The steroid junkies' perfectly unscientific medical trial

[Amber3]

PS congratulation on you sticky bean. How amazing !

 

[petitpas]

You should have a read. It is nicely written (if a bit boastful at times ) and is easily available from Amazon.

 

[lisacn]

hi there,

i'm 38 had 2 mcs and on prednisolone since Dec 2011, they make me so ill though

 

[filipenko32]

Hi Lisa, were you diagnosed with high nk cells?

 

[lisacn]

yes I was .96 and they like you to be .8 or under, blood clotting was fine so no heparin just baby aspirin and progesterone when prgnant. I just felt so bad on the steroids, all wired and unable to relax or sleep

 

[filipenko32]

Lisa did dr s diagnose you or prof quenby?

 

[lisacn]

it was Dr S, well one of his side kicks

 

[filipenko32]

What dose are you on? I was on 25mg from ov then 40mg from bfp plus intralipid drip. Unbelievably the only side effect I had was crazy hunger! They didn't affect my sleep at all! I was on the very high plan, are you? Everyone reacts differently to them. A few of us on here have had anxiety and sleeplessness but for some reason I avoided that what exactly was 0.8? I can't remember my individual results. I think though that the side effects can wear off once your body is used to them.

 

[lisacn]

i'm on 25 mgs, i'm hoping the side affects will ease as its hard to function the next day when you haven't slept. I've already spoken to Occupational health about it so they might cut down my hours, i'd have to look up my blood test results, i just remember them saying that .8 or below was fine for nk cells and above it was a problem

 

[petitpas]

Hi Lisa!
I was all wired the first month I took the steroids. The second month things calmed down very quickly and in the end, apart from hunger, I felt ok.

 

[lisacn]

thanks, i haven't really felt hungry but have felt bloated, its the tiredness that i'm really struggling with, I am really really hoping that this will settle down

 

[beachlover1]

Hey girls, I'm back and officially in the trial got a BFP 2 weeks ago at 9dpo. On 20mg pred and 400mg twice a day progesterone

ShittIng myself!!!! Now 5 weeks, 12500 miles from home in new Zealand here tIl I'm 8 weeks so I'm scan free til then unfortunately and winging it!! Soooo nervous xx

 

[filipenko32]

Hi beach, I really hope this turns out perfectly for you! Hope the side effects are not too much. Hope you can enjoy your holiday too! How many miscarriages have you had? X

 

[beachlover1]

Thanks fili, I've had 3 and have elevated nk cells even when I had had steroid treatment. Elevated but not too high! I'm crossing my fingers.

I see your ticker....but I also saw your posts! Any news? Really hope it's a goer for you xxx

Oh and I have zero side effects (other than a sore bottom lol from the suppositories, I don't do vaginally as they leak!!! )

 

[lisacn]

hey beachlover where in NZ are you from, I grew up In Auckland

 

[filipenko32]

Great news beach maybe with every day of taking them the nk cells will come down that bit much more? Ohhh, I'll be stalking! X x x

 

[petitpas]

Ooh, dare I say, what a great way to while away those first few weeks - on holiday! I bet you're having a fabulous time. Please say hello from me to any penguins you may come across. I love those little creatures!

I'll update the first post on this thread...

 

[petitpas]

I had used that conversion page Doc put me on 0.5 mg dex

Wow leylak, that does sound pretty low. Have you spoken to your doc about it?
I only know two prednisolone treatment protocols. One prescribes 20mg from bfp, the other prescribes 25mg from ovulation. Maybe you could take that info to your doctor and ask why your dose is so much lower? Maybe dexamethasone has a different treatment dose?

 

[Amos2009]

Hi everyone.....can I join? I am a new steroid junkie. Started using it purposefully this cycle without my doctor's knowledge. He does not believe in NK cells, but after 7 losses, I am throwing everything at it this time. I started 20mg from a few days after O, and am now waiting for either a BFP or AF to show. (pretty sure it's AF).
Just wanted to say hi....now I am off to try and catch up on this thread!

 

[hopeful23456]

hi amos! i really hope its a bfp!!!!