Edinburgh Royal Waiting list Any Ideas?

[babypink2010]

Hey Folks,,

The doc has just referred me to Edinburgh royal to see fertility specialist, finally not sure why its taken this long,,,

Anyone have any ideas on waiting list to see FS?

Any past/present experiences on waiting times? I know i have only been referred today but i would like an indication on timeline

Thanks
A

 

[Justwantababy]

Hi there. I was referred to the ERI at the end of April and then the average wait was 12 weeks. However for us we hadn't yet had SA done and they wouldn't put us on the wait list till they had 2 samples from my husband 4 weeks apart....so essentially a 16 week wait. I had some stuff done privately in the meantime as I couldn't stand the wait (and had some cover thru private healthcare scheme at work)

Had our 1st appt the other week, and good news is things are moving quicker now.

If you have any other questions please feel free to ask here, or pm me. xx

 

[Justwantababy]

also....just seen your sig. Do u know your OH can do his sample at home as long as you can get it to the drop off point at the ERI within a certain time (either 30 or 60 mins I think). I know we go through a lot but always think that must be horrible for the boys! xx

 

[Lisa2701]

I was also told its a 12 week waiting list (on average).

i believe DH can do SA sample at home as long as he can get it there within an hour? My DH couldn't as we live about 45 minutes away and so if he got caught in traffic he'd be in trouble.

We are still waiting on an appointment. DH had to have SA done and I had to have 2 bloods before they'd see me so its made things longer for us.

Good luck hun

 

[babypink2010]

Thanks for your replies 12 weeks,,, will need to keep busy to take my mind of it,
I live in west Lothian and you can only hand the sample in the morning, not sure who thought of that but i would hit rush hour on both m8 and bypass so didn’t want to risk it,

The second sample again there wasn’t enough sa, he was mainly worried about not getting it in the tub, I explained this to the doc they said they would refer us no need for another sa, but i would have preferred one,

Justwantababy: - How did your first appointment go what was mentioned did they arrange any other tests, for example check you tubes? did the ERI give you clomid? did they monitor you on it? x

Lisa: - When did your your doctor reffer you? My doc took ages think i got most of the test before refferal,,

 

[Lisa2701]

Thanks for your replies 12 weeks,,, will need to keep busy to take my mind of it,
I live in west Lothian and you can only hand the sample in the morning, not sure who thought of that but i would hit rush hour on both m8 and bypass so didn’t want to risk it,

The second sample again there wasn’t enough sa, he was mainly worried about not getting it in the tub, I explained this to the doc they said they would refer us no need for another sa, but i would have preferred one,

Lisa: - When did your your doctor reffer you? My doc took ages think i got most of the test before refferal,,

Oh thats interesting, i also live in west lothian ...

I was referred around about april time. WE had most tests done by that point. OH SA needed done, rubella and chlamydia tests were all I needed done.

 

[babypink2010]

Nice we live in the same area,, Did your doc refer you before any tests then ERI contact you before you got your app to say you needed em?

We got sa x2 and still not got a good result due to nerves tub being to small, (men lol)

I have had CD21, rubella, chlamydia, thyroid ,,,,,even got ultrasound to check for pcos but never had any symptoms (the women given the ultrasound said i shouldn’t have even been referred their)

Every time i went to the docs it was a different GP wanted this test before i got referred...and it took just under 2 years

How was your SA?

 

[Lisa2701]

Nice we live in the same area,, Did your doc refer you before any tests then ERI contact you before you got your app to say you needed em?

We got sa x2 and still not got a good result due to nerves tub being to small, (men lol)

I have had CD21, rubella, chlamydia, thyroid ,,,,,even got ultrasound to check for pcos but never had any symptoms (the women given the ultrasound said i shouldn’t have even been referred their)

Every time i went to the docs it was a different GP wanted this test before i got referred...and it took just under 2 years

How was your SA?

