autism becoming less

[Midnight_Fairy]

Thank you. Sorry to hijack lol just thought id update xx

 

[alibaba24]

Thank you. Sorry to hijack lol just thought id update xx

not at all I love to hear things like this x

 

[Thurinius]

Congrats to all and the progress of their little ones.
Not sure what to say alibaba, it's kind of good but kind of not good news. I feel your frustration with just wanting to know. But perhaps that means even if she is asd it is likely to be on the milder side of the spectrum.

With routines my lo is fine with massive changes, eg going on holiday, starting nursery. It's the tiniest, tiny change that sets him off. So small I'm like 'what? What?' And it turns out the cushion is slightly out of line or we crossed the road twenty yards before we normally do.

 

[alibaba24]

Congrats to all and the progress of their little ones.
Not sure what to say alibaba, it's kind of good but kind of not good news. I feel your frustration with just wanting to know. But perhaps that means even if she is asd it is likely to be on the milder side of the spectrum.

With routines my lo is fine with massive changes, eg going on holiday, starting nursery. It's the tiniest, tiny change that sets him off. So small I'm like 'what? What?' And it turns out the cushion is slightly out of line or we crossed the road twenty yards before we normally do.

thats true. I suppose in your lo's ones case that is the lesser of 2 evils. sorry I can't think of a better phrase but from all the reading i have been doing so many asd parents go through hell on holidays. time off nursery etc. at like the small changes are within your control and you can work round that rather than not being able to go out and what not

 

[Thurinius]

Congrats to all and the progress of their little ones.
Not sure what to say alibaba, it's kind of good but kind of not good news. I feel your frustration with just wanting to know. But perhaps that means even if she is asd it is likely to be on the milder side of the spectrum.

With routines my lo is fine with massive changes, eg going on holiday, starting nursery. It's the tiniest, tiny change that sets him off. So small I'm like 'what? What?' And it turns out the cushion is slightly out of line or we crossed the road twenty yards before we normally do.

thats true. I suppose in your lo's ones case that is the lesser of 2 evils. sorry I can't think of a better phrase but from all the reading i have been doing so many asd parents go through hell on holidays. time off nursery etc. at like the small changes are within your control and you can work round that rather than not being able to go out and what not

No I agree. If I prep him for changes to his routine then he is fine. Like I said it's the weirdest things and he doesn't have the language to explain it to me. Like the time he flipped out because he took his own pants off in the wrong place in his room.
Or the time I was bathing his brother in the evening due to a tea on head incident. Usually we do morning baths but my son insisted he wanted to get in the bath and then he flipped out because it had mucked up his usual bedtime routine.

 

[alibaba24]

Congrats to all and the progress of their little ones.
Not sure what to say alibaba, it's kind of good but kind of not good news. I feel your frustration with just wanting to know. But perhaps that means even if she is asd it is likely to be on the milder side of the spectrum.

With routines my lo is fine with massive changes, eg going on holiday, starting nursery. It's the tiniest, tiny change that sets him off. So small I'm like 'what? What?' And it turns out the cushion is slightly out of line or we crossed the road twenty yards before we normally do.

thats true. I suppose in your lo's ones case that is the lesser of 2 evils. sorry I can't think of a better phrase but from all the reading i have been doing so many asd parents go through hell on holidays. time off nursery etc. at like the small changes are within your control and you can work round that rather than not being able to go out and what not

No I agree. If I prep him for changes to his routine then he is fine. Like I said it's the weirdest things and he doesn't have the language to explain it to me. Like the time he flipped out because he took his own pants off in the wrong place in his room.
Or the time I was bathing his brother in the evening due to a tea on head incident. Usually we do morning baths but my son insisted he wanted to get in the bath and then he flipped out because it had mucked up his usual bedtime routine.

I had this very same issue and still do to a degree I remember not knowing what was upsetting my daughter and just trying to guess and eliminate the possibilities all the time as she had no language well any language that was going to help the situation. It is getting better though . its funny because my girl went through the bath phase. she wanted a bath every single night and if she didnt get one... well ...the whole house heard about it

 

[Starry Night]

Midnight Fairy - that's spectacular news! I'm glad to hear your son is doing so well at his new school.

Re: routines - I have noticed my son won't go to sleep unless I put all of his blankets and sheets on even though he only sleeps on top of them all with a blankie. He never complains, but he won't go to bed either. It's the same with the chair. If it's not his chair he'll simply get off the 'wrong' chair, move it and pull up the one he wants in the place he wants.

My son does tantrum over the smallest things at times but I wouldn't consider them 'meltdowns'. I don't know. I haven't ever been ruffled by kids' screams or tantrums so maybe I'm not a good judge. they just don't seem like a big deal to me. With how much the mommy blogs moan about toddlers I thought I was getting off easy. And those aren't even special needs' mommy blogs.

