devestated any info please

[louimum]

hi girls ill give you a summary and try not to waffle on lol
11yr old born emcs
ttc 3yrs new partner
hsg,ultrasound clear.sperm ok but not fabulous.
regular afs and ovulation.fsh- 10.1/8.7
but......my lap last week has totally devestated me.
severe adhesions,my ovaries and tubes not in the right places because of these adhesions.tubes totally clear though.
doc iis giving me another op in sept to try and sort me out. i know its an invasive op through my cs scar, does anyone have ANY info for me please? op name? success? recovery time? anythin? xxxxxxx

 

[wanabeamama]

Hello don't worrie I have had a laperoscopy and a laparotomy my first feb2011 had a 12cm cyst on my left ovary and lots of adhesions all over had all that cleared up and jan 2012 had a laparotomy as I had another large cyst on the left that was attached to my bowel and the back of my uterus and adhesions all over I have had all of this cleared up again and all looks good inside make sure you speak to your sergion and stress to him how important your fertility is also I would ask for zolodex injections which are monthly injections I wish I had known about them before.
Now that they have discovered this you can be treated I am currently taking BCP to hold it off from growing back I will be doing ivf in a few weeks.

Did they say endometriosis?
I know it's upsetting and dornting but help is on its way

 

[wanabeamama]

Sorry just read again, if there using your CS scar sounds like laparotomy (what I had in jan)
I won't lie the recovery was very long my scar is still tender now but the first 6weeks was the hardest you will need to take 6weeks off work this was very difficult for me but didn't have a choice, the op itself was very successful and I had 4 days in hospital if you need any more info just ask

 

[louimum]

thank u sooooooo much for replying to me hun. isnt this all just awful?!!! from the googlin i have done i thought it was a laparomty. is there a good success rate of natural conception after this? we are not entilted to ivf due to me havin a son from previous relationship.its just not fair. sorry for bein dumb but what is bcp??
yes my doc said there is a 6week recovry time.im guessin it will be like when i had my cs..........hell lol!!! but at least i had my bubba to take my mind off the pain then. i bet your soooooo excited to start ivf. did they not want u to try naturally after the op 1st? ive a feeling we are buggared but my oh very optimistic xxxxx

 

[wanabeamama]

The laperotimy should increase your chances a lot especially followed by zolodax injections you would have a great chance. BCP = birth controll pills lol they help controll things until we can start the ivf I'm very scared but excited I don't know what else to do if this doesn't work but I'm putting my faith in it,

After my first op feb 2011 we ttc for a year after that but my endo had already started to come back after just 3 months so there was no hope really I had an ultrasound 4 months after my first surgery and they told me I had a 6cm cyst again that was growing pretty fast so we spent a whole year ttc even though there wasn't much chance of bfp so after my second surgery jan just gone he put me on the pill straight away so it wouldn't come back so quick to give us chance to do ivf.

It isn't that common for it to come back that quick my surgeon was very supprised by it so it doesn't mean it will come back that quick for other people but I wish I had known to do the zolodax after my first surgery it might not have come back so quick

We have been ttc for 2 years 6months total even though the last 5 months I have been on BCP.

 

[louimum]

gosh hun u have been thro it havent u!! u sound very strong unlike me lol!! will my adhesions grow back like endo? or is that different? my doc sounded fairly positive about us gettin preg after this op. but the pessimist in me is dreading waking up to bad news again like this time.that he was unable to fix me. its causing rows with oh.he is very optimistic etc and isnt emotional etc. which drives me nuts when imfeelin so low and alone. my doc didnt mention any drugs etc but my op was only last week so maybe ill find out more nearer the time. 3 month wait ( im impatient. are u tubes clear? my hsg and ultrasound were fine.this is why im so shocked.nothin showed on them xxx

 

[wanabeamama]

Oh I have my moments and break downs but after surgery especially to do with female organs it make you VERY emotional surgery does that to you it took a long time for me to stop crying after both surgeries but it gets better
You really do have a great chance of getting pregnant after this op.
Did your doc say it was endo I havnt herd of any other type of adhesions so it could well be endometriosis it is very common. The 3months will fly by its been 3months since we first went to the ivf clinic and they said oh you should get your consultation in about 3months I broke down it felt like a life time but it's gone soooooo fast I only have a week left I am scared though as they did blood tests for me and OH and he also had a sperm test and I had a scan and she told me I had a 3cm cyst but that was only 5weeks after my laparotomy I'm so scared I hope she got it wrong
My surgeon said my tubes were clear which I was supprised about because with stage 5endo it usually gets your tubes but I guess there is a little luck for all of us.

