Can anyone relate to my story? Sorry for the long story but I need to share...

[newscotland]

Hi everyone,

I have been perusing these forums for a few weeks now and have finally decided to join and share my story. I would appreciate any advice/input or similar experiences if anyone has any to share. So basically this is what is happening to me. I am 31 years old, I am 5 weeks late, been off the BCP for about 5 weeks now, I thought up until recently I was about 7 weeks pregnant and now I am told I definately am not pregnant after the latest blood work but I am still left with this feeling in the back of my brain that I might be; maybe I had myself so convinced that I'm pregnant that I am having a hard time accepting logical/factual blood work results. My symptoms started about a week after where I believed I conceived (I messed up my BCP and forgot a couple days worth of pills at the beginning of my cycle). The symptoms I started experiencing and have continued over the last few weeks were bloating, gas, pulling/twingy/crampy feelings in my lower abdomen, boughts of loose stools, constipation, nausea, food adversions, dizziness, veins becomming more prominant, aching legs/hips, fullness feeling in my lower abdomen, headaches, breasts producing milky white fluid (not a lot, just a few drops when I check), spider veins appearing, nipple changes (dark around outter areola and nipples look larger), moody, increased appetite, and tired tired tired! I have been testing weekly with HPT's all different brands starting a week before my period was due but they have all been negative. Had blood work about a month ago, negative pregnancy (hCG read at '2'; above '5' is considered pregnant). Estrogen was low, FSH and LH was high. Prolactin was normal. My doctor told me she isn't sure what is going on, she took my case to her focus group and no other dr's had any idea what might be going on; one of them suggested that maybe I am in fact pregnant and testing negative because he had a patient who had six healthy pregnanacies and was never able to test positive. So she took me off my BCP; had me start a prenatal vitamin "just in case" which I am still taking "just in case" and had me go back for more blood work 3 weeks later. I did and got my blood work back today. Pregnancy test was negative again, FSH/LH was high, estrogen still low, thyroid was low. I'm still experiencing all those "pregnancy" symptoms and still haven't got my period but she said they are obviously from my hormones being out of wack. She prescribed thyroid medication which I will start taking today and scheduled me for an ultrasound next week to check out my ovaries. As crazy as this sounds I am hoping that maybe the ultrasound will show a little baby in there. I know this is wishful thinking. She is also referring me to an endocrinologist. Hopefully I'll get some answers. I guess I am not ruling out pregnancy until the ultrasound shows that there is definately nothing in there. I am so depressed right now. Has anyone gone through anything like this? Is it slightly possible I am actually pregnant even though my hormones are going crazy and the blood test says no? I know I am grasping at straws. I feel like I am going to go insane. I appreciate any feedback. Please don't be mean; I'm pretty fragile right now.

 

[medic76097]

Sounds like a long road ahead, but at least you are taking steps to getting answers. I know that my body was playing tricks on my when I finished BC and even last cycle I had about a week and a half where I had every symptom of being pregnant that there is. I think that I mentally convince myself that I am and I want it so badly that I trick my body sometimes. Anyway, Hope you get your answers.

 

[hur575]

hi,

It is good that your doctor is investigating further, others will refuse to take it any further after negative tests but anyway, I don't want to give you false hope as our mind can play tricks on us, and will make us think we are pregnant but there is a chance you could still be pregnant.

I am not sure if you heard of the hook effect?? it is were your hgc level will be so high that reads negative, although it is rare there is another thing called variant hook effect, and this is very common, they say up to 30% it can mess up readings and give false negative for both blood and urine it is to do with the binding to the antibodies. For both tests they only need to dilute sample 1:10, try if you can do this with your urine, one part of urine to 9 parts of water and test see if it works, some women report it does work but they randomly diluted by dipping the test to the toilet bowl. google it you will see few medical papers published on these. Good luck !

 

[newscotland]

Thanks for your responses I'm awaiting my ultrasound this week and I'm done taking hpt's...I can't afford anymore. I know the ultrasound will give me some definitive answers so I can move on with my life either way. I know I am lucky to have the doctor I have; I have read alot of horror stories of doctors treating women who have hormone issues or think they are pregnant like they are nutcases because these women are trying to find out what is wrong with them. Whatever happens I am glad I am in good hands. I'll post to let you know what the ultrasound says in case anyone else who is going through a similar situation can maybe get some comfort in knowing they are the only ones out there. I know I feel pretty alone right now.

 

[newscotland]

Just an update. I was diagnosed with premature ovarian failure. My nightmare is a confirmed reality

 

[tabitha561]

so sorry

 

[Spunky]

Oh hun, I'm so sorry. I wish there was something I could say that would help, but I can't..

 

[newscotland]

Thanks, just knowing that others care helps I'm not giving up all hope yet. I'm going to talk to my doctor about what steps to take next.

 

[Mrs Bee]

So sorry to hear what ur going through hun... Just know we all care I hope all goes well with your next doctors visit xxx

 

[newscotland]

I saw my doctor and she is referring me to a fertility specialist; so I'm hopeful

 

[badtasteinmus]

So sorry for you. hope things improve.

 

[BabyLovesElmo]

Sorry about your diagnosis hun, but at least now you know for sure. It sounds like you have some good doctors there who are willing to listen to you. Best of luck in the future!