Suspected partial molar (long story)

dopechick

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Good Day,

When I was 6 weeks I had my first ultrasound and the sonographer found a mass inside the gestational sac. First they told me the baby died but then she put sound onto the sac and heard a heartbeat. She thought it was a fibroid and I would follow up with my doctor. My doc sent me to have another ultrasound a week later and then he said it's a partial molar. Doc said the baby isn't viable. I was so so sad. I had blood drawn at about 8 wks and my HCG levels were 224k. He referred me to have another sonogram at the hospital with a specialist in a week. In the mean time I started doing my research. I had the sonogram done at the hospital but never saw the specialist. I guess he was just going to give his opinion to my Doc. I had my follow up with my doc but he just seemed like he had no hope. He made me feel like I was crazy to want to have further testing to see if my baby really wasn't viable. He had no bed side manner at all. When I asked more questions about the partial molar he became annoyed like I was digging too deep but it's my body, my baby. I have every right to do so. Mean while he never read the results, just wrote my baby off.

So he referred me to a genetics counselor since I had a strong desire to keep my baby. I've read many stories where babies survived and some stories where the baby died before the 2nd trimester. But I believe in God, and I trust in him whole heartedly. I met with the counselor and she told me the report says it could be a partial molar or a thick blood clot. So I asked is there anyway that I can meet with this specialist. She was very helpful and set up the appt for the following week but he wanted me to have a ultrasound before the appt.

I met with the specialist and he was very pleasant, answered all my questions and he told me the baby seems to be a viable baby but the high HCG level and and mass concerns him. He is the head of obstetrics/gyn and maternal and fetal medicine in the hospital and he has never seen something like this. I knew God had put me in good hands. I had also given blood and my HCG levels dropped a tad to 184k (which he said he expected) The specialist told me I can have a CVS done when I am 12 weeks. He explained everything and I agreed to it. I had it done Aug 16th. I was so nervous because I watched the procedure on YouTube which is a horrible idea. It hurt a little but it was fairly quick.

The genetics counselor called me the following Monday with preliminary results. With a partial molar the concern is the baby is a triploidy (69 chromosomes) but the baby in fact shows normal 46 chromosomes and genetic abnormalities (as of yet anyway). She said the full report comes back in another 2 weeks. I'm still waiting....

God is good, I prayed and prayed that he would work a miracle on my situation. I just have to keep waiting which is horrible. But I faith that everything will be alright :D

I am now 14 weeks, during my last ultrasound (during cvs) he says the baby was measuring a week ahead and is developing as a normal fetus should. The NT scan was also normal. I felt the first kicks yesterday.

I wanted to share my story, just continue to have hope. Even if your doctor seems to be giving up on you... you don't give up on you.

xoxo
 
Partial molar refers to the placenta.
All partial molar pregnancies are triploidy. But not all triploidy babies have a partial molar placenta. I hope that makes sense.

We lost our daughter to triploidy in March this year. It's typical for triploidy babies to measure very small compared to dates so your baby sounds great already - and obviously because the first part of the cvs has came back 46 chromosomes ;)
 

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