I had had a lot of bloods done and an ultrasound for PCOS before I was referred. I have MOST of the symptoms of PCOS but they could only find one ovary which was normal during the US. I was referred when I had been TTC just over a year. I have very irregular cycles so I had been dealing with the doctor from early on, plu i have other health issues so had to talk to doc about medications etc before i started TTC.

Hubby's SA came back "normal"...thats all we know. They haven't mentioned him haivng to do a second. The FS only asked for one lot to be done before they seen us ...maybe due to the fact we already have a son together and we know i am more than likely to be the problem ..pass.

My DH found the SA experience really bad, he said there was nothing discrete about how they managed things at the hospital and he found it really embarrassing. I hope the your OH's next SA goes ok honey, those tubs were small to be fair lol x

 

[babypink2010]

Yes had a good laugh when he came out telling me about the laminated explicit cards,,lol I think somehow that made it worse for him not sure if it was the laminated part lol,
The second time i went to asdas,, i figure i could find a funnel, and by chance i did like a mini 1 but he would not take it in he was to embarrassed,,, if it were me i wid have taken 10 if it mean it was done properly all this waiting,,,,
But we have referral to FS which is the main point, what makes you think you have pcos? Do you have irregular cycles? Let me know how your appointment goes, Nice to keep in touch with folk in your area at the same hospital,
X

 

[Justwantababy]

Hey hon.

I'd already started on clomid after my private appointments.

I'd had rubella checked when we first started ttc in august last year, then went back to the GP in march this year cos my periods hadn't come back after stopping bcp. So she did one set of bloods, then referred me on to ERI. Then I realised I had health insurance, so got the same GP to make a second referral to the Spire murrayfield. They did more bloods&an ultrasound scan, and on the back of that diagnosed pcos. By then I'd used all my private healthcare allowance, so I got the consultant to write to my GP suggesting she prescribe progesterone and clomid, so I started that in June/July.

My 1st app at the ERI was good. They scanned me and found a potential follicle,got me on the list for an hsg to check my tubes (this has come thru for 15 Sep), and got me to come in for another scan 5 days later to check my follicle. It hadn't grown much so they're getting me in again tomorrow for one more look before getting me started on the next dose of clomid. I'm also going to ask what the IVF wait is like, just in case, so will let u know.

Sorry, bit of a rambling post!

 

[Lisa2701]

Yes had a good laugh when he came out telling me about the laminated explicit cards,,lol I think somehow that made it worse for him not sure if it was the laminated part lol,
The second time i went to asdas,, i figure i could find a funnel, and by chance i did like a mini 1 but he would not take it in he was to embarrassed,,, if it were me i wid have taken 10 if it mean it was done properly all this waiting,,,,
But we have referral to FS which is the main point, what makes you think you have pcos? Do you have irregular cycles? Let me know how your appointment goes, Nice to keep in touch with folk in your area at the same hospital,
X

Yeah its funny, you kinda get the feeling that everyone is a million miles away when you are on here. You don't come across many people who live in your area.

OH no... DH never mentioned the laminated cards ... he did mention the old woman who showed him into a room, very uncomfortably explained the obvious while pointing out dirty mags, and the fact that he was aware of a mum and child standing right outside the door while he was DTD whic he found really off putting. He was really upset by the whole thing.

Great idea about the funnel....could he not take a bag in with him or something to put the funnel in?

AS for the PCOS - I have long irregular cycles, long heavy periods, excess hair, I am over weight, I have acne, plus my bloods showed that i have low levels of SHGB which I believe is a possible sign of PCOS as it had something to do with testosterone? My GP said that the scan came back normal but they could only see one ovary....which I don't understand...how can they be sure its normal if they can only see one ovary . Decided to wait and speak to FS about it.

