severe ventricumalegy

ilovemyharry

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hello,
i thought i would just post my story on here as when i tried researching this on the net i couldnt fine anything, except people with mild or moderate vm which is less than 15mm!

Well basically it all started when we went for our 20 weeks scan! we were so excited as we decided to find out the sex! we didnt with our first! for some reason i was really nervous i thought it was just down to being excited. we went in for the scan and she measured like normal, then asked if we could go for a walk and jump around as she couldnt get to the heart aswell as she wanted, so we went for a walk discussing names as she had just told us it was a boy! we were over the moon!
when we returned to the room, she was on the phone (i thought it was wierd but didnt think anything of it) so the other lady got me back on the bed! the sonographer came back and did the checks she needed and the cleaned me up!
i was literally just about to get up and go when she turned and said..." well i have done all the checks i need and im affraid iv found extra fluid on the brain" i just looked at my partner in shock, did not expect anything to be wrong! she then when on too say..." i have rang the hospital and the fetal medicine unit and they will contact u today with an appointment for further tests"
we couldnt believe it... it didnt sink it straight away and then with that she said i have to wait untill they ring! then it sunk it...it was serious! i couldnt stop crying at this point! they sent us home and said there ring us before 1.

we got home and cried and googled it but couldnt find anything! our baby had large ventricles of 17mm which was considered as severe! then the fetal medicine unit rang and said im booked in tomoro.

the next day we left at 8am to travel to the hospital for what we knew would be the worst day of our lives! we got there and a consultant scanned me again..in excellent detail! he then took us to a room and went threw what he had found!
the ventricles were 17mm which was severe, but he couldnt find any other problems! everything else was completely normal! which wasnt gd in our case, as no other swelling in the brain with a normal size head ment that our babys brain wasnt developing! they said they could do more tests to find out why but nothing they could do would change the outcome....our baby would die at birth or not have a quality of life so would need help with everything (brain dead to b blunt)

we were devastated, how could this happen when we had such a perfect lil boy already? they then went on to discuss termination! :( i couldnt believe it had come to this! they advised us still to have all the tests as would help to find out why this has happened for future pregnancies! i was in shock!
so we both had our bloods taken and i had an amnio! we were then sent home and they said our normal hospital would ring us!

it then hit me... this baby wasnt going to survive and we were gunna have to TFMR. i couldnt stop crying! it sucked! the hospital then rang and told us to come in the next day to discuss what was going to happen! they just went threw what we knew but made me feel slightly better as i really didnt want to give birth to my baby sleeping! but there was no other choice! they told us to come back on sunday for the tablet that would stop the pregnancy hormones and then i would b induced on the tues!

who thought that when i went for my scan a week later i would b giving birth to him sleeping at that would b my pregnancy over!

tuesday came and i was silent...no crying no nothing...i just led on the bed and breathed heavily as the contractions got worse and worse!
my perfect lil boy was born at 6.50pm that day, we got to spend a few minutes with him before they took him to put him in his moses basket in a fridge! he wasnt as small as i imagined but he was perfect, wouldnt of thought anything was wrong! he weighed 405g and was 26cm long!

i will never ever forget him! its still early days for our recovery but im hoping soon it will get easier to deal with!

i hope this helps even 1 person as i just wanted to know as much as possible but couldnt find anything!
were still waiting for all the test results to tell us why this happened to our baby, not that they defo will!

thanks for reading xxxx
 
Thanks for sharing your story, and I am so sorry for the loss of your son.
 
So very sorry for the loss of your baby boy xxx
 

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