Fluid around the brain...possibly hydropcephlaus.Update. Page 2.

[Izzy'smummy]

Hi

I have been following your thread and thought that I would share my story.

Izzy was born Dec 07 weighing a whopping 10lb 9oz , her HC was 38cm at birth. At her 6 week check it had gone up to 42cm! We were refered to the paediatician at our local hospital where it was found she had enlarged lateral ventricles- they gave us a diagnosis of Benign External Hydrocephalus (BEH). We were also refered to a Neurosurgeon who agreed with the diagnosis and stated that apart from requiring a larger hat if she was to become a model there would be no other problems!!!!!!

Izzy is now just over 2 and developmentally she is fine, even a little brighter than her peers.She still has a big head but as she a big girl anyway!

I hope this may help you as I remember being so worried at the time before diagnosis.

https://www.facebook.com/home.php?#!/album.php?aid=144827&id=678186337

If you would like to see some pics of Izzy now I have posted a link above.

HTH

Love Ellie xx

 

[Gabrielle]

Hi

I have been following your thread and thought that I would share my story.

Izzy was born Dec 07 weighing a whopping 10lb 9oz , her HC was 38cm at birth. At her 6 week check it had gone up to 42cm! We were refered to the paediatician at our local hospital where it was found she had enlarged lateral ventricles- they gave us a diagnosis of Benign External Hydrocephalus (BEH). We were also refered to a Neurosurgeon who agreed with the diagnosis and stated that apart from requiring a larger hat if she was to become a model there would be no other problems!!!!!!

Izzy is now just over 2 and developmentally she is fine, even a little brighter than her peers.She still has a big head but as she a big girl anyway!

I hope this may help you as I remember being so worried at the time before diagnosis.

https://www.facebook.com/home.php?#!/album.php?aid=144827&id=678186337

If you would like to see some pics of Izzy now I have posted a link above.

HTH

Love Ellie xx

Thank you for your story, It was nice to hear something positive.

A few questions, how long did the neurosurgeon follow Izzy. Do you know where her head is on the growth charts at this point?

I think my situation is a bit different, since Jack has had two different brain bleeds plus the extra fluid as well as torritcollis and placelogeonaly.

Thanks again for sharing!

 

[Izzy'smummy]

The doctors think Izzy's Increased head size may have happened due to a traumatic birth! Her head is 2cm above the 98th centile and has remained there since 6 weeks! She is now being followed up yearly by the paediatricians.

I have confirmed you as a friend on facebook.

I also have a 7 month old baby girl.

Please continue to ask any questions that you feel are relevent.

Love Ellie xx

 

[Luzelle]

I have just read your story. You are such a great mom. Hope everything works out well for Jack and your family. Thanks for sharing.