Borderline bilateral ventriculomegaly at 22w - support thread!

[Tulip]

Ugh that is an age away I hope the consultant measures within normal limits. Would you let us know? I'd love this thread to continue. x

 

[mare]

Ugh that is an age away I hope the consultant measures within normal limits. Would you let us know? I'd love this thread to continue. x

Yes Tulip, I will keep you up to date with my situation x your little boy is a real cutie

 

[zozarini]

Hi girls,

thanks you so much for this thread/ I have been searching for over a week to find useful info on this topic, without much luck!!

At our 20 weeks scan our measurment was 10.4mm, we are back on the 10th (Tuesday) for a re-scan! It was a consultant that conducted our 20 week scan, he said that baby was in awkward postition so he never checked heart, spine or kidneys(Not sure if he was just saying that) so we shall see what tuesday brings.

Thanks again for making me feel a bit better - You always think the worst!

Good luck for Thursday Mare xx

 

[Tulip]

Good luck this week both of you

 

[janey1975]

Good luck to both of you. I will be thinking of you both this week. Please update when you can. I know it is really worrying but the likelihood is that all will be well.

By the way, my little man was born on the 9th August with no problems at all. He is a gorgeous and healthy little boy (on the 95th percentile for weight and height even though born on the 25th percentile).

Love to you both x

 

[zozarini]

Thanks for the support mamma's and sharing your stories, it has given me comfort.

My appt is at 2pm this afternoon, so leaving work shortly to go to hosital. Will keep you updated on how it goes xxx

 

[Tulip]

Thinking of you

 

[janey1975]

Been thinking of you all day today. Please let us know what happened when you can. Lots of love to you x

 

[zozarini]

Hi Girls,

Sorry my interent would not work in the house last night!! Grr. (In work now)

Well I am delighted to say that all looked "Normal" the ventricle measuring 8mm now so in the correct range. My placenta had also moved up (That was Anterior low a couple weeks ago)
The sonographer did say that these things tend to develop more further along?? Felt although she thought i was making it up (As the consiltant scanned me 2 weeks ago) I had to tell her about the high measurments! So she said all looking as it should be for now but thats not to say that it cant rise again... (right Mrs. Negative! eh)

So we were delighted!! We can deal with whatever happens in the future but so re-assuring to know that at present he is measuring as he should be! Pheeeew!

I can stop googling and imagining the worst!

Thank you again ladies for your support and stories. Its nice to know you arent alone in these things, whether it be for real or just a blip/scare.

xxxxx

 

[Tulip]

Thats fantastic news, congratulations! Now enjoy him

 

[janey1975]

GREAT NEWS - CONGRATS!

I echo what Tulip says, make sure you enjoy the pregnancy now. I don't think the measurement would go up. In my experience when it was measured at 24 and 28 weeks they went down. And remember, they have found no other issues either so you are in the clear. I know it is difficult to feel really relieved sometimes because you gear yourself up for an issue but please make sure you relax now. I know how nervous it makes you and then it is hard to come down for that.

Take care all the best x

 

[zozarini]

Thanks Tulip & Janey! I know i am just going to try and foget it all and move on! sometimes the technology is more a curse than a help! But feeling him kick away and knowing all is looking good has got me back to feeling excited! Will just chill out and take it as it comes.

I said a wee prayer for him and got what I asked for.. so someone must be looking after us!!

I will say a little one for Mare and hope she hears the same as us tomorrow! xxxx

 

[mare]

Hi Girls,

Sorry my interent would not work in the house last night!! Grr. (In work now)

Well I am delighted to say that all looked "Normal" the ventricle measuring 8mm now so in the correct range. My placenta had also moved up (That was Anterior low a couple weeks ago)
The sonographer did say that these things tend to develop more further along?? Felt although she thought i was making it up (As the consiltant scanned me 2 weeks ago) I had to tell her about the high measurments! So she said all looking as it should be for now but thats not to say that it cant rise again... (right Mrs. Negative! eh)

So we were delighted!! We can deal with whatever happens in the future but so re-assuring to know that at present he is measuring as he should be! Pheeeew!

I can stop googling and imagining the worst!

Thank you again ladies for your support and stories. Its nice to know you arent alone in these things, whether it be for real or just a blip/scare.

xxxxx

FANTASTIC NEWS

 

[mare]

Hi ladies
Thank you all for your support and well wishes

Sorry I havent been on to update until now.

All is good measuring 8.2mm

All that worry all those tears for the last 2 weeks!!!

The scanwas amazing, they did this infa red thing where you could see the blood pumping through the babys heart.

