The steroid junkies' perfectly unscientific medical trial

[hopeful23456]

lexi - did you join the PAL after recurring losses thread? I thought you did before? congrats on the BFP!
https://www.babyandbump.com/pregnancy-after-loss/822106-pal-after-recurrent-losses-come-join-us.html

 

[petitpas]

Lexi, congrats on the bfp!
Unfortunately, GPs often don't know about fertility issues and much less about RPL. It's great that you are being referred to Prof Quenby! I'm just wondering whether you can have your scans done at your local early pregnancy unit? It is definitely worth calling them directly (via your hospital's switchboard) and discussing it with them. Prof Quenby can still oversee your care, advise and prescribe but on a less frequent basis. She is great to have on your team!

 

[lexi374]

Hopeful thank you, no i didnt join although i lurk sometimes! I didnt want to join until i knew i actually had something in there iykwim.

Pip thanks yes im delighted to be under her care! I emailed her yest to explain what was happening, im hoping she will sort out me having regular scan at my local hospital it seems crazy otherwise! My gp is particularly obstructive about it all!

You guys are flying through now!! i Hope you are both keeping well?

 

[tansey]

Lexy congrats - i really hope this is it for you & that Prof Q can help

 

[Bumpblues82]

Hi everyone
I went to see my gp and he said that he would have to consult an out of area referral board and discuss with them if I should be reffered out of my area as we live in teesside. He also said to take in allbthe info I found on the tests but not to get my hopes up as they bare notorious for saying no I have emailed both drs you mentioned and have been told by both inwould need a referral :/ but the tests are alot cheaper than I first read if they do them privately but still a little out of reach as we really can't afford them x

 

[lexi374]

Prof q saw me without a referral as my gp was being difficult! She asked for my nhs num and looked up info there i think, although id already emailed brief history. Good luck x

 

[Bumpblues82]

Hi Lexi thanks for the tip could u send me any contact details u have for dr q ? My email is [email protected] xx

 

[lexi374]

Hi Lexi thanks for the tip could u send me any contact details u have for dr q ? My email is [email protected] xx

Ive PMd you, let us know how you get on. x

 

[Bumpblues82]

Hi I emailed dr q and she sent me the info so gonna buy some strips for the fertility monitor and give it a go in june as I have my uni exams next month x thanks so much Lexi xx

 

[Bumpblues82]

Petitpas I hope I'm as lucky as u and get my rainbow from all this xx

 

[lexi374]

No probs keep in touch. Do you temp? If not you should try it. x

 

[Bumpblues82]

No I havnt tried that I have a fertility monitor but I'm quite regular and am very lucky to be able to get pregnant very easily lol I've done opks before tho x

 

[gbnf]

hi all im new here and would very much appreciate any advice

My journey i am currently having my 10th miscarriage and have been to st marys and seen raj rai and prof regan cut a long story short

Septum removed nov 2011 and bloods confirmed raised teg advised aspirin 150mg from bfp tried this time and failed again after seeing a h.beat on scan my lil angels seem to stop growing around six , seven wks

I was wondering if anybody else has a similiar experience with repeated missed m.carriages after seeing h.beat

? immune related as to why i cant carry I have no probs in getting pregnant

Any advice is very much appreciated especially as im feeling very low and head is spinning from trying to find some answers

xxxx

 

[gbnf]

hi

firstly sorry to hear of your mmc i am currently new here and going through my 10th mmc i was just wondering if your mmc were after a h.beat like mine ( hope you dont mind m asking?) im waiting to see doc regarding immune issues in may

My head is spinning and driving meself crazy looking for answer

please help if you can

many thanks

xxx

 

[hopeful23456]

My mc were all early before heartbeats, but, my clinic has had success with treating rpl with lovenox (heparin) and prednisone in first tri, I don't have a blood clotting disorder or immune issues and this seemed to work for me. Not sure if drs in uk would just prescribe this though? Sorry for your losses, it sucks and is totally heartbreaking.

Im online friends with girls on lovenox or were on lovenox. they all had several mcs get to heartbeat stage before trying lovenox (on babycenter site). Some are in second tri and some have a baby now, none of these girls had kids before.

 

[petitpas]

Bumpy, don't lose heart! Some of us are lucky (not counting the losses, obviously) in that we find our cure relatively quickly, others have to go through a few more steps before they get the right tests and treatment. It took me two years and a lot of pushing to get here and I already had all the thrombophilia testing in 2008!
The good news is that eventually most of us succeed. I have also been very lucky that apart from normal little things such as nausea I have had a very uncomplicated pregnancy. So yes, all is going well here and ducky is coming out in just one month!

Gb, I say the same to you. I can imagine that with this being your tenth loss you feel like things are all over but you are on the right track as I see you are waiting for your immune appointment. Is that with Mr S on the NHS?

My babies generally died past the heartbeat stage, too

I had my fifth pregnancy tested and it came back as a normal genetically healthy boy. I had been on progesterone, aspirin, heparin, extra folic acid - the lot. For most people, any one of these ingredients can help but for me it just wasn't enough and I needed the steroids to make it this far. Maybe this is the case for you, too? I'm keeping my fingers crossed for you so please keep us updated on how your appointment goes and how you progress!

 

[Bumpblues82]

Hi guys just had a lovely email from dr q she said basically to email her when I ovulate and she will see me so my question now is I live 177 miles from her and I need to know how long of a time frame have I got to get to her from where I am I'm lucky to have a mother n law who will take me in the car but do u have to go the day you ovulate or do you have a day or so to get there x

 

[Bumpblues82]

And thanks petitpas I will do I'm not a believer in god or religious in any way but I'm seriously praying this my answer xx

 

[gbnf]

hi thanks for the advice im going to see dr.s prof regan said i didnt need heparin but all the research i have read states aspirin alone had no benefits also seen r.rai at an appt and suggested everything next bfp steroid, aspirin heparin etc but prof reg said no she believed it was the septum and raised teg i guess not or i wudnt be in the same position again

I have had genetics done on my angels and all normal karatyping all nhs tests neg and only raised teg at st marys so i guess steroids maybe the answer

I live in the north east england o dr s is going to be alot of ttravelling but to be honest i would go the moon if thats what it takes

thanks for replying as you can imagine my head is bursting

wishes everyone good luck and health for the future xxx

 

[gbnf]

petitias

im going private to see mr s 21st may

xx