 

[louimum]

obviously i would never wish this on you but its nice to have someone to talk to in a similar situation.thank u for chatting to me )
no he deffo didnt mention endo hun. when he 1st told me he wanted to do a lap he said maybe my tubes were in wrong place due to my emcs. when he came round after my lap he just basically said he was unable to do anythin thro lap as adhesions so bad. i think he said there is no way i could everget preg at the min cos my tubes are ontop of my ovaries so the sperm would never meet an egg. he said my tubes were clear and he could see that id just ovulated etc. i just dont understnd how my scan and hsg didnt remotley pick up any badness at all. doc was supposed to be givin me clomid after my lap but he said there is no point lol. i was just sat in total shock xxx im a very emotional person but this infertility is totally pushin me to the limits. my oh is soooooo different and says im bein a pessimist as the doc sounded positive. i just cant shake the feeling that im unfixable (

 

[wanabeamama]

I know that feeling my oh is the same I think because the problem doesn't lie with them they don't quite feel that way or maybe they just don't show it

Well I know it's hard to see right now but if your doctor wants you to come back and have a laparotomy then he must be pretty confident it will work otherwise he would have just taken your ovaries out during your lap I was so worried on my second op I didn't know I was having a laparotomy until I woke up but I was worried that they would take every thing out? But he didn't, if they can save your fertility they will I'm sure he will do all he can to help you get pregnant
Where are you from?

 

[louimum]

im manchester huni. i keep tryin to be positive but its so hard isnt it,when your whole future is depending on one op xxxxx wher u from?

 

[wanabeamama]

I'm in Oldham so not far

It is very hard it bugs me when people say oh don't worry it will happen and I just think wtf are you mystic meg? Lol I always think it feels like being stranded on a boat in the middle of the ocean not knowing if you will ever be rescued.
People keep saying to me oh you only 30 you have pleanty of time but what they dont get is it's not my age that worries me its what if my endo gets to bad and I have to have a hysterectomy before I get the chance to be a mummy.

Sorry I'm going on a bit now lol

 

[louimum]

ohhh god u sound just like me lol. i had my son at 19 in a terrible relationship. im now happy n settled and want to have a bubba and be happy etc. people say ahhh you already have a child your lucky.......how i dont punch them ha.
are u on nhs or private? which hosp are u under? xxx

 

[wanabeamama]

Im NHS at St marys in Manchester

I did read that some private clinics offer free ivf to women who donate eggs or stem cells I would defiantly consider donating stem cells if I ever need to.

 

[louimum]

im at salford royal.they have been very good so far n my doc is lovely. what are stem cells for hun? not heard of that. u excited to start? is ther no chance for a natural bfp? there isnt for me.hopefully after this next op xxxx

 

[wanabeamama]

Well I have a 1% chance of a natural bfp and after 2 and a half years I dont think it will happen any time soon lol
I'm exited but very anxious about this appointment I'm scared of getting bad news but I'm excited to move on to the rest of my life.

Stem cells are been used in research at the moment they have managed to take stem cells from eggs and grow new eggs, St mets have asked if they can have any unusable eggs for stem cell research but I know some private clinics are wanting them too.

 

[louimum]

ahhhh right thats interesting.isnt it bloody amazing wot they can do these days. totally facinates me )
how do u kno its 1% chance hun? they told u that? even after your ops? xxx

 

[wanabeamama]

Yes they told me that even after my op it's only 1% chance

How are you feeling now? Hope your getting better

 

[louimum]

bloody hell. why is that hun? so sorry xxxxx at least u starting your ivf process.very exciting and scarey i bet ) )
im feelin loads better.just had my bloody af tho.sooooo heavy n painful. plus my belly button scar been hurting and weepin but i think its gettin better xxxxx

 

[louimum]

so sorry to mither u huni but can i just also ask did they tell u after your laproscopy or after you lapotomy that you cant concieve naturally? hope ur well xxxxxxxxx

 

[wanabeamama]

Well after my laparoscopy they told me I have severe endometriosis and have a very small chance and then when it came back really quick he sent me to the fertility specialist and just said that our only hope is ivf the chance of us conceiving naturally is unlikely with only 1% chance

Oh I'm sorry you having a bad AF mine was bad after the lap too I would say keep a close eye on your belly button mine got infected if you get any redness along with weeping you will need antibiotics it took along time for my belly button to heal it was about 5weeks avoid wearing anything that sits on your waist. Did they give you any pain killers? Xxx