 

[babypink2010]

Justwantababy: - Your luck yo have private health care at your work and got a diagnosis fast, Good luck with the clomid hope it makes you ov ok,
Let me know how your hsg goes, really want to get my tubes checked. I think the waiting list for ivf at the eri is actually 2 and a half years, thats ages England its 3 months, I might consider moving down lol,

Lisa: -You do get that feeling its nice to know your not alone in the area.
I know I do feel for them, it must have been worse if he knew a mum and child were not far away,,, it must be uncomfortable but am sure we will get our fair share of the feeling....
He was 2 embarrassed to take it but next time we will do it in the house I think,
With PCOS I have heard you get a craving for carbs as well, they might prescribe you clomid to regulate your periods and make you ov, I wonder why they could only see 1 ovary did they say? It is a bit strange how that would be normal unless it was hiding behind something? If thats possible,

 

[Lisa2701]

Justwantababy: - Your luck yo have private health care at your work and got a diagnosis fast, Good luck with the clomid hope it makes you ov ok,
Let me know how your hsg goes, really want to get my tubes checked. I think the waiting list for ivf at the eri is actually 2 and a half years, thats ages England its 3 months, I might consider moving down lol,

Lisa: -You do get that feeling its nice to know your not alone in the area.
I know I do feel for them, it must have been worse if he knew a mum and child were not far away,,, it must be uncomfortable but am sure we will get our fair share of the feeling....
He was 2 embarrassed to take it but next time we will do it in the house I think,
With PCOS I have heard you get a craving for carbs as well, they might prescribe you clomid to regulate your periods and make you ov, I wonder why they could only see 1 ovary did they say? It is a bit strange how that would be normal unless it was hiding behind something? If thats possible,

Yeah I really felt bad for him, but I've had my fair share of stuff I found embarrassing or painful. I am TERRIFIED of needles, and I have had so many bloods ran and a lot of them double checked. Got bloods on tuesday now that I think of it. Plus I've had a smear test and an internal ultrasound which was both embarrassing and very uncomfortable, so I decided that he'd have to just suck it up and deal with his embarrassment ... i know I'm cruel

The doctor said "the ovary might just be hiding behind something". Which is fine, I can believe that, but surely they can't completely rule out PCOS if they can't see both ovaries. Plus my SHGB came back low which I believe "could" be a sign of PCOS . Decided that I'd just wait and speak to FS about it as my doctor feels she's done everything she's "obliged" to . I highly doubt they will prescribe me clomid due to my weight. I carry a lot of extra weight so I highly suspect they will tell me go away and loose some crazy amount of weight

How long have you been TTC hon?

 

[KJM2]

Hi
we were seen at ERI the initial wait for first appointment was 3 months. We were eventuallly classed as unexplained. UNfortunatley Lothian has one of the worst waiting times for IVF. We were told as we were unexplained we have to have been trying for 3 years to even go on the waiting list then its a 3 year wait!!!/

You can self fund at ERI the wait for this was about 8 months (slightly chaeper than going privatley). We decided to go the Spire at Shawfair which has no wait- amazingly I conceived naturally after 2 and 1/2 years of trying the month before we were due to start IVF.

 

[Lisa2701]

Hi
we were seen at ERI the initial wait for first appointment was 3 months. We were eventuallly classed as unexplained. UNfortunatley Lothian has one of the worst waiting times for IVF. We were told as we were unexplained we have to have been trying for 3 years to even go on the waiting list then its a 3 year wait!!!/

You can self fund at ERI the wait for this was about 8 months (slightly chaeper than going privatley). We decided to go the Spire at Shawfair which has no wait- amazingly I conceived naturally after 2 and 1/2 years of trying the month before we were due to start IVF.

Ohh I had no idea you could self fund. Could you self fund something like clomid if the FS thought it would be beneficial for you? The reason I ask is i believe Clomid would benefit me as i don't ovulate regularly but due to my weight I doubt the FS will give me it when I go him/her... DH and I have spoken about maybe going private if the FS wouldn't help us, so this would be something we'd consider if we had the option?

I understand that plus size ladies sometimes don't respond the same as other ladies but surely if i am paying for it then its my risk to take?? Well thats what i'm hoping anyway...

