Shock to the system...desperately need a support network

[sparkle_smile]

This is my first month of TTC. I went to the doctors because my periods are so irregular and i can go for 7-8 weeks without a period. It looks like I have PCOS.

I am so so heartbroken. Why does it always happen to us who want it the most??

I still havent stopped crying all day and I just feel so gutted. If anyone can give me any information, success stories or positivity I would really appreciate it.

Ive got to have blood taken next week and then possibly an ultrasound. Then i don't know what happens next :-S:

 

[ClaireLR]

Hunny dont worry so much!! PCOS doesn't have to mean the end of the world!! I have PCOS to and I have all the horrible symptoms, acne, weight gain, hirsuitism, horrible mood swings. My periods have always been erratic!! However I am now on month 2 of Clomid and I Ovd on Sunday which was day 14 of my cycle, a revelation to me! I had been oving anything from day 16 to day 28 or even later!

What I am trying to say is it's not the end of the world and certainly doesn't mean you wont have a baby at some point! Lots of people on here with PCOS have conceived either with Clomid or other meds.

The first thing I would do is ask your doctor for a CD21 test to check you are ovulating and if not ask if you can start on Clomid. Start to watch what your eating, refined carbs and sugar can make PCOS worse (have a look at www.verity-pcos.org.uk for more info on this and other things). The scan I had to confirm I have PCOS was a TV scan, basically they insert a probe into your vagina to view your ovaries - this doesn't hurt at all, I promise!

If you want to chat about PCOS or want to know anything (I don't claim to know everything though!) just ask away

 

[sparkle_smile]

Hunny dont worry so much!! PCOS doesn't have to mean the end of the world!! I have PCOS to and I have all the horrible symptoms, acne, weight gain, hirsuitism, horrible mood swings. My periods have always been erratic!! However I am now on month 2 of Clomid and I Ovd on Sunday which was day 14 of my cycle, a revelation to me! I had been oving anything from day 16 to day 28 or even later!

What I am trying to say is it's not the end of the world and certainly doesn't mean you wont have a baby at some point! Lots of people on here with PCOS have conceived either with Clomid or other meds.

The first thing I would do is ask your doctor for a CD21 test to check you are ovulating and if not ask if you can start on Clomid. Start to watch what your eating, refined carbs and sugar can make PCOS worse (have a look at www.verity-pcos.org.uk for more info on this and other things). The scan I had to confirm I have PCOS was a TV scan, basically they insert a probe into your vagina to view your ovaries - this doesn't hurt at all, I promise!

If you want to chat about PCOS or want to know anything (I don't claim to know everything though!) just ask away

Wow, thanks for such a lovely answer. I really appreciate it that people are out there who understand. Does PCOS mean that you DON'T ovulate, or are there variations?

It's reassuring that people can still get pregnant with this. Becoming a Mummy is all I want.

 

[ClaireLR]

Some people ovualte, some dont. I was borderline when I had my tests done meaning that they couldn't tell me either way. Same with symptoms, some people have PCO with no symptoms, others (with PCOS) have all or some symptoms. I've read somewhere that you can have no cysts but still have PCOS (i.e. the symptoms) not sure how true that is!

I'm on Clomid now and have to go back next month on CD21 if no BFP to have more bloods taken, then they'll either up the dosage or add some other meds (such as metformin) to the Clomid. There's lots that can be done, meds, alternative treatments (herbs/aromatherapy/reflexology etc) some kinds of surgery to check everythings working as it should, ICSI, IVF. Don't feel that this is the end of the world, the way I see it is we'll appreciate our babies so much more when we finally get them because of what we've had to go through to get there!!

The website I told you about is a great source of info, also if you search on Amazon for books by Colette Harris you'll get some great info from those to

HTH!

 

[Smurfette]

As the others have said it really isn't the end of the world. I have borderline PCOS and am now on the waiting list for IUI.

There are masses of celebs who have PCOS and have had successful pregnancies. Victoria Beckham, Jools Oliver and Kym Marsh all aparently have PCOS and Louise Rednapp has endometriosis.

Verity is a really good site for sufferers of PCOS and has a pretty good forum.

I cried for ages when I found out but it really doesn't mean that you won't ever concieve.



xxxxxxxxxxxxxxxxxxxxx

 

[Ash_P]

I also have PCOS. I was diagnosed just about 18 months ago. Unfortunately I kept collapsing with sharp shooting pains and thats when they discovered the problem. My cycles were awful anything from 70/80 odd days. CD21 tests twice came back saying no ovulation, and when I asked my consultant about going on Clomid I was told to give it another 6 months of trying. And also to get my BMI down by 4 or 5%

After Christmas I had 3 sessions of reflexology to help me de-stress from xmas madness and fortunately my last two cycles have been 39 and 37 days. (which is fab!) also according to my fertility montior I have ovulated (which is a first) so far no But an improvment in cycle is great and positive.

