The steroid junkies' perfectly unscientific medical trial

[petitpas]

Ah, in that case maybe it is more proof that your immune system was working on something? Please let me know when you find out as I am curious now

I have scans every two weeks with an extra one I need to book with Mr S before Christmas. My consultant has promised to keep me reassured until I feel ducky move around regularly, which is very kind of her.
Then at some point I will start to have regular growth scans. I think that is because of my clotting factor more than the miscarriage history. So all in all, this will be a well documented baby!

 

[filipenko32]

You will have to show his or her girlfriend or boyfriend ALL the family photographs! It will be wonderful when you feel ducky moving around all the time anyway. I will let you know about that result.

 

[Hope39]

Pip, i have a question, not sure if you can help thou. I would aske Prof Q but it has taken me a week to get my results from her, i think she is extremely busy at the min and as i didn't have an nk cell test in the end i am probably not a priority to her and as it stands i am not a patient of hers

prof Q did some blood tests, i thought she was testing me for Lieden Factor V and lupus anticoagulant. She has sent me an email to say that my activated protein c resistance was low and that i need a blood test to see if i have Factor V L.

I know with blood clotting disorders you have to have 2 tests to confirm that you have it. Do you think i have tested positive for Factor V L and now need another blood test to confirm it?

I have tested positive for hashimoto's too, knowing my luck this autoimmune disease is causing me to have higher nk cells and i am going to end up going back to prof Q!

How far along are you now?

xxxxxx

 

[leylak]

Hope, you told me you had underactive thyroid. It seems now the cause is Hashimoto's. I hope you get the right treatment and achieve a healthy pregnancy.

 

[Hope39]

Hope, you told me you had underactive thyroid. It seems now the cause is Hashimoto's. I hope you get the right treatment and achieve a healthy pregnancy.

Hi Leylak

Yes it is Hashimoto's that is causing my thyroid disease, i've got lots of antibodies apparently!

I don't know too much about it really, my letter from Hospital just says that my consultant will give me the correct treatment, i think i just take thyroxine still but not totally sure

I am at the recurrent miscarriage clinic next wed so will see what the consultant says

xx

 

[filipenko32]

Back from the clinic at st marys. Nothing to report really just tests. They didn't know what immunoglobulin a was though pip as they dont test for it and I only saw a specialist nurse this time. The scan was interesting. They saw fluid and both ovaries showed signs of ovulation but one looked newer than the other!

 

[filipenko32]

Dr s just emailed to say he is not happy with my thyroid results. He says they need to be between one and two. My three sets of results for tsh were: 1.6 2.6. And 3.6. At different times this year. Anyone else thinks these are high? He's putting me on thyroxin or something like that

 

[Hope39]

Dr s just emailed to say he is not happy with my thyroid results. He says they need to be between one and two. My three sets of results for tsh were: 1.6 2.6. And 3.6. At different times this year. Anyone else thinks these are high? He's putting me on thyroxin or something like that

Hi Fili

They are not particulary high really, the normal range is between 0.5-5 but fertility specialists like it to be between 1 and 2. Prof Quenby wants mine to be under 2.5.

Mine was 9.27 at beginning of october, 5.24 at beginning of november and i am going for another test tomorrow as Prof Q doubled my medication in november to see if it has come down a bit more

You get free prescreptions now if he is putting you on thyroxine! Thats the only good thing about having an underactive thyroid, lifetime medication from what i can gather

 

[Hope39]

Pip, its ok, don't need you to answer my question as Prof Q actually emailed me this evening, i have had a screening test (ACPR - activated c protein resistance). This has come back low so i need a blood test to see if i have it

Fingers crossed i haven't

xx

 

[hopeful23456]

Fili- I don't know a lot about thyroid levels but came across this post:
https://community.babycenter.com/po...nes_for_thyroid_levels_announced_and_question

 

[filipenko32]

Thanks hope and hopeful so would I be classed as mildly under active then? What causes that hope39? I hope that the tablets work for you x x

 

[Hope39]

Fili - what causes what? I not totally sure what you mean

My doc put me on 25mg of thyroxine when my tsh was 9.27, it seems that dropped my tsh to 5.24, i have been taken 50mg for the last month so hopefully that will take me to under 2.5

Prof Q told me not to ttc till i was at the right level but i think i will wait for the blood test result for Factor V Lieden

xx

 

[petitpas]

Hope, I'm glad you got your answers! The only thing I can add is that the test for Factor V Leiden mutation is a genetic one. That means you either have it (heterozygous = 1 gene, homozygous = 2 genes i.e. inherited from both parents) or you don't. No need for a second test.
The condition you need two positives for to diagnose is lupus anticoagulant, also known as antiphospholipid syndrome. This is an acquired (not genetic) immune condition which also affects clotting.

From what I have read uncontrolled thyroid issues are a definite cause of infertility and miscarriage. I have seen a number of ladies on here who were successful after getting their levels under control

 

[Hope39]

Thanks pip, i get myself all confused with these different tests and what they all mean. I have read too much info i think, forgotten most of it too

My doctors told me i had hashimoto's today but Prof Q emailed me about my vit d test today and so i asked her and she said i haven't 'yet'! I've got thyroid antibodies that are causing my thyroid disease thou. i've got autoimmune thyroid disease

She has said my consultant next week will put me on correct medication, whatever that is

Roll on next week then

xxxxxx

 

[petitpas]

Bring it on!

I'm also on vitamin D as a precaution. Apparently, many women who miscarry are found to be lacking in vitamin D...

 

[hopeful23456]

Fili- not sure but looks like slight hypothyroidism then? Did you see this article?
https://miscarriage-recurrentmiscarriage.blogspot.com/2009/01/hypothyroid-and-miscarriage.html

And this -
https://www.mayoclinic.com/health/hypothyroidism-and-infertility/AN01436

 

[filipenko32]

Can anyone help me with this question!! Another question, sorry!! I am wondering if any of you pregnant ladies on steroids suffered with sore boobs either just before a positive test or in the early weeks, or do the steroids mask that too? I am just symptom spotting at 9dpo and don't have sore boobs when I really want them!

 

[leylak]

filipenko, I have been on steroids for 3 months but I have the not-sore-boob problem too. Before the MC, I had very sore bbs from 5DPO to AF. I always had them before AF when I was a teenager. But now that I want them to be sore, I don't get them. Maybe a little tender but not nearly as much as they used to be. Is it related to lack of progesterone or something? I don't think it is because of the steroids because I had this problem before starting steroids. Maybe this is not a problem though, there are tons of pg ladies without sore bbs.

 

[petitpas]

I had a strong suspicion at 7dpo that I was pregnant, based on my bbs, so no the steroids made no difference to me in that respect. My bbs did shrink, though, instead of growing so something odd was going on.
You know that only a test will give you an answer...

 

[filipenko32]

Thanks girls, yeah I only suffer from sore boobs when I am actually about 5/6 weeks pregnant and not much before but last time i did get some tenderness and twinges before. But you're right leylak, we're all different.

Pip I did a test this morning with a 10miu ic and it was just an evap line so classing it as a negative. Were your boobs very sore at 7dpo? (this is a picture of swinging boobs!)