I have another scan in 2 weeks just to measure again but all is well

 

[mare]

Thanks Tulip & Janey! I know i am just going to try and foget it all and move on! sometimes the technology is more a curse than a help! But feeling him kick away and knowing all is looking good has got me back to feeling excited! Will just chill out and take it as it comes.

I said a wee prayer for him and got what I asked for.. so someone must be looking after us!!

I will say a little one for Mare and hope she hears the same as us tomorrow! xxxx

Great news for the both of us

 

[Tulip]

Oh that is just fantastic Mare! What wonderful news all round

 

[janey1975]

That is absolutely wonderful news, I am so so so so pleased and relieved. I know how much upset and panic it causes. I don't think unless you have been through it that others really can know what it is like. You imagine the worst and the relief you feel is immmense. So pleased for you mare.

Yeah, the heart doppler scan thing is amazing. It's so reassuring when you see the heart functioning as it should.

Good luck for the scan in a couple of weeks - not that you need it. I suspect the measurement will be the same or even smaller.

Thanks for updating and enjoy your pregnancy now! Love to you and your little one x

 

[zozarini]

Sorry just checked the thread.

Brilliant Mare.. so glad all is looking well for you and baba!! It is such a relief isnt it!!

WOO. Just makes you realise how much you love the little one before its even here! xxx

 

[Sweetk1]

Hi I just wanted to update with my story in case anybody googles VM.

My NT measurement was 2.5mm the sonographer told me that it was normal and I was sent away with my scan pics.
I had a call a couple of days later to say that combined with my blood my Downs risk was 1:115. I'm 28 yrs old.
I was referred to Kings College for a CVS, which all came back normal, and told me it was a boy.

I also had my 20 week scan at Kings, which was normal. Although they did tell me that my boy was measuring big, particularly his head but everything looked normal. They asked me to come back at 28 weeks for a re-scan on growth.

My 28 week scan was fine, he was measuring 3 weeks ahead in head and abdominal circ, on the 97th centile. His ventricle measured 8.6 which was fine.
Because of his growth they advised a growth scan at my local hospital at 32 weeks. I was discharged from Kings.

At my 33 week scan the sonographer said that the posterior ventricle measured 11.5mm. I wad referred to my consultant who measured it every 2 weeks, she got different measurements depending on the angle, she said it's very hard to measure late on in pregnancy.

She diagnosed Mild VM.
I had a normal CVS and TORCH was negative so she said it was isolated and mild. Again he was measuring big, all measurements over 95th centile.

I was induced at 39 weeks and he was born on Xmas day 9lb 8oz, HC was 37cm. He was scanned at 8 hours old and the VM remained.
They got an accurate measurement of 12.5mm it's unilateral. All other parts of the brain looked normal, no evidence of bleeding, no cysts, normal fluid flow.

My son is now 1 month old, he's doing great. He's very strong, putting on weight fine, very alert.

He is being rescanned in 2 weeks time.
Who knows what the future holds, when it comes to the brain you never know.

 

[zozarini]

Hi I just wanted to update with my story in case anybody googles VM.

My NT measurement was 2.5mm the sonographer told me that it was normal and I was sent away with my scan pics.
I had a call a couple of days later to say that combined with my blood my Downs risk was 1:115. I'm 28 yrs old.
I was referred to Kings College for a CVS, which all came back normal, and told me it was a boy.

I also had my 20 week scan at Kings, which was normal. Although they did tell me that my boy was measuring big, particularly his head but everything looked normal. They asked me to come back at 28 weeks for a re-scan on growth.

My 28 week scan was fine, he was measuring 3 weeks ahead in head and abdominal circ, on the 97th centile. His ventricle measured 8.6 which was fine.
Because of his growth they advised a growth scan at my local hospital at 32 weeks. I was discharged from Kings.

At my 33 week scan the sonographer said that the posterior ventricle measured 11.5mm. I wad referred to my consultant who measured it every 2 weeks, she got different measurements depending on the angle, she said it's very hard to measure late on in pregnancy.

She diagnosed Mild VM.
I had a normal CVS and TORCH was negative so she said it was isolated and mild. Again he was measuring big, all measurements over 95th centile.

I was induced at 39 weeks and he was born on Xmas day 9lb 8oz, HC was 37cm. He was scanned at 8 hours old and the VM remained.
They got an accurate measurement of 12.5mm it's unilateral. All other parts of the brain looked normal, no evidence of bleeding, no cysts, normal fluid flow.

My son is now 1 month old, he's doing great. He's very strong, putting on weight fine, very alert.

He is being rescanned in 2 weeks time.
Who knows what the future holds, when it comes to the brain you never know.

Thank you for sharing your story! Glad to hear your wee one is doing well and I will keep everything crossed it remains that way xxx