There loads u can find out online and the girls are all great on here.
Hopfully u`ll get all the answes u need and fingers crossed u get ur too

Good luck x

 

[sparkle_smile]

Wow thanks girls. I had no idea about those celebrities who have it.

I just heard the news today and pretty much figured that was it for me. I'm very lucky that I have such a supportive partner, I don't know where I would be without him. And it makes all the different being able to come on here and talk to people who are going through the same thing. So to all of you. I love you all loads.

Does anyone have any tips for things I can start doing to increase my chances of getting pregnant. I appreciate that it will probably take quite some time and I would much rather that than nothing at all.

xxx

 

[ClaireLR]

Wow thanks girls. I had no idea about those celebrities who have it.

I just heard the news today and pretty much figured that was it for me. I'm very lucky that I have such a supportive partner, I don't know where I would be without him. And it makes all the different being able to come on here and talk to people who are going through the same thing. So to all of you. I love you all loads.

Does anyone have any tips for things I can start doing to increase my chances of getting pregnant. I appreciate that it will probably take quite some time and I would much rather that than nothing at all.

xxx

Oh well you've asked now! Diet plays a huge part in PCOS so start looking into starting a low GI/GL diet (I believe Tescodiets are good? Although never tried them myself). You don't mention if your overweight or not, if so then a reduction in body weight, even just 5%, can make a huge difference - this is due to the more fat there is in your body the more your hormones run havoc. Pre-seed is good, lots of women get their BFP after using this (try ebay), its basically a lubricant that helps the spermies to swim Don't use any other type of lube as this can damage/destroy the spermies. There are herbal things you can try to regulate your cycle - black cohosh and agnus castus are meant to be good - I haven't tried either so wait until someone arrives with more knowledge on this one. I also take EPO as this helps with cervical mucus during ov time (those spermies have got to have something to swim through!) - only take up until your ovulate though.

There are also things that your OH can do, the usual stop smoking, cutting down on alcohol, eating healthily, no hot baths, loose cotton underwear etc. There are supplements men can get to - I've just started a thread on this actually as I don't know to much about this myself!

Do you feel any better now? It is a shock when your diagnosed, I was only about 21, I didn't want kids at the time so it didn't ever bother me but now that we are trying (I'm almost 27 now) it's become a bit more of an issue for me too.

 

[ClaireLR]

Oooh just realised how near to me you live! Whereabout in Birmingham? I live in Willenhall, not to far from Wolverhampton x x x

 

[MillieMoo]

Hi sparkle, I know you have had loads of replys already but just thought i'd share my story with you. I got diagnosed with PCOS only 2 weeks ago. My cycles were quite long and had been quite irregular. The doctor has put me on Metformin which is suppoosed to regulate my cycles and it would appear that I may have ovulated already which is great. I haven't actually cried since i found out as I don't feel (at the moment) that its the end of the world. As the other's have said there are loads of famous people that suffer with the same thing and they all have children. The other thing to bear in mind that they say PCOS is genetic. After being diagnosed with this I have had a long conversation with my mum and it appears that she had all the symptoms of PCOS and went on to have 3 children naturally. My aunty also had problems with her hormones and had to have cysts on her ovary's removed and she now has 2 boys. It would appear that it runs in that side of the family but it really gives me hope knowing that they have managed. Have you spoken to family members as this may help.

Hope you get your BFP soon! x

 

[mazza2003]

Hi I dont have PCOS but I am trying agnus castus this month- it looks useful for pcos. Check out this site:



https://www.marilynglenville.com/general/polycystic.htm

 

[sparkle_smile]

Wow thanks girls. I had no idea about those celebrities who have it.

I just heard the news today and pretty much figured that was it for me. I'm very lucky that I have such a supportive partner, I don't know where I would be without him. And it makes all the different being able to come on here and talk to people who are going through the same thing. So to all of you. I love you all loads.

