Any Cerebral Palsy parents out there :)

[lilesMom]

Hey. I'll post properly tomorrow but short version :-D

Congrats mummy3 , u did hve a busy hol :-D xxx
Hope,ur recovering well xxx

Essie it's only cd14 today so no testing fir a bit :-D
I got preg third month first time round
And first try with s.
Its usually fast in my family :-D

We had,a living tree too.
Still hve,our,deco up too.
Half lazy, half cos s likes.
Gonna plant it in the garden fir next year :-D

Pink sparkle welcome hon Xx
They always blank out Sp"astic.
Bit weird of them on special needs forum Xx

Ok was gonna be short :-D

My mom us in hosp again
She is having a tough time with her heart.

Love,to all xxx

 

[lilesMom]

Essie erythromycin is yo speed up the food,through his system
Hppefukky helping reflux,and constipation
I'm on the fence so far but it's only been 4 days
He is still adjusting to it.

In still a teensy bit nervous of ttc
But we both want one more.
Plus I think s does but he doesn't know it :-D
I'm more,relaxed about it.
Kind of think if it's meant yo happen now,
It will.
Hoping it goes better for us this time.
Third time lucky. :-D
Hopefully no issues this time

 

[lilesMom]

Pink sparkle ny son Simon is 19 months old
He has right sided hemeplegia with epilepsy
He had,a stroke being born.
Xx
They r very close in age.
S bday is May 28 so he is 19.5 ish months :-D

 

[essie0828]

Hi ladies.

Lilesmum how's your mom doing? Hoping shes doing better. Hows the erythromycin working for S?

 

[lilesMom]

Hey :-D
She is home anyway with a monitor for 48 hrs
She looks kinda shook but is ok.
Thabks x


Jury's out in erythromycin,
First 3 days was great.
Not so much since.
He is barely drinking whichI'm not sure if related

 

[lilesMom]

Silly phone
Or if he is just ditching bottles fir food and cup
I had reduced laxative but he is needing closest original dose
The erythromycin was supposed to replace meds
Not b additional one
Will give it till Monday.
Ringing seizure Nurse again on Monday
And can ask her.
How ye keeping?
Any more tests back

 

[essie0828]

Aww hun, I hope being home does her some good. Being in hospital stinks. Hope the monitoring comes back good. Poor little S as well, I was hoping the erythromycin would work for him. Hayley always goes better if she has had antibiotics. For about 2 weeks anyway. She has been having trouble of late. We were to the point that we were not using laxatives but I have had to give her a few doses this past week. She is also eating more solids which im excited about but with that transition comes tummy troubles every time. Mainly constipation and then refusing food. She has started getting around better lately as well. Starting to climb up on things a lot and walking more. She seems to be on the upswing a bit. Still having lots of oral motor issues but improving. No additional news from tests yet.

 

[essie0828]

Hi everyone.

How is everyone? Super busy I suspect.

My little one has her days and nights mixed up. Im getting her in bed around 9 and she's waking before midnight. Usually asking for a bottle. She is eating a lot more of late, so I suspect a growth spurt. She stays up till 5am and then sleeps past noon. Those hours are killing me, lol. Ive tried lots of tricks to reset her bedtime but the kid will not sleep through the night. She has been doing this ever since we got out of the hospital. I even tried getting her up at 9 am and keeping her up and going until she literally fell asleep sitting up and she still woke those nights. Lol. Any ideas on how to get her sleeping through the night insted of sleeping like a teenager?

 

[essie0828]

Mummy3 how are the babies? Everyone adjusting well? Hope all is well with you and your little ones.

Pink sparkle how are you and your little guy doing?

 

[lilesMom]

Hey I typed a post to ur last message but
It seems to hve disappeared
Dumb phone
No news here really
Munchkin is doing well
Getting his words back which is fab
Still having mild fits But very mild
so meds r nearly there
Happy enough in Afo again
And happy enough to practise standing :-D
Still too early to test on ttc front
Accidentally ordered ovulationvtests and some preg test
If I'm not preg this time I May use ov tests next month
I feel preg but could be kidding myself
Sinuses playing up so some of it could be that

When s came out of hosp he was out of sync too
Just tried to stay as close ad poss to his normal times
After a week r so he would be normal again.
Sorry no helpfull advice
Only maybe go to sleep with hayley for a bit during the day Xx

 

[essie0828]

How many days till you will test? Aww I hope you get your sticky bean asap! HaHa! Bring on the peeing on sticks phase. Lol. I got a little freaked out this month and tested. AF is due anytime now and shes a no show. Negative on test so I expect her soon. Hope she stays away for you

DH is off work early today and we are taking the little monkey to the park. Let her get her fill of climbing there and mabey she will stop trying to climb everything in the house

 

[essie0828]

Thats wonderful news about S! Im glad his fits are getting better, so no more med increases? I hope thats over for yall. Still doing the erythromycin? I'm curious about that. I haven't heard of it being used to stimulate muscle contractions in kiddos with cns damage here. It sounds sorta promising. Ive taken it myself for infection and it always made me go more. Tmi, lol. Did he get loose stools with it, or just poo more than usual?

 

[lilesMom]

So we could both be expecting :-D
Just did a test.
Only ten dpo so too early
Not sure if I saw a whisper of a line
But ridiculously faint so could be evap line
I'm not even sure if imagined :-D

Will test again in morn
Af not due till Sat.

Hope hayley has fun climbing :-D
Can't wait till s can do that too. X

 

[lilesMom]

Fits aren't gone yet
So will prob be a bit more increase
But only a little I hope :-D

Erythromycin isnt making much difference
Ilvgive it another week e so and see
Its a small dose
2/5 of dose u would hve if sick

 

[lilesMom]

I did another test.
Cos I lost track of time with the first one
Totally blank :-D

 

[essie0828]

Its still early, Saturday is a long way off, you are still in the race I feel like af will be here very soon, all my normal pms symptoms have peaked. Im thankful really. Im not ready, got some health issues to work out first. Not to mention all thats going on with dd, not a good time to be sick. I get morning sickness very bad. This little scare has opened my eyes some.

I really hope you get a + soon. Keep us updated on tomorrow

 

[lilesMom]

Glad ur n
ot expecting so since ur not ready Xx
I was half sire I was ready.
But I'm after getting myself excited now
I know I'm not out this month yet
Tww is just too long. :-D

Hope alls well with ye xxx

 

[essie0828]

Im excited for you as well! Have you tested again?

I played with a handsome little fella today while out with DD. He was about 1 and was very happy to play peek a boo with DD and me. It was too cute. Well ready or not AF still hasn't shown up for me. Today I am officially late and I have been nauseous several times today. I really hope it was what I ate. Picking up a few tests tonight to find out for sure.

Have to brag on DD today. She took every step I did and climbed herself into the car. I did not have to lift her at all. Had to catch her from falling a few times but she did the stairs we came to and tried pulling open the doors. Shes not quite strong enough to pull open the heavy doors but shes trying. Aside from a bit of a moaning fit when she got tired, she did amazing today. Proud of her trying so hard.

 

[lilesMom]

Still bfn but af isn't due till Sat.
I got new tests and I think they r crap :-D
Or else I'm not or its too early
Oooh. Let me know how u get on? Xxxaw good on hayley
Well done both of u xxx
S stood playing at a,table with me behind him for 15 mins yest
Longest,ever standing out of stander :-D
Go our little munchkins.

 

[essie0828]

Thats WONDERFUL! Hes standing!!! Go buddy go! Aww that's a great milestone, and a tough one to. DD still needs to hold a table or something to be stable. This is great! WTG Little man and mom!