Any Cerebral Palsy parents out there :)

[lilesMom]

Aw hayley is doing just greats xxx
They can't really be at top level cos thru hve stuff to work around
Sounds like ye both working hard xxx
Yucky 9 appointment xxx
Hope slt us just shy and improves

I coloured rice and made edible paint this eve,
Looking forward to tomorrow
Messy fun :-D
My bday Sat, we r heading to a pet farm :-D
Love to all.

 

[lilesMom]

U try respite yet?
How r things with dh Xx

 

[essie0828]

Thanks hun Happy Birthday! Hope y'all have a great time. Pet farms are really fun. DD loves feeding goats and ducks. Watching S will be a wonderful birthday present, i bet he will love it. How did you color rice? Might try that one with DD. Hope y'all had a fun messy day! DH and I are going to make another go at this living together thing. He's doing better and we're giving each other space instead of arguing all the time. I guess time will tell. It would be a bad change for DD right now with everything coming up. I just bite my lip and go on

 

[essie0828]

Haven't tried the respite yet. DH has been around to help some and I haven't needed it yet. Plus I'm chicken to call

 

[lilesMom]

Simon is sick again argh
So tiring
We had a lovely day at petfarm though.
Best bday in ages.
To colour rice, just mix food colour with water.
Add to rice in a,tray
Let for ages yo dry
Simon loves it
I put stuff in like rubber ducks, cup or raake :-D

Hope it works out with dh hon Xx
We have too much space here, we do hardly nothing together.
My bday was lovely cos for once we were wall togetheraand happy
Kinda rare :-D

 

[essie0828]

Oh no. I hope lil man feels better soon. Glad you had a nice birthday! Crappy that your OH is distant most of the time. It makes everything harder. Especially when the lil ones are sick. Right now I prefer distance to the way we were. We couldn't even be in the same room without wanting to throttle one another. Meeting with the Dynavox rep today. Kinda nervous about it. These "talkers" are really expensive and it's hard to get insurance to help pay. Kiddo has to demonstrate that she can actually use it and we have to get tons of referrals from therapists and docs. I'm worried she will be slow in catching on to it and we won't get any help in buying it. Some of the models are over $10,000 USD! I definitely don't have that kind of money on hand. I hope we get some assistance. I know DD wants a voice. She tries so hard to talk but just cant manage the sounds. She will move her mouth like she's talking but no sound comes out. I keep thinking that this may be a way to give her a voice till she can manage her own. I just hope the Dynavox guys agree.

 

[essie0828]

We get a Dynavox to trial for a month! And if DD takes to it we shouldn't have any trouble getting help from insurance. The rep said that kiddos with CP are almost always approved She used the demo model to say "thats cool" today

 

[lilesMom]

Wow that's,brilliant hon
Congrats Xx
Hurray for ha.yley
My rice went,mouldy, don't think I dried it fast enough
Doh

 

[essie0828]

Lol. I let a bunch of waterbeads spoil in DDs water table. Yuck! Smelly mess I'm getting food color today to try the rice. Think I'll dry it under a fan thanks to your experience It's been soggy here lately. Humid, hot and wet. Blah, that's KY summers for ya. How's lil man? Feeling any better?

Well I'm starting to feel a little intimidated about this whole Dynavox thing. I feel like I need to go to a class to learn how to use it The rep was only here about 45 min and between DD running amuck and filling out forms I can barely remember anything he said. There's tons of info on their website I need to read through about setup and teaching pathways. Whew! My head is spinning.

 

[essie0828]

https://www.powerfulmothering.com/how-to-make-color-rice-for-sensory-play/

Found this website for coloring rice. They use 1tbls of vinegar + 1 cup rice + as much food color as needed to get the shade you want. Swish it all up in a ziplock bag and set out to dry. There was something on there about how to neutralize the vinegar smell but I just glanced it. Think I'll try this today. I'll let you know how it dries, website said it only takes an hour to dry.

 

[essie0828]

15ml vinegar + 250ml rice + food color to desired shade

I forget sometimes that not everyone uses American Standard measure

 

[essie0828]

Ahh, to neutralize the vinegar smell this gal uses a drop of essential oils. She used peppermint and tea tree. She also wrote that her rice has kept for 7 months! The vinegar must help it keep.

 

[lilesMom]

I googled it too :-D
I made a mistakes making mine
Least I know now fir round 2
S much better but both still abit crappy

Hope u figure out how to use it easily enough hon Xx
U hve,enough on ur plate Xx
But um sure it will be well worth the effort xxx

 

[essie0828]

How you guys feeling? Hopefully better. DH and DD are both sniffling and snoring, I think we're about to go through a cold. DD didn't sleep well, her ear looks great but now she's congested at night. There's a respiratory virus going round right now, our therapists have commented on the excess snot they've encountered lately

My rice came out pretty good except the smell. It still smells like vinegar slightly, i didn't use an oil. Probably going to try another batch with lemon or orange oils. The color is very vibrant though, i didn't expect that. I used neon gel food colors trying to get bright shades but expected to be dissapointed. I wasn't. Thank you so much for the idea! Planning a few small world sensory boxes for DD now. Gonna do a farm one first Green and brown rice as the ground and I have little critters and a barn to put in. Put little black beans in the pasture as poops. I may go break up some little sticks and do a fence and a few trees its great fun to make this stuff.

 

[lilesMom]

Aw that sounds lovely.
Farm is a great idea x
We r much better thanks
My stupid thyroid is low again I'd say
Haslf my eye brows came out yest
They look awfull
Our hospital that does the testing of the bloods has been out of action for last 3 week's
I think I nmight up my med myself cos thru hve no idea when blood testing is back online

Hope ur colds don't cone to much
We r just after 2 yucky bugs
Snot was not scarce in our house :-D

 

[essie0828]

Aww hun I feel ya on the thyroid issues. I had a period lasting 5 weeks because my thyroid was really low. Went ages without one after the MC and then thought it would never stop. Had a 2 week break and started again My hair is a disaster. It's coming out in clumps almost and whats growing back is white! Whew I'm too young to be getting this many white hairs!

 

[essie0828]

My rice turned out pretty good. Cant smell the vinegar much anymore. I did rainbow pasta today, just cooked up some different shaped noodles and rinsed. Then added 20 drops of color to each Ziploc bag and 30ml water. Mixed noodles up in there and let em set a few min then took em out and rinsed em again before mixing them all up on a tray. DD went nuts with em!

 

[lilesMom]

I hve loads of,grey hairs
Never linked,the two :-D
Stupid,thyroid.
I hve,my period got a week already
Really stopy starty
Annoying. I'm usually so predictable

Did Dd eat or play with pasta or both? Xx
Sounds fun :-D

 

[Ramanie]

Hi everyone,

Thought I will share this with you. My son (RU) with CP has his 28th birthday on monday the 15th of Sept. He is been given a party today at his home as it is a saturday. He is so excited when we to told him and counting the sleeps. He is so adorable and has the most charming smile that all fall in love with him at first time itself. Hope we will make this day special for him as he is very special with special needs.

 

[lilesMom]

Hve s lovely party ramanie xxx
Sounds like a lovely plan x