for those familiar with asd diagnosis

[alibaba24]

Hi all . I feel like i havent stopped posting in here recently apologies

Just a quick run down at the begining of last year the nursery flagged up some concerns to me that my daughter does not socialise with peers nor does she like routine change. while i agreed her socialising was not great i never had the routine issue with her. at that period she also seem to display some sensory issues with things like hoover /washing machine but these were minor in the fact she would insist i shut the kitchen door there was no meltdowns. she also went through a phase of HATING window wipers in the car after she nearly went through the roof when i accidently put them on a dry window with a rusty wiper (you know that awful noise like nails on a chalkboard) it took a few months of me not being allowed to use wipers thank god it was summer. Iv noticed as her language has developed he sensory issues are all but gone the only one remaining is the public toilet scenario she calmly covers her ears in preporation when we are out. she said she needs the toilet then immediately covers her ears no crying or upset though. the min she is out she takes her hands away . this stemmed from a hand dryer incident after that she just wrote public toilets off as torture chambers lol.

so she was reffered through her gp to the child development clinic. first appointment doctor said she did not seem autistic to her but we would see her back anyway. she had a griffith assesment age 4 and a half where she was rather delayed in alot. however I knew she had the capabilities and only about 6 weeks after she was doing the tasks herself. we were told we would be seen again in 6 months

fast forward to now 9 months later and I have recieved a letter from her doctor to see my daughter again in march (was supposed to be december) the letter states that she has her reports from salt and she seems to be making good progress although still has significent difficulty with language understanding. she has my gars 2 and the nurseries gars 2 and mine came back low risk for asd and the nurseries said high risk for asd. this is it word for word "this means things are not straightforward. the descriptions of her (name) warm interactions and smiles along with the scores may point more toward her understanding as being the main cause for her difficulties, rather than Autism. It is important to keep an open mind though"

the rest of the letter goes onto say the main thing is she is supported this letter shows she does not have her ed physc report or aware that she now has an IEP in place.

plan

i have to do another gars2 so there is an up to date one for when we have our next appointment and a more in depth questionaire on her first years of life.

I really don't know what to make of this It still is not stating if she is going to have the ADOS. I know for a fact the nursery have seen a huge turnaround in her and have openly said to me shes coped very well with all the different routine changes over the festive period taking part in the nativity. the xmas party the signalong she loved santa she loved the visiting clown etc . she will sit for circle time now shes listening and talking more and in context but it doesnt say the n ursery will be asked to do another gars2 even though the 1 from them in well out of date

so sorry this is so long but I have spent the last 12 months fretting and analysing my poor daughter which has done neither of us any good at all. and I feel like im still no closer to anything

has anyone else had this . is there a chance she wont get the ados?

her very first speech therapy app she told me theres a crossoever in autisic behaviour and language delayed behaviour

she really is like a different girl this past year she has just turned 5 last month

sorry if this is all out of order just wanted opinions

also my gars2 is different to my first because she pretty much has scored 0 For everything bar the language and her use of pronouns etc. also the section that states first 3 years of life her imaginative play was later to develop she was just turning 3 when she started and even then it was not consistent. she is full of imaginative play all the time now though

 

[Starry Night]

No answers but I feel your confusion. I keep hearing about the warning signs about autism and my son SEEMS to be missing some key red flags and having issues with routine changes is one of them. I mean, I've always known he PREFERS routine and, as a baby, I found I could only do two "off-routine" days a week to prefer having a cranky baby for the next week (took him a long time to resettle). But when we have to go into the city or do something he's usually really good about it.

Meltdowns are rare. He sleeps well. No apparent stomach issues (though he is an extremely picky eater) He has shown some sensory issues such as being afraid of public restrooms, hates having his ears fiddled with, nail clipping is a two-person job and is now very picky about what clothes he wears (hates zippers, buttons and denim) but that is a new development. But at the mall he does fine, loves the play plac there even though it's filled with strange and very loud kids, loves meeting new people and is obvioius he wants to have friends even though he seems introverted at times. He likes his alone time. But I'm an introvert so I've often overlooked that

 

[RachA]

You know that our two seem to be quite similar!
We specifically asked at one of her checks if they were suspecting autism and they said no so we were relieved. However she did have various pointers towards it but as she grew and started being able to interact with peers these went and we were just left with the speech and language issues.
So it is possible that your daughter may just have a speech issue. I didn't realised how much impact having speech issues actually had on social skills!

One thing I would say is that being told it's not autism will actually give you more questions to some extent. We have no diagnosis for Esther so it's really hard to explain what's the matter. Everyone just assume she's shy.

 

[alibaba24]

No answers but I feel your confusion. I keep hearing about the warning signs about autism and my son SEEMS to be missing some key red flags and having issues with routine changes is one of them. I mean, I've always known he PREFERS routine and, as a baby, I found I could only do two "off-routine" days a week to prefer having a cranky baby for the next week (took him a long time to resettle). But when we have to go into the city or do something he's usually really good about it.

Meltdowns are rare. He sleeps well. No apparent stomach issues (though he is an extremely picky eater) He has shown some sensory issues such as being afraid of public restrooms, hates having his ears fiddled with, nail clipping is a two-person job and is now very picky about what clothes he wears (hates zippers, buttons and denim) but that is a new development. But at the mall he does fine, loves the play plac there even though it's filled with strange and very loud kids, loves meeting new people and is obvioius he wants to have friends even though he seems introverted at times. He likes his alone time. But I'm an introvert so I've often overlooked that

Same with my daughter she is a great sleeper we luckily have no issue with clothes though. I am an introvert and her father is not exactly sociable person either so not sure if she gets it from us

 

[alibaba24]

You know that our two seem to be quite similar!
We specifically asked at one of her checks if they were suspecting autism and they said no so we were relieved. However she did have various pointers towards it but as she grew and started being able to interact with peers these went and we were just left with the speech and language issues.
So it is possible that your daughter may just have a speech issue. I didn't realised how much impact having speech issues actually had on social skills!

One thing I would say is that being told it's not autism will actually give you more questions to some extent. We have no diagnosis for Esther so it's really hard to explain what's the matter. Everyone just assume she's shy.

I really had no clue about the impact it has on the social skills either or even just being able to understand their day. I would say my daughters flags are all but gone now her language understanding is starting to improve. There's a definite crossover between language disorders and asd. My daughter had iugr and had poor blood flow in the womb she was only 3lb 3oz at birth so I'm still wondering if this is the cause of her difficultie

 

[Starry Night]

My son had restricted blood flow and IUGR too. However, he had been measuring in the 97th percentile at the beginning of the 3rd trimester and was in the 40th by full term so he was still a healthy-seeming 6 1/2 pounds. But much smaller than he had been initially tracking and he was very long and skinny. My daughter was a good 2 pounds heavier than him at birth and a full inch shorter. She's tracking on schedule so far.