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Any Cerebral Palsy parents out there :)

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Hope you had a lovely day Ramanie. Hope your son has a great birthday :)
 
Thank you all. Yes he had a great birthday. So Happy and thrilled with the gifts etc. His birthday is today but he was OK to have his party last Saturday. These special needs children are so very special.:flower
 
Hi there ladies!

How's everyone been? How are those beautiful kiddos?

We've started looking into preschool here and I'm not very impressed. I'm worried actually. 17 kids per class with one certified teacher, one certified teachers aid and a para educator. All kids are mixed in, normal developing as well as special needs. I don't like those odds. DD is a fall risk, big time, and her protective reflexes are terrible. Im so disappointed. I was really hoping that DD would get an aid that only has a couple kiddos to look after or something. I would be so much more comfortable with that if she has to be in a mixed environment. She needs to be in a classroom environment with other kids, I know she does. She lights up and wants to do what they do. I know she will learn more but I cant worry about her safety. I have to Know thats she's safe before I will leave her at school. 3 adults to 17 kids :nope: with some being special needs with feeding and choking risks. It just doesn't seem safe.
 
Hey hon
So it's kind of 4 kids to one person?
Doesn't seem awfull but like u say it depends on the needs of the kids
In dreading school laterfir munchkin cos I don't like him out of my sight xxx
Hugs
 
17 is their smallest class, 20 is the norm so with 3 adults it would be closer to 6 or 7. I know I couldn't handle Hayley and 5 other kids, but that's me. Mabey in a classroom environment it would be different but I am still quite concerned. And above all else, im like you lilesmom, I don't want her outta my sight. Poor thing has a bug right now. Fever and pale as a ghost :(. Doc gave her antibiotics and steroids to clear her nose, its totally blocked.
 
Hope she gets better fast hon
So horrible yo see um sick
Tiring too xxx
Busy few days here
Appointments back with a vengeance :-D
Fitted for afo yest
So should hve um in 3 weeks
Yaay Xx
 
Same here with appointments. Seems like it gets really crazy in the fall. My lil cousin that's 11weeks younger than Hayley has been diagnosed as having a stroke. His MRI came back with evidence of an old stroke :(. His mom meets with the neurologist in a cpl weeks. We don't know if they will change his diagnosis to CP or not. They are covered up in appointments as well, wonder why fall is so busy?
 
I think u will love the afos! They take a little getting used to but he will like the new support. DD is getting refitted on the 8th of Oct. for a new set of afos as well :haha: She's grown soo much! Wearing a 5T in clothes now. Whew. We've been watching an animated show called "Jakers! The Adventures of Piggly Winks". Have you ever seen it? It's popular here and has lots of great reviews. It's set in Ireland :) DD loves it and I do to, for a kids show it's darling.
 
I'm looking forward to his afo :-D
Exciting. Step closer to walking
Excuse the pun :-D
I'm not sure why but munchkin has no interest in telly
I've tried a good few cartoons at different times
But he won't watch it
Loves music, on radio or telly
But no interest in any programs
I don't know that one, I'm out of touch with kids shows at d.no
 
essie0828 said:
Same here with appointments. Seems like it gets really crazy in the fall. My lil cousin that's 11weeks younger than Hayley has been diagnosed as having a stroke. His MRI came back with evidence of an old stroke :(. His mom meets with the neurologist in a cpl weeks. We don't know if they will change his diagnosis to CP or not. They are covered up in appointments as well, wonder why fall is so busy?
Click to expand...

August gets really quiet cos of summer hols
So then end of Sep and Oct they play catch up
Least they hve diagnosis nowe at last xxx
 
Ya know, I didn't even think about the summer holidays. That makes good sense. DDs feeling better today, she's sleeping better and starting to eat solids again. The antibiotics have gave her diarrhea though. I'm buried in laundry because of it. And she pooped in my bed. Lol. She can't help it though, poor baby girl. She climbed/ fell out of her crib for the first time today. Almost gave me a heart attack but she was fine. I was right there beside her and watched the whole thing and after I figured out she was fine I was actually impressed with her protective reflexes. She curled her head to her chest to keep from bumping it and landed on her back in a pile of blankets. She didn't even whimper and didn't have a mark. It's almost time to switch her crib to a toddler bed I think. That's going to be an adventure. How's little man been doing? Hope y'all are well. Piggly Winks is great, lol! I'm a kids show nut. I love animated shows and this one reminds me of my Irish friends ;) But honestly it has a great story line, teaches good life lessons the old school way. Hard work, honesty, manners, and its very funny. I adore the accents. The main character says, "Jakers!" when hes excited. Is that something you actually hear over there? Do people say that a lot? Lol, forgive my ignorance and curiosity.
 
