Down's Syndrome

Discussion in 'Special Needs Support' started by smileylexie, Jan 30, 2011.

  1. smileylexie

    smileylexie Guest

    Hi guys!

    I'm new to this forum so just getting used to things, thought i'd introduce myself in here seeing as i have a beautiful daughter who's 3 with down's syndrome.

    I was wondering if there were any other mums on here who have children with down's or have personal connections with the syndrome who i could get to know and swap stories :)

    Lexie :thumbup:
     
  2. mom22boys

    mom22boys Well-Known Member

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    Nice to meet you! I am the mom of a 9 1/2 year old boy with DS. He is the sunshine of our lives! LOL
     
  3. smileylexie

    smileylexie Guest

    Hi! nice to meet you :)

    My little girl maisie makes me laugh until i cry and sometimes just makes me cry but at the same time i wouldn't have her any other way!
     
  4. Midnight_Fairy

    Midnight_Fairy New baby J

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    Hi and welcome to this part of the forum :)
     
  5. mom22boys

    mom22boys Well-Known Member

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    I know sometimes we just sit around and watch him! They are so..... words cannot explain. When I had him I was so sad about all the things my little one would not be able to do! I look back now and think what was I worried about.

    My little guy LOVEs Santa! I made him a santa suit and he wears it all the time. I have to hide it so I can wash it. He lines up thing in our house in twos and sits behind them and pretends they are his reighndeer. LOL We get such a kick out of him!
     
  6. smileylexie

    smileylexie Guest

    Awwww that's so sweet, maisie didn't quite grasp the concept of santa this year, maybe next year!
    we've started using sign language with her as we're not too sure how her communication skills are going to improve seeing as she hasnt very limitted speech at the moment!
    Her fixation at the moment is to sign bird everytime she see's one!
     
  7. mom22boys

    mom22boys Well-Known Member

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    awwwww! That is a start. I bet she is so cute!

    We started with eat, more, drink, potty, and he signs all his colors, some letters and several words. We also used photos. We would show him a photo and then sign it. That helped a lot. He can make sounds for example last night he spelt his name. All the letters did not sound "right" but we were tickled pink! He is writting simple 3 letter words and he can match a word with a picture.

    Does she get therapy? We had really good therapist when Briar was younger but now since he is in the school system they are not so great.
     
  8. Nathyrra

    Nathyrra Levi's Mammy

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    I have a little man whose 4 months old, with Down Syndrome. He's the most amazing little boy!

    Obviously, we still come to terms with his diagnosis as it's still early days, but everyday he teaches me not to worry too much about it =)
     
  9. smileylexie

    smileylexie Guest

    Hi, nice to meet you :)

    I struggled at first when i had maisie, but as i wattched her grow it made me smile so much to see her developing in ways in which people may take for granted otherwise. As she's got older, i've got stronger and become more aware of little things you can do to simplify barriers such as communication.

    I f you ever want to talk, i'm here!! :hugs:

    p.s love your little sparkly down's syndrome thing!!!

    lexie
     
  10. mom22boys

    mom22boys Well-Known Member

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  11. Nathyrra

    Nathyrra Levi's Mammy

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    Thanks guys!

    It gets easier, it's made easier by our little star. He amazes us every single day. I'm sure you guys know all too well just how wonderful it is when they reach those milestones that come so easy to other babies.

    We're doing well in our little bubble, the only thing that still stings is when we see other babies. Not quite sure why, we're a work in progress and we definitely feel like we were chosen to be our boys parents for a reason. I see such a different side of life! I feel so enlightened. x
     
  12. mom22boys

    mom22boys Well-Known Member

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    Nathyrra........Sounds like you are doing great!

    I really had a problem being around all those happy pregnant people LOL after having my little guy. I guess I was jelous. I don't know why because I am the lucky one. Now I just look back and laught at silly I was!
     
  13. ccb725

    ccb725 Well-Known Member

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    I have a soon to be 4 yr old boy with down syndrome. He is the light and love of my life! He keeps me in stitches and I'm truly in awe of the way his touches people.
    He was diagnosed with leukemia in December 2008. He went through treatment and is in remission and doing wonderful! He is such a fighter! I LOVE my boy & so grateful to meet all of you here!
     
  14. smileylexie

    smileylexie Guest

    :hi:

    Nice to meet you!!

    My little girls around the same age as your son, so sorry to hear the awful times you went through! he's a little fighter you've got there :hugs:

    I'm not so sure how it works in america, but what kind of education is he in if you don't mind me asking?
     
  15. Caezzybe

    Caezzybe Mummy to Logan & Jasmine

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    Hi Lexie, I'm Mummy to Logan (5 months old) and everyone loves him to bits. His smiles make my day worthwhile even if I'm having a really bad time. Nice to see you here, which area do you live in?
     
  16. purplerose

    purplerose Well-Known Member

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    Hey guys I wonder if you have seen Summer Heights High?

    An Australian mockumentary set in a highschool. One of the students is Toby who has downs. His favourite teacher is Mr G. I guess because Mr G treats him like a normal person.

    Have to say that Mr G isn't really the most nicest of people. He is self absorbent and wants things perfect.

    In the series Mr G writes a musical based on one of the students who has died of an over dose. He puts himself as this student's favourite teacher (even though he never had her in any of his classes) and he changes it to a play about himself. When the kid that was ment to play Mr G pulls out, the students urge Mr G to allow Toby to take the role as Toby knew all the moves.

    Thought I share some clips.

    Mr G hanging with Toby and explains that Toby is always bullied and he understands how he feels.

    https://www.youtube.com/watch?v=v2ECSZBdGfw

    _

    Toby teaches Mr G some Arabic as he is of Syrian descent.

    https://www.youtube.com/watch?v=-uYim5qRVjA

    _

    Toby shows Mr G that he can break dance (he is pretty awesome)

    https://www.youtube.com/watch?v=xw_xDieIeoU

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    The School play with Toby as Mr G

    https://www.youtube.com/watch?v=JH0Ob-QiLR4

    Hope you guys enjoy :)
     
  17. ccb725

    ccb725 Well-Known Member

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    Thank you so much! He's in a "typical" preschool for 3 hours/day. They're able to start at age 3 however, due to his illness, we kept him on home school for 7 months. He began attending school in October.
    It's really a great program as they are very open to accepting children with special needs. To me, it's more of a blended program with more "typical" children. He is the only child in his class with ds, but I do love it. He also receives speech, occupational & physical therapy through the school. Unfortunately, here in California, there is much left to be desired when it comes to these special services. The great vendors are often extremely pricey and not covered by insurance or school.

    How about your daughter? When did or will she start school? How are your services?
     
  18. smileylexie

    smileylexie Guest

    Thanks for sharing the clips purple rose!

    And logan looks so sweet in your picture!!!! I wish maisie was that cute again, she just cause chaos nowadays haha :) took her swimming this morning, sometime the looks she gets really pee's me off but i just look past that and ignore it, and spend some quality time with my beautiful daughter!
     
  19. purplerose

    purplerose Well-Known Member

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    Glad you like the clips :)

    Seeing the topic made me think of Toby :) Just proves that anyone is capable of something no matter what.
     
  20. smileylexie

    smileylexie Guest

    That sounds great,

    We had the difficult decision between sending her to a mainstream primary school and seeing how she got on but risking her losing vital time which she could be in an environment where she's getting the right care she needs!

    In the end we entered her into the nearest special needs school and she started in jan at the age of 3 and a half, she seems to be doing really well so we'll just see!!
     

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