 

[KJM2]

really not sure about clomid, I wouldnt think so as they would just precribe it if they thought you needed it. The self funding was only for IVF treatment i.e so you basically jump the queue

 

[KJM2]

oh and if you were to go privatley to spire its the same consultant as at ERI

 

[Lisa2701]

Thanks honey

Things is I carry a lot of extra weight so even if i do need clomid, I seriously doubt a FS would prescribe me it without me loosing weight first.

Anyways, we will see what happens. Hoping to get an appointment through soon. Was referred in April, so shouldn't be much longer, think DH SA held things up as he took his time "gettin round to it"

 

[KJM2]

I would phone them and ask how much longer you will have to wait - I did that and there were able to give an indication. The waiting between the appointmnets was something I found hard- all the best and good luck.

 

[babypink2010]

Justwantababy: - Your luck yo have private health care at your work and got a diagnosis fast, Good luck with the clomid hope it makes you ov ok,
Let me know how your hsg goes, really want to get my tubes checked. I think the waiting list for ivf at the eri is actually 2 and a half years, thats ages England its 3 months, I might consider moving down lol,

Lisa: -You do get that feeling its nice to know your not alone in the area.
I know I do feel for them, it must have been worse if he knew a mum and child were not far away,,, it must be uncomfortable but am sure we will get our fair share of the feeling....
He was 2 embarrassed to take it but next time we will do it in the house I think,
With PCOS I have heard you get a craving for carbs as well, they might prescribe you clomid to regulate your periods and make you ov, I wonder why they could only see 1 ovary did they say? It is a bit strange how that would be normal unless it was hiding behind something? If thats possible,

Yeah I really felt bad for him, but I've had my fair share of stuff I found embarrassing or painful. I am TERRIFIED of needles, and I have had so many bloods ran and a lot of them double checked. Got bloods on tuesday now that I think of it. Plus I've had a smear test and an internal ultrasound which was both embarrassing and very uncomfortable, so I decided that he'd have to just suck it up and deal with his embarrassment ... i know I'm cruel

The doctor said "the ovary might just be hiding behind something". Which is fine, I can believe that, but surely they can't completely rule out PCOS if they can't see both ovaries. Plus my SHGB came back low which I believe "could" be a sign of PCOS . Decided that I'd just wait and speak to FS about it as my doctor feels she's done everything she's "obliged" to . I highly doubt they will prescribe me clomid due to my weight. I carry a lot of extra weight so I highly suspect they will tell me go away and loose some crazy amount of weight

How long have you been TTC hon?

I have been ttc for 2 years nearly,, it feels like longer How long have you been TTC?

I think the test you gets can also be down to the doc/nurse doing them, My ultrasound went great, with the nurse doing it was really good chatting away which was good keeps my mind away from whats shes really doing lol

What our your cycles like? To be honest I was convinced i had PCOS before i had my ultrasound, the craving for carbs/extra hair but got the all clear...
Now I am convinced its my tubes lol,,,,The way i figure it tho is the doctor doesnt know your body as well as you do, so defo mention it to FS,

Whats you BMI at the moment? I know they say you cant get clomid if you BMI is higher then 30 or something but every FS is dif, I am currently on slim fast, I know its not the greatest diet but i wanna lose 2 stone (on saying that my hubby just called for a pizzahut ooops) I tend to diet more mon-fri,

My plan is to walk in my appointment and not come out without a hsg, sa & a follow up appointment,,lol,,In a nice way, I have heard on forums about people getting turned away because of weight/age/not trying long enough,
I am not letting it happen to me, its the NHS i pay for it with national insurance making sure i am getting looked into,

Sorry for the rant, this wait it getting to me I looked at the time i was reffered in my calander it was only a week ago

How long you think we have left? I am going to phone the ERI next Friday to confirm they have the docs refferal and see if i can get an average waiting time,,,never ken eh?