart, he had 2 holes in his heart, and pulmonary valve stenosis. We have been very blessed that his right lung has compensated and so has his right pulmonary artery. He has good blood pressure in his heart and breathes just fine on his own. We did have a close call at around 6weeks where he turned blue and had to be rushed to the ER. His oxygen levels were in the low 60's and it landed us a stay overnight at the hospital.

I know not all families are as lucky as we have been. I recommend getting heart screening for your LO or for you to pass it on to someone you know. Not all hospitals do simple pulse ox screening. Something that I wish I would have known more about this when I was pregnant.

Hi there,
I hope your little one is doing well. My baby was born with isolated pulmonary valve stenosis. We did not know until right after she was born. She had a loud murmur which prompted to docs to do an echo. She spent some time in the NICU and her case is mild, thank goodness. So now we go for echos to see how the valve grows with her.