Poland Syndrome

[bananabump]

My 3 year old son was diagnosed with Poland Syndrome yesterday and I was wondering if there is anyone else on here? X

 

[Reid]

Hi didn't want to read and run may I ask what Poland syndrome is?
Xx

 

[bananabump]

Thank you. Its a disorder that you're born with which means you have missing or abnormal chest muscles on one side and also have abnormalities of the hand on the same side of the body. It affects 1 in 100'000 but luckily doesn't have any other symptoms associated with it. My son was born with only his thumb fully formed on his right hand but his chest issues have only just been discovered as they're quite mild. He'll be having a CT scan to have a look in more detail but they don't think he'll need surgery to reconstruct them xx

 

[Reid]

Thank you for explaining it to me.
I hope there's someone here that has some experience that you can chat with xx

 

[sethsmummy]

hey hun i have no experience either but didnt want to read and run. i hope you can find some support xx