Any Cerebral Palsy parents out there :)

[essie0828]

Aww, we wish you a happy and healthy pregnancy dear.

 

[lilesMom]

Linee staying faint and nausea is gone.
I'm getting doubtful.
But wont panic just yet
I know it's not concrete proof yet

How ye doin xxx

 

[essie0828]

Oh no. I hope its just dodgy tests. When will you see doc again for bloods?

 

[lilesMom]

She said first lot of bloods won't be. Back till next week.
If lines aren't proper by then,
I'll get her to do beta.
I'm not sure either way
So I'm trying not to thunk about it too much
I've Simon to busy me
How ye doin xxx

 

[essie0828]

Were keeping on keeping on. DH is having to fight a FMLA case to keep his job for missing in order to be with DD in the hospital. Its really a bunch of bs. He took documented, unpaid, federally approved leave under the FMLA act and they are hassling him. We just have to gather paperwork and prove DD is disabled, again, then attend a hearing. Its infuriating really. He works 7 days a week with no benefits for one of the largest federally backed companies in the nation and is getting hassled for taking time to be with his disabled kid. Oh btw, FMLA is the Family Medical Leave Act here. Before it was enacted by our government, people could be terminated from their jobs for illness or for taking time to care for sick dependants. It was ghastly. Women still have very little maternity leave here, and its all unpaid, but at least they dont get fired from their jobs anymore. So under that federal act, FMLA, an employee with one year of service under their belt is entitled to 15weeks of unpaid leave a year to deal with any severe medical problems or maternity leave. My husband qualifies all the way around but they are fighting every technicality on the paperwork. So we have to have the Union represent DH and fight to keep a job that is federally protected. I hate having to fight to make people be FAIR. I miss the days when common sense, your word and a handshake were all that was needed in a deal. And if that didnt work out someone got their ass kicked.

 

[essie0828]

Staying busy is best. Its tough and impossible not to worry Ive been there too many times dear

 

[lilesMom]

It's infuriating when u hve to fight,just,yo get,what,u,r,entitled to
Hope the,hearing goes,smoothly xxx
Some people,hve no conscience
Especially big companies. Xxx

I'm weirdly calm
I'm kinda resigned
But hopeful to be surprised
But my gut tells,me mc
But might not,be :-D
Missed a call from my Doc
They r closed now so Il ring tomorrow
My phone was turned on and,beside me
But,went yo voicemail
Dumb phone

Xxx

 

[essie0828]

Aww sweets, all I can offer is my true understanding of your situation. If only my arms were truly long enough There is still hope but in 32 years and several miscarriages, I have learned to trust my "gut". A womans instinct is something to be reckoned with. I hope your thoughts are wrong but you will have more chances dear. It took me three tries to get DD, and 2 pregnancies lost since. Im kinda like you, I can get pregnant fairly easy, but I differ in most dont make it. I hope things work out. But i truly believe S will grow up with a sibling, or a few

 

[essie0828]

So I sort have been struggling with this whole genetics issue. You know the saying "ignorance is bliss"? I have a serious worry and anxiety about having another child. If anything I say offends anyone, I beg forgiveness now, but now that I know sometimes I think I should stop trying to have babies. God knows I want another squishy baby. I just cant get past the worry that another child may be disabled because DH and I carry some gene. It's not like we met at a family reunion or anything, but we are from the same small town. My family have been in the area since they came from England and Ireland. Half of DHs family is from another part of the country, but his mama is from a family like mine, lived in the area since it settled. Its just so confusing and so profound. Some disorders on this gene named in DDs genetic report, exhibit Marfan Syndrome like features. Several members of my family are above 6'6". DD has always been above 90th percentile in height. Large stature is a Marfan Syndrome symptom. So many things are coming to light with this genetics testing, its sad and enlightening.

