What would you do ?

[Oneday]

Evening all,
I have had my long awaited appointment with the consultant today and I didn't go well. She has now decided it is no longer viable to remove my adhesions and wants me to have open surgery to remove my tubes as I at high risk of another ectopic when I go for IVF. I am having a private consultaion next to discuss it but feel devestated ;-(

 

[apple_20]

I'm sorry your going through this and i cant advise anything i guess just get as much information about it as you can look at the pro's and con's. good luck with the private consulation. dont give up on having your baby though x

 

[Blue12]

I just want to say I have to have my tubes removed as well and then ivf is my only chance. In 3 years of ttc I have never got pg once so it is scary to me that ivf might not work - because I am not sure if there are even more problems.

I just want to say you probably have a really good shot since you have been pg before. Did they say why your tube being left is risky - do you have hydrosalpinx?

 

[Crypto1976]

I am in a similar position. I have had one ectopic due to extra long tubes. The other is abnormally long too. There is a risk any fertilsed egg will not make it down. I am on clomid, and in some ways if I am going to have another ectopic I want it to happen asap. I am then happy to have no tubes and get stuck into IVF.

My feeling is that if it has to happen they might as well get on with it.

On the plus the consultant said that so long as ovaries are ok I would be a good ivf candidate.

It does truly stink to have to even contemplate this scenario, and I really do feel your pain. If it has to happen I would rather bite the bullet and try to be brave. In this situation I think focussing on the positives is the way to go with this, its not easy, but there are still options.

Please stay in touch and let me know how things go hun. You are in my thoughts XXXXXX

 

[Oneday]

Thanks everyone
My major issue is the open surgery, laparotomy. I have had a c/s and have a gorgeous litlle boy then with the ectopic nearly 2 years ago i had a laparotmy to remove it, it is major surgery with 6 weeks plus recovery. On the other hand if i pay for IVF and get pregnant the worse case senario would be one to implant in my womb and one to be ectopic and lose both.
Sorry Blue i don't know what Hydrosalphix is, can you explain please?

 

[Crypto1976]

Sorry I didnt realise you had carried a baby full term, that might change my view on things if I had done it once before.

Its very difficult. I am thinking of you hun... and realise now my response is probably not helpful. Please stay in touch. XX

 

[Oneday]

Sorry I didnt realise you had carried a baby full term, that might change my view on things if I had done it once before.

Its very difficult. I am thinking of you hun... and realise now my response is probably not helpful. Please stay in touch. XX

Not quite sure what you mean about carrying a baby to full term already. History is 1 m/c 1 chemical, live birth, 1 m/c then 1 ectopic nearly 2 years ago. The easiest thing to say would be go and be content with the child you have but the hardest thing to do would be to give up, not yet. It would feel like i have gone through a lot of suffering for nothing.
Thanks for your advise sometimes it just helps having someone to listen

 

[Crypto1976]

Live birth- thats what i mean- sorry!

 

[Crypto1976]

I actually think having a child makes it more difficult in some ways. I dont have any kids, but oh has twin. He took our ectopic a lot worse than me. He knew what he was loosing whereas I didnt.

I would never suggest be happy with the child you, and I am great believer in the power of positive thought in matters concerning children. Not because I am a big PMA person generally but because its too painful to be any other way!

I have my fx for you, XXXXX

 

[Oneday]

I actually think having a child makes it more difficult in some ways. I dont have any kids, but oh has twin. He took our ectopic a lot worse than me. He knew what he was loosing whereas I didnt.

I would never suggest be happy with the child you, and I am great believer in the power of positive thought in matters concerning children. Not because I am a big PMA person generally but because its too painful to be any other way!

I have my fx for you, XXXXX

Thanks x You know what I mean it is never easier to walk away x

 

[Olivia2]

Oneday I hope things have improved since you posted this thread (like you have had a second opinion and know where you are going and are feeling more positive about it)
I too am facing the option of tube removal (I only have one after loosing the other to EP and have alot of pain in my last not so healthy looking tube) I am having surgery to see if its worth keeping basically or remove and start IVF. The thought of having it removed makes me so devastated as although its probably not working whilst its there I have hope for a miracle pregnancy without IVF.
Anyhow just wanted to say I am thinking of you and wishing the best of luck ttc.

 

[Oneday]

Oneday I hope things have improved since you posted this thread (like you have had a second opinion and know where you are going and are feeling more positive about it)
I too am facing the option of tube removal (I only have one after loosing the other to EP and have alot of pain in my last not so healthy looking tube) I am having surgery to see if its worth keeping basically or remove and start IVF. The thought of having it removed makes me so devastated as although its probably not working whilst its there I have hope for a miracle pregnancy without IVF.
Anyhow just wanted to say I am thinking of you and wishing the best of luck ttc.

Thanks Olivia
My appointment to see the private Ivf consultant is on Thursday morning. I was really excited at the thought of ivf but now I am feeling a bit apprehensive about the cost both financally and emotionally. I emailed someone at care about the tube removal and ep risk and was advised my risk goes up from about 3% on a "normal" person with no tube issues to 15% in my case if I keep them however even with the removal the risk is not eliminated as they have to leave a stump where the connect to the uterus so there is still a chance of an ep. I really can't bear the surgery again so am will to take the risk if I am unlucky when they remove the ep they tubes can go then. I'll fill everyone in after Thursday and good luck to u all x x x

 

[Crypto1976]

I am having this too in January, although they will go in via laparoscopy and maybe clamp the tube and sterilise it rather than remove to reduce the recovery time.

I am slightly scared but I def dont want another ectopic, and in some ways if thats going to be inevitable I would rather they just went ahead.

It gives a much better chance of success with the IVF, so I am being upbeat about this.

I understand your worries but I truly think this is maybe a step closer to pregnancy, that otherwise going ahead with a tube thats not patent.

Thinking of you hun.XXX

 

[bek74]

Thanks everyone
On the other hand if i pay for IVF and get pregnant the worse case senario would be one to implant in my womb and one to be ectopic and lose both.

Sorry I didn't even know that was possible with IVF.
I have one blocked tube and one open tube, but FS isn't sure it is open enough for an egg, even though the dye test showed it was open. There has NEVER been any talk about removing my tubes. When ET is done it is placed back into your uterus, so not sure how it gets into your tube (sorry this is all new to me, you may need to explain)

I am on my first cycle of IVF (already have 3 children conceived naturally, last one being born in 2000 and have been TTC for the last 3yrs)
My FS said the fact that I have conceived naturally and have 3 children does increase my chances with IVF, but then I am also 35 (nearly 36) so that kind of knocks me back a peg also.

Good luck