Aarskog syndrome

[Pinkirish]

My brother(15) was diagnosed with aarskog syndrome a few years ago. There doesn't seem to be any other children with it in Ireland. Just wondering if any other children have it and how ye are all getting on. My brother wasn't getting any help in school so my mum has been home schooling for the past 2 years.

 

[Aarskog]

My lil guy 3.5 years old may have Aarskog syndrome...we just found out yesterday. From what I've read so far sounds like its very rare...we're in Canada. I was amazed how fast they targeted it for my son and am happy to finally have some answers!! I have been working with the autism program as that is what it has looked like but he has become sooo social. He doesnt talk and all milestones were delayed..