Does anyone have any tips for things I can start doing to increase my chances of getting pregnant. I appreciate that it will probably take quite some time and I would much rather that than nothing at all.

xxx

Oh well you've asked now! Diet plays a huge part in PCOS so start looking into starting a low GI/GL diet (I believe Tescodiets are good? Although never tried them myself). You don't mention if your overweight or not, if so then a reduction in body weight, even just 5%, can make a huge difference - this is due to the more fat there is in your body the more your hormones run havoc. Pre-seed is good, lots of women get their BFP after using this (try ebay), its basically a lubricant that helps the spermies to swim Don't use any other type of lube as this can damage/destroy the spermies. There are herbal things you can try to regulate your cycle - black cohosh and agnus castus are meant to be good - I haven't tried either so wait until someone arrives with more knowledge on this one. I also take EPO as this helps with cervical mucus during ov time (those spermies have got to have something to swim through!) - only take up until your ovulate though.

There are also things that your OH can do, the usual stop smoking, cutting down on alcohol, eating healthily, no hot baths, loose cotton underwear etc. There are supplements men can get to - I've just started a thread on this actually as I don't know to much about this myself!

Do you feel any better now? It is a shock when your diagnosed, I was only about 21, I didn't want kids at the time so it didn't ever bother me but now that we are trying (I'm almost 27 now) it's become a bit more of an issue for me too.

Yeah, I live in Solihull, which is about 10-15 mins just outside Bham, if you know it.

I'd really like to talk to you more. I really appreciate all the information you've given me, and thanks to you, i feel a lot better now.

I know it isn't impossible, it will just be a lot harder, but it will be all the more worth it when i get that

I could do with losing a couple of stone, my doctor said I was a little bit over, and I have been struggling with my weight for some time.

Do you have facebook or anything? I'd like it if we could talk

xxx

 

[sparkle_smile]

Thanks for your message MillieMoo.

As far as I'm aware, PCOS isn;t in my family, but it's wonderful to know your family got through it and were able to conceive naturally. That gives me hope! Keep me informed as to how you're doing. I'd love to make some friends on here who are in the same boat I am

 

[Pixie71]

This is my first month of TTC. I went to the doctors because my periods are so irregular and i can go for 7-8 weeks without a period. It looks like I have PCOS.

I am so so heartbroken. Why does it always happen to us who want it the most??

I still havent stopped crying all day and I just feel so gutted. If anyone can give me any information, success stories or positivity I would really appreciate it.

Ive got to have blood taken next week and then possibly an ultrasound. Then i don't know what happens next :-S:

Hi there,
Please dont despair! A girl I work with had blocked fallopian tubes, she had IVF and it worked, she then went on to conceive naturally!
I have a 12 year old from a previous relationship. Have had two miscarriages over the last 2.5 years. Just been through IVF and take the POAS test this saturday so with a bit of luck! Please do not think that it cant happen for you, be positive. I had reflexology done before the IVF, I only had 5 follicles (am 37!) so there is still lots of hope for you.
Let me know how you get on!

 

[DiddyDons]

if you need any help PM me. I ahve PCOS and once went 2 years without oving x x x

 

[peartree]

Hi Sparkle_smile,

I don't have PCOS but just wanted to stop by and give you some .

Just wanted to tell you, I have a friend with PCOS, so bad that sometimes she ends up in hospital cos of the bleeding and iron deficiency. She's now 16 weeks pregnant.

 

[sparkle_smile]

Hi Sparkle_smile,

I don't have PCOS but just wanted to stop by and give you some .

Just wanted to tell you, I have a friend with PCOS, so bad that sometimes she ends up in hospital cos of the bleeding and iron deficiency. She's now 16 weeks pregnant.

Thankyou for that! That must be bad, i never have anything like that!

I hope your friend stays healthy and happy. Thanks foe your reply!

 

[Jan34]

Hey Sparkle, I don't have PCOS but just wanted to let you know that I have a couple of friends who were diagnosed with PCOS in their twenties and worried for a long time about if it would affect their fertility. One got pregnant by accident, another within the first few months of trying. So it's not difficult for everyone....

Good luck.

 

[sparkle_smile]

Hey Sparkle, I don't have PCOS but just wanted to let you know that I have a couple of friends who were diagnosed with PCOS in their twenties and worried for a long time about if it would affect their fertility. One got pregnant by accident, another within the first few months of trying. So it's not difficult for everyone....

Good luck.

Thankyou Jan I really appreciate that. Success stories give me hope!

xxx

 

[loulaar]

hi i just wanted to say hi and let you know that i was diagnosed last week and i also have PCOS and enemetreosis (i will learn how to spell that lol) and i have a polup in my womb, i also have a 3 year boy, who only took about 4 months of trying, thinking back i took agnus cactus too so that might be worth a shot, maybe that is how i fell pregnant, as i have had all my symptoms for many years.
feel free to pm me , it is all new to me too so maybe we could travel the journey together?
if i dont reply , my internet is down as i am moving house tomorow lol, good luck x