Arnold Chiari Malformation

[Luckystar]

Hi there, I have ACM Type 1 and all medical staff that I have come into contact with seem to have a real fascination with it. I had an op approx 14 years ago and I am fit and well with no recurring problems.

This is my first baby and part of me is concerned that my baby will also have ACM and the Doc wants me to have a partic scan (?), which will detect if the baby has it. I'm quite nervous about the whole thing and just wondered if there was anyone out there that has experienced this at all? If so, I would really love to hear from you.

 

[Blondie007]

I am sorry but I dont have any experience of this. Just wanted to say that hope it all goes well x

 

[stephwiggy]

I have a small chari malformation. And subarachnoid cyst on my cord. Mine is in operable tho. My docs seem happy that bubs is ok tho. Xx

 

[stephwiggy]

Apologies for spelling and typing I'm on my phone.

 

[Tegans Mama]

Hiya, I don't have ACM but my daughter does. Fingers crossed your baby is all well.

 

[Emmea12uk]

My son does, but he is unsymptomatic at the moment. I hope your baby is ok.

 

[stepht]

Hi,

I am currently 32 weeks pregnant and had op 5 years ago. I had ACM type 1. I havent had any symptoms since.

Can i ask how the labour went? What did you doctors recommend?
I dont have a private obstetrician and am now worried that i should of got more advice.

I was planning on having natural labour (maybe with epidural) and am now thinking that elective caesarian may be the option to avoid pressure in my brain and avoid aggravating old symptoms.

Any advice???

 

[Blue12]

I know this is an old thread/question. Not sure if any of you are still subscribed to this thread or active on this site still. I recognize some of your names.

I just wondered how you found out about your acm.My daughter has recently been diagnosed with central sleep apnea and when googling ot find out the cause of it it keeps coming up as acm being a possible cause. DO any of you have central sleep apnea too?

THANKS SO MUCH