I had a lump on my lower back when i was born. The hospital looked at it and said it was fine and to just leave it alone, so i did. I suffered several kidney infections and over 50 urine infections in the last 2 years. I went to so many doctors and they told me i had a small bladder and wasn't emptying properly which caused the infections and my bowel problems. I have now moved to America from england as i am half american. My mum noticed my lump had gotten much bigger. I hadn't noticed because i don't really look at it as it's on my lower back. I had really bad back pain the last few months but didn't think much of it. I went to a urologist complaining about my urine infections and as he was feeling my back, he noticed the lump on the bottom of my back (which has a hairy patch) and said its possible it could be pushing on nerves and causing your bladder problems. I got sent to have an MRI scan and it showed the lump was much bigger on the inside than the outside and it was 7cm and had grown into my sarcam (no idea what that is). They said my spine is not fully grown because of the lump that i was born with which is actually a lipoma. He diagnosed me with tethered cord syndrome. I never liked the look of the lipoma but it never used to bother me because i never had any symptoms. The symptoms started when i was 17 and i am now 19. They are really bad the last few weeks. I can barely walk anymore. I can't be on my feet for more than 1-2 hours at a time without feeling extremely stiff and weak. I have great difficulty holding in my urine and often have bladder and bowel accidents. My back is really painful lately to the point where even if i move the slightest bit, it absolutely kills and no pain killers except tramadol have helped me. I have been diagnosed with kidney reflux which was caused by nerve damage because the lump is pushing on nerves. I now have permanent kidney damage and scaring due to this. I have read online that alot of people with spinal cord lipoma's often have no problems until they're late teens or adult hood where damage is not fixable. It also says, lipoma's of the back should be removed during childhood to prevent any nerve damage in the future. I wish i had known this and so does my mum because i haven't been able to work for 2 and a half years due to my problems now. I am seeing a consultant in 2 weeks time to discuss surgery. Apparently after removing the lipoma, you go back to normal.. all your bladder, back, bowel, leg functions! I am so happy i have found out my problem after 2+ years of suffering and not being able to work. My advice to anyone with young children and babies with a lower back lump is to get it removed as a child. It probably isn't cancerous as most lipoma's aren't but should still have it removed because i made the same mistake and am now suffering. English doctors failed to ever find out the problem of my bladder symptoms over the space of 2+ years. Been in america for 5 months and they already found the problem and am waiting to be scheduled for surgery soon! American doctors are far move advanced!! Seriously though, i apologize for the huge paragraph but your daughter will be suffering much more in the future if you don't have it removed. She will end up like me in her teen years! Hope this helps people and i wish you all best!!
It's hard seeing our kids like that. Pity you have to wait this long for the results!! Good luck, I hope she gets the all clear! 