Small update: I saw the kids' doctor today for my daughter's routine 9 month check up but we spent most of the time talking about DS (as DD is doing awesome). The DR pointed out there was a difference in how DD was able to engage compared to DS but even he was a little confused by the mixed signals DS was sending. dS spent most of the appointment lying on the floor spinning the wheels on the stroller. But when the doctor said, "Bye!" DS looked up and said "Bye!" All the doctor could say is that the spectrum is wide and he does see some signs of concern but they're subtle.

 

[alibaba24]

Midnight Fairy - that's spectacular news! I'm glad to hear your son is doing so well at his new school.

Re: routines - I have noticed my son won't go to sleep unless I put all of his blankets and sheets on even though he only sleeps on top of them all with a blankie. He never complains, but he won't go to bed either. It's the same with the chair. If it's not his chair he'll simply get off the 'wrong' chair, move it and pull up the one he wants in the place he wants.

My son does tantrum over the smallest things at times but I wouldn't consider them 'meltdowns'. I don't know. I haven't ever been ruffled by kids' screams or tantrums so maybe I'm not a good judge. they just don't seem like a big deal to me. With how much the mommy blogs moan about toddlers I thought I was getting off easy. And those aren't even special needs' mommy blogs.

Small update: I saw the kids' doctor today for my daughter's routine 9 month check up but we spent most of the time talking about DS (as DD is doing awesome). The DR pointed out there was a difference in how DD was able to engage compared to DS but even he was a little confused by the mixed signals DS was sending. dS spent most of the appointment lying on the floor spinning the wheels on the stroller. But when the doctor said, "Bye!" DS looked up and said "Bye!" All the doctor could say is that the spectrum is wide and he does see some signs of concern but they're subtle.

the fact that the signs are subtle is a good thing. Great news on your baby girl doing well

 

[Starry Night]

Thanks. I keep hearing the stat that if one sibling has ASD then the odds of the other having it too are 20% so I've been super paranoid about her.

I do think there is something there in regards to my son. At home I don't always notice it, but when I compare him to his friends I see that he is "different". I don't know if that difference is autism or some sort of delay or simple immaturity. I haven't studied early child development so I can't see anything tangible. Just that he's different. And in the mall when other moms ask how old he is and I tell them, they always go "oh" and get kind of awkward so it is evident he's behind.

Today I was finally able to do some sneaky videos of my son playing with my daughter and I know the specialist would see concerning signs. They were both playing with a play-centre toy that lights up, makes sounds, etc, and while DD was often looking up at him, he was pretty much ignoring her and turning away. I then took another video where I was able to join them and when I watched the video later I could see my DD look up everytime I spoke but DS would turn away or shout "NO!" when he wanted me to be quiet. When I asked him why I couldn't sing (I was singing along with one of the songs from the toy) he then mumbled something and asked for his toy Buzz Lightyear. Why can't I ever get a video of him playing with us?

And I was looking up the ADOS test and it seems the standard test includes having a child throw a pretend birthday party for a doll. Here's the thing: my son has only been invited to one birthday party and it was outdoors and we spent the ENTIRE time chasing him across the person's farm as he kept trying to escape into the surrounding bush. We don't have a lot of friends out here. Breaking into the small town cliques is virtually impossible. I don't want the examiner to think his lack of knowledge about birthday parties means more than it should.

 

[alibaba24]

Thanks. I keep hearing the stat that if one sibling has ASD then the odds of the other having it too are 20% so I've been super paranoid about her.

I do think there is something there in regards to my son. At home I don't always notice it, but when I compare him to his friends I see that he is "different". I don't know if that difference is autism or some sort of delay or simple immaturity. I haven't studied early child development so I can't see anything tangible. Just that he's different. And in the mall when other moms ask how old he is and I tell them, they always go "oh" and get kind of awkward so it is evident he's behind.

Today I was finally able to do some sneaky videos of my son playing with my daughter and I know the specialist would see concerning signs. They were both playing with a play-centre toy that lights up, makes sounds, etc, and while DD was often looking up at him, he was pretty much ignoring her and turning away. I then took another video where I was able to join them and when I watched the video later I could see my DD look up everytime I spoke but DS would turn away or shout "NO!" when he wanted me to be quiet. When I asked him why I couldn't sing (I was singing along with one of the songs from the toy) he then mumbled something and asked for his toy Buzz Lightyear. Why can't I ever get a video of him playing with us?

And I was looking up the ADOS test and it seems the standard test includes having a child throw a pretend birthday party for a doll. Here's the thing: my son has only been invited to one birthday party and it was outdoors and we spent the ENTIRE time chasing him across the person's farm as he kept trying to escape into the surrounding bush. We don't have a lot of friends out here. Breaking into the small town cliques is virtually impossible. I don't want the examiner to think his lack of knowledge about birthday parties means more than it should.

I totally understand your paranoia about your duaghter i felt the same but I can tell already my youngest has no asd signs. try to relax and enjoy your baby girl. Its funny because when my daughter was 3 she didnt like me singing to her either?! I put it down to her language delay that she just didnt really get what I was doing. shes grown out of it now and we sing together. I don't know if it was some type of sensory reaction. even now if i am talking alot with another person she tells me to stop I think its becuase she doesnt understand such a large amount of language. i cannot be sure though i might ask about it at her review.

when you say you spent time chasing him around at the birthday how is his sense of danger?

