Spinal Bifida

[Emmea12uk]

Hey ladies,

This is my first ever post. I am 26 weeks pregnant and found out my baby (boy - Tommy) will be born with spinal bifida and possibly hydrocefeles at my 20 week anomoly scan.

I have decided that because Tommy could be born with very minor difficulties, to go ahead with the pregnancy. He is after all still my baby and I am so madly in love with him already!

That period was a very difficult time for me, espcially as my partner works overseas and wont be home until I am 36 weeks. I sometimes feel very alone as no-one else seems to discuss problems they are expecting with their babies and I know there must be hundreds of woman out there like me who just need someone to talk to.

Em

 

[Serene123]

They told my aunt her baby was going to have spina bifida, they even refered her to a specialist.. My cousin was born perfectly healthy and still is now (aged 19.)

 

[Emmea12uk]

a few people have said this to me...I have my fingers crossed - it would be a miracle, but I am prepared for whatever may be

 

[Serene123]

Congratulations on your baby and welcome to the site! I'm sure your little one will be amazing.

 

[anita665]

I really hope your babies problems will only be minor. How many weeks are you now?

 

[anita665]

Never mind - I just read 26 weeks.

How are you feeling now? At least there is plenty of people to talk to on here.

 

[darkheaven]

my parents got told i had that before i was born because i had a hole up my spine but here i am now i may be a mad cow but def dont have it i have a daughter with special needs shes 12 with the mental age of 4 shes a diamond and never regret having her if you ever need a chat im here xxxxxxxx

 

[Emmea12uk]

I am feeling fine now. It was an incredible shock, especially as I had opted out of all the tests to find out if it had downs etc. I felt that I would never be able to terminate a baby even if there was something wrong - so there was no point knowing. But I had to seriously consider it. In the end, as soon as the surgeon said "he may be fine", I made my mind up.

I think me and my partner are prepared for the worst, but know that miracles happen. The anomoly with the spine is right at the bottom, and that is the best place for it in terms of minimal damage.

Now I am thankful I am pregnant - as that is a little miracle in itself and terribly excited about meeting him! More than a little nervous about the prospect of him being whisked away into surgery as soon as he is born - and a little scared too. But what will be will be - at least I have done my best for him and I will love him no matter what.

 

[loubieloulou]

hope everything goes well for you all my friend has s/b and has a better social life than me!! x

 

[ElliesMum]

Just wanted to say what a wonderful woman you are.

I know everyone has their own opinion on these things but i'm with you. I refused any tests cos i knew i would have this baby no matter what. When i had my 20 week scan i did ask if they could see anything abnormal (i have higher risk cos i'll be 40 when baby is born) but the woman said it was impossible to tell (which i know isnt true).

Love to you and baby

 

[Ann-Marie]

Tommy is a very lucky little boy

 

[Emmea12uk]

Thanks and well done you! I hope everything is fine for you.

Even if there is nothing wrong right now, anything can happen between now and birth, and even if he is fine at birth, anything can happen after - you wouldnt give it away if it caught menningitis or something similar - so I couldnt not take away the chance it deserves before it is born. You just never know how bad/not too bad it will be!

Each to their own tho, I know some woman just couldnt cope.