 

[lilesMom]

Doc confirmed what I thought
Hcg only at 43, far too low.
another beta on Mon to confirm
I actually feel better knowing rather than just suspecting

Um gonna ask fir genetic testing before anymore ttc I think.
I totally understand where u r coming from hon.
I'm not sure on anmorttc either way

Did they give u a percentage chance non another child inheriting it
My bro and sil second child was born with anancheply
They were told 50:50 chance of it again
They hve 3 healthy kids since.
Hugs xxx

 

[essie0828]

Im so sorry sweetie

From what I understand, if dh and I are both carriers of this recessive gene, then there is a 25% chance of a child being affected. But in the end its basically the roll of the dice. Genetics is an area ive only slightly dabbled in. There is a ton I dont know.

 

[lilesMom]

Hugs honey xxx
A 3 in 4 chance of an unaffected child sounds good odds
But I understand ur,fear xxx
Could u cops with 2 speacial needs kids I'd it happened?
That's what I ask myself.
Which is why it will be a bit if ever before any ttc for me
I'm thinking maybe I should just be gratefull for Simon
But my mins could change later on.
Xxx
Hugs hon

 

[essie0828]

I think the same. Its just way more scary being pregnant now. The last MC I had ended in an infection that almost killed me. DH had to care for DD for a week. I am just chicken to try again. But im not ready to be sterilized either. Its a hard decision.

 

[essie0828]

And your spot on about being grateful for S. He's such an awesome little guy. We really are blessed to be around these kids.

DD has made a huge leap in development of her motor skills. Her independent walking and endurance have made the most progress. Ive lost 8lbs chasing her! She is in escape mode at all times. If the door is cracked she is out and headed to our car. She can walk anywhere around our place unassisted except stairs. She tumbles a lot, and due to tightness in her lower back and hamstrings, she cant go from a sit to stand. She still has to pull up. Shes getting closer to standing on her own though. Ive been getting videos and sending to family. Most break in to tears when they see her go. Im just in awe really. In the past 2 weeks she has changed so much. Her body shape has changed and she has put on a little weight. Her muscle tone is better. She still has weak spots but her whole posture is better. Its very strange. I have been supplementing her B12 every since we got the MRI results. Can this be the result? DD said "hell" yesterday. I still think it was a dream but DH heard it. DD was going at the kitchen sink and i had just placed a knife in there. I said "Oh Hell!" DD in amongst her baby babbling "ba ba ba fop fop kk kk hu hu hell" then giggled.

 

[lilesMom]

Aw that's brilliant
She sounds like shjust took a huge leap
Its brilliant when they do that xxx
I can't wait till a has the freedom of walking

How did u know u had infection hon.
I've been dizzy and feeling crappyvthis eve.
Prob just paranoid

 

[essie0828]

I hope your feeling better dear. How did things go at the doctor?

I just felt a little off before going into hospital. I had been to the doc and was being treated for a uti. I thought i was feeling crappy from that. Tired, weak, night sweats, but nothing like a raging fever or anything. It wasnt until the D&E that they found the infection in my uterus, caused by my body retaining the fetus. I was almost 14w at that point though. I really hope you are feeling better hun. Thinking of yall.

 

[lilesMom]

Just had bloods done a the Doc.
Results should be back by tomorrow.
I just feel kinda drained
But am on antibiotic for sinuses
And my eyebrows are falling out
So thyroid could be dipping again.
I'm all problems :-D

How ye doin Xx

 

[essie0828]

You poor thing I hope you are able to rest some. Any word from the blood test?

 

[essie0828]

We are doing good. Battling DDs tight muscles today. She over did it a bit yesterday and so did mama. I sprained my ankle DD has always had a bit of tightness in her hamstrings, toosh and lower back. Well with all the walking and stairs she is tight and kinda grumpy about stretching. I bet she is sore. Her feet were sore from the braces last night. The little bug let me rub them for a long time and she was clearly loving it. Walking all-day in hard plastic afos has to be like walking in steel toed boots on concrete all day. Ouch.

 

[lilesMom]

Hcg levels still too low.
Being sent for ultrasound
But it seems sure now.

Ibknow