Go hayley, climbing and all
Well done girlie Xx

Laughing at jakers
We don't say it much really.
Although it could be heard occasionally :-D
Mostly kinda jokey though.
Another one u might find funny along sane lines is janey mc
Means same as jakers
No idea,as to origin though.

S is good.
In great form.
Singing and babbling all day
Still no crawling but we will get there
I'd love for his sake to get him more mobile
But aall in good time :-D

I'm glad hayley feeling better x
Silly antibiotics, probiotic yoghurt,helps munchkin after um Xx
 
Ha! Thanks! I was so curious about the whole "Jakers" thing, :haha: I'd thought about asking for a while but was a little afraid. I was hoping it wasn't something offensive :haha:

Aww that's great he's babbling so much. DD still isn't talking much. She's following more requests but not much new verbally. I bet after his afos and some standing practice with them he will start wanting to walk. It may be easier for him insted of using his arm. I hope he takes to them straight away. Can he stand with assistance? With you holding his hips or hands? I think you said he has a stander correct? How's he doing in there lately?

When we went to see the doc at the weekend clinic they kinda scared me talking about DD needing to see an endocrine doc. I really haven't processed it but called her regular pediatrician and scheduled an appointment to talk about a referral and why is there concern. The weekend clinic doc mentioned that Hayley has a lot of dark hair on her body. And she does! At birth she was covered in hair on her body. It was quite fine and light colored and some indeed fell out so we just thought she's gonna be hairy like her dad. She has very dark full eyebrows. So does her dad. She has a bit of dark hair above her lip and some on the tops of her hands. Its very fine and to notice you have to be in good light. She also has keratosis pilaris, ( probably misspelled that) on her arms and legs. It makes her skin feel rough. Her dad and I have this as well although it was more pronounced when we were young. The doc seemed to think Hayleys skin and hair condition could be indicative of a pituitary issue. My mom thinks its BS and says me and my brother were the same. Her growth has really sped up and she's literally as tall as most 5yr olds. Shes gained a little weight and is about 17-18 kg. I hope this is just a precaution being taken by a young doc, but its still very worrisome.
 
Hope it's just docs being cautious hon
Its great they r checking but some people just hve more hair than others
3 days in a row months back my munchkin was checked for swallow, then heart then eeg
Swallow and heart both turned out fine
Was just precaution
I think they r extra watchful of our lil ones
Which is no bad thing
Hugs honey xxx
 
S is great in stander
He will stand with a lot of support from me
His hips need it but less so lately
I think it's habit from stander
With afo we will get half stander too
And alternate the two
 
Half stander? I haven't seen one of those I don't think. Hayley still has to have support to stand most of the time. She leans on everything for balance. He will get stronger after the afos. DD gained strength all over in the yr we've had hers. I'm sure all the PT played a part but the foundation was the stability from the afos. Getting him used to them may be a little rough but it don't last long. They will tell you to put them on an hour and then check his feet for red marks. If the red doesn't fade in 10 min then there's a fit issue. We had a fair few refittings in the beginning. Have you found a place for socks? Lol, odd question, but we had a terrible time finding seamless socks. I order them online now, nothing in stores in the area.
 
sorry i got no notification of ur post essie
came on to see how u were cos hadnt heard from u xx
bit mad here,
s still having fits,
new plan to up meds again, will take another 6 weeks
was a bit peed off but he is gettin better so im ok again

did u get ur endocrine app or will it take ages?
hows hayley? xx

how u doin xx

no afos yet but hoepfully soon,
i read leggings are good for afo
had read about the socks too,
i better get looking :)
 
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