Anyone have endometriosis?

[I_believe]

I have been ttc 2 years after a natural miscarriage. I haven't had any testing except for PCOS and the doc said that was fine. I'm no doctor but I have done alot of research and the symptoms for endometriosis seems dead on. Anyone else with this condition? What are your symptoms? How were you tested for it? Do you have children?

 

[tlm]

Hi! I had stage 3 endo removed by laporscopy in March after ttc for 1.5 years with no luck! I had no symptoms other than not being able to get pregnant! My RE always said endo was a possible reason for IF because if you are over 30 and never had a child your chances of having some degree of it is 80%. So after no luck I agreed, reluctantly, to have a lap! Since then I have done 4 cycles of clomid, trigger, and iui. My dh sa is all good so we know that's not the issue! I haven't been successful yet, and we might be going to ivf next cycle!! Good luck! Keep us posted!

 

[I_believe]

Thanks so much for responding. I go next week and hopefully get some testing and answers. I wish you luck in your journey!!

 

[mummy.wannabe]

hi
i have pcos and endo.
i have endo on my right ovary and have not many follicles on that side.
pcos on the left side and have loads of follicles on that side.
currently going through ivf so they been checking for the follicles.

i have extremely bad period pains, shooting pains in my back, crippling pains on the right side where i have it, literally i bend over in pain, cry in the night
bleed for a lot longer than the average cycle 7-9days and a lot of very thick blood clots. not sure what others have as we will all be different but hope that helps a bit x

 

[I_believe]

Thanks for the info. None of my symptoms seem to be as severe as yours. Hope all goes well for you!

 

[Krystal 123]

Hi ... Hope you don't mind me posting but endometRiosis runs in my family.

My nan, mum and auntie all had/have the condition, my mum has had it a lot worse than me and has been offered a Hysterectomy but hasn't gone a head with it.

Personally I get a lot of pain but little damage has been done to my insides luckily! It has taken over my life at points and I've never experienced anything (the pain/ extreme bleeding) like it. my auntie had the opposite and struggled for 10 years to have a baby, she had ivf in the end and has a beautiful teenage boy.

Basically I just wanted to say that we all managed to have children ( this is my first) wishing you lots of luck x

 

[Armywife84]

The above symptoms are typical and it is hereditary.

I for one have endo (27 years old), but experience absolutely NO symptoms and no female in my family has it. The only reason I got a lap done was because, my gyno said they will require you to have one before going for IVF.

The only way to diagnose endo is to go in surgically. It will not show up on a scan. They inflate your stomach with gas and go in with a camera, then have a look. If they find endo, they will laser adhesions off, and order a biopsy just to be 100% certain it is endo. Recovery time is 2 weeks and for the next 6-9 months your chances of conceiving are increased. Although I haven't conceived, then again we also have MF.

Treatment options are basically IUI, IVF, ICSI. It sucks.

Note: I've also read that if a woman has never been on birth control, she's more likely to have endo. But I've been on 2 forms of BC off and on over the years.

 

[Ducktales]

hi, i had a lap and dye and hystercopy last week for a suspected blocked tube shown on an HSG.
Turns out there was no blockage but i have severe endometriosis which he lasered off.
I have never had any symptoms, apart from it has always been absolutely agony to go for a number 2 during my period (sorry TMI) and have had mid cycle cramping particularly cramps after ovulation until my AF.
I have been on birth control from the age of 16-28 and then came off it to TTC so it may be that the endo has all grown since then... who knows
good luck for your appointment
xx