I often think the same I mean I really can't see my daughter acting out a birthday party but that doesn't mean shes not imaginative?!

 

[Thurinius]

Yes I'm always told to 'stop' when I start singing too. And I have a lovely singing voice (not)

 

[alibaba24]

It sounds like it is an asd trait then perhaps? It is not mentioned on the gars-2 questionaire though. probably because Autism is just so varied with every single individual

 

[Starry Night]

My son's sense of danger isn't really strong. He understands--and appreciates--the word "hot" but otherwise his sense of danger is misplaced. He is terrified of strange toilets, is scared every time he goes for a haircut or when we need to clip his nails. But he'll run into traffic, fling himself head-first off the couch and he loves to run away. He does seem nervous on the stairs (he still crawls down) but he's had a few nasty falls.

My son defiinately has some imagination too. I just don't know if it will meet the examiner's standards. He likes to dress up as superman. He can pretend toys are the toys he wants them to be. For a long time, my DH's old Murdoch action figure from the A-team was "Woody" the cowboy from Toy Story. And right now my DH's old Hans Solo is "Buzz Saw Louie" from a Veggie Tales movie. But his actual pretend play is mostly reenacting movie scenes. He will sometimes insert himself into the story (Have Buzz Lightyear and Woody talk to him) but the play doesn't veer far from the movie script.

 

[Starry Night]

Yes I'm always told to 'stop' when I start singing too. And I have a lovely singing voice (not)

My singing voice is horrible but DS does the same to my husband and he is a really good singer. When he was a baby he would start yelling if a song came on the radio he didn't like and wouldn't stop until we switched to a different one.

DS does like to sing but gets a little self-concious when you watch him too much. His vocabulary is better while singing. His 'speech' still isn't very clear but he's more careful with his words.

Today he's having a day where I can see the signs more again. He's been flicking and snapping his fingers alot while playing and now he's grinding his teeth and just being unresponsive in general.

 

[alibaba24]

my daughter still does not check for cars and she has just turned 5. while she will not just run out blind (she used to as a toddler) she still isnt fully aware of how dangerous roads are. my nephew funnily enough used to really freak out at nails being in cut in fact I remember visiting my sister and when oldest then was maybe a year old and I asked her to pass me the nail clippers as dd's nails were long an my nephew freaked out it wasnt even his nails same with haircuts too hes over it now though

 

[alibaba24]

my daughters review is this week on thursday. Feeling like it is looming over us. just no idea what is coming.

 

[Starry Night]

my daughters review is this week on thursday. Feeling like it is looming over us. just no idea what is coming.

Whatever happens, you just need to face it one day at a time. I see the Bible verse in your signature. Cling to that. Jesus is your strength.

Our son's assessment is on Wednesday. Still waffling between "he is definitely autistic" to "Nah, I don't think so". But I am noticing more repetitive habits. He is constantly flicking and snapping his fingers and it seems to be getting worse all the time. I'm noticing a callous forming on the inside of his thumb. And he's grinding his teeth. It sounds awful!

On the other hand, he has really been growing with this speech. He's been using more full sentences and asking for more attention. It is still mostly scripting but he is pointing out more things that interest him. And he gave DH his first-ever self-initiated hug the other day. DH and I were both in awe. It melted our hearts.

 

[alibaba24]

my daughters review is this week on thursday. Feeling like it is looming over us. just no idea what is coming.

Whatever happens, you just need to face it one day at a time. I see the Bible verse in your signature. Cling to that. Jesus is your strength.

Our son's assessment is on Wednesday. Still waffling between "he is definitely autistic" to "Nah, I don't think so". But I am noticing more repetitive habits. He is constantly flicking and snapping his fingers and it seems to be getting worse all the time. I'm noticing a callous forming on the inside of his thumb. And he's grinding his teeth. It sounds awful!

On the other hand, he has really been growing with this speech. He's been using more full sentences and asking for more attention. It is still mostly scripting but he is pointing out more things that interest him. And he gave DH his first-ever self-initiated hug the other day. DH and I were both in awe. It melted our hearts.

I do thank you .

do you think sometimes that things seem worse than they actually are because we are looking for it. Analyzing things all the time?

it's lovely to see his speech growing even if it is copying it is still learning. And often leads onto use of his own language too. as for the hug -

Please let me know how it goes on wednesday I will keep an eye out for posts from you. x

 

[Starry Night]

thanks

I do think I am over-analyzing some things. I just don't know what is what. I know I should leave it up to the experts. It's hard that the future is so unknown and that it is out of my hands. Only 2 more days until the assessment and then next week we meet up with the doctor/specialist to go over everything. So really, not that long a wait but I'm also preparing myself for a "we're going to need to do more testing".

 

[Midnight_Fairy]

I honestly think that during a good spell my son wouldn't be diagnosed with asd if he was tested now! That said he is 100% on the autistic spectrum and certainly has his moments x just varies.