Has anyone ever had Pleurisy?

[eve21]

Yesterday i started having sharp pains in my chest its like its going under my rib & down one side of my back (right side)

Its sore when breathing & talking i feel a bit out of breath.

Im gonna go to my doc tmw, its a bank holiday so might ave to go to a&e if no docs are open. Also to add i dont have the flu or coughin or anything i just started getting a pain all of a sudden & its been constant over a day now.

Thanks for reading

 

[starsunshine]

My dad had it and was much worse than how you describe yourself. Go to the doctors but don't jump to conclusions.

 

[luz]

i get it all the time. i don't think there is really much you can do about it since it is just an inflammation of the lining of your lungs. It is incredibly painful but usually with rest it goes away. . . sometimes after a few days. good luck!

 

[petitpas]

Did you get it checked out?
Something like this could be completely harmless but it is best to get more serious reasons ruled out.

 

[eve21]

Thanks for your replys. It turned out to be a blood clot in my lung, was lucky to go to hospital when i did

 

[petitpas]

Oh Eve, that's exactly what I was worried about but I didn't want to scare you

I've been through it and it took a long time to recover from but I did. Try not to push yourself too much right now and accept all the help you are offered

 

[eve21]

Oh Eve, that's exactly what I was worried about but I didn't want to scare you

I've been through it and it took a long time to recover from but I did. Try not to push yourself too much right now and accept all the help you are offered

Oh did you? Im so drained & weak i ave loads of help at the min. How long did the painshortness of breathe last? Its so scary i cant stop cryin xx

 

[starsunshine]

Thanks for your replys. It turned out to be a blood clot in my lung, was lucky to go to hospital when i did

I'm so sorry get lots of rest and make sure someone is looking after you

 

[eve21]

Thanks for your replys. It turned out to be a blood clot in my lung, was lucky to go to hospital when i did

I'm so sorry get lots of rest and make sure someone is looking after you

Thanks a mill. Ive loads of help boyfriend & family been great. Im still shocked. Thanks for replyin xx

 

[petitpas]

Eve, it's very scary at first and it takes a while to get to grips with what happened
I think I went back to A&E four times in the following few months. They were very nice and checked me over each time. Apparently, it is very common to be anxious about it happening again. Also, there is of course the risk although when you are properly anticoagulated it is rare to suffer another clot.

I was very weak and short of breath at first and often got dizzy due to low blood pressure. I felt very slow and my concentration was terrible! I could barely make myself a cup of tea without being out of breath and I struggled with stairs.

I was signed off for four weeks and then went back to work but in retrospect I should probably have discussed a partial return as I really struggled physically when I went back, even though I was mostly sat at my desk

Things did gradually improve, though, and I became less anxious with time. I got married four months after my diagnosis (multiple bilateral pulmonary emboli) and that distracted me a lot!

I am sorry to read that your are so upset but in a way I think it is good that you are dealing with it head on. I was very blase at the time and it only dawned on me later in what danger I had been (I was misdiagnosed for a long time). I guess that explains why I kept going back to A&E... It took me a long time to deal with what had happened.
There are things you can do to help. If you have a DVT I can definitely recommend getting the right stockings prescribed and fitted. Research suggest that wearing them for two years significantly reduces the risk of a further dvt and also long term damage such as with post thrombotic syndrome. There are some pretty ones available, although they are pricey. Thank goodness Christmas is coming up
There is a wonderful charity called Lifeblood: The Thrombosis Charity, which you can connect with. They have a facebook presence, too, where a lot of younger people chat and give each other advice. Equally, there is a facebook group called pulmonary embolism survivors, which is very supportive. Just don't let the one or two extreme cases of recurrent clots scare you as those are very rare!
I like to think of my mother who suffered a dvt 33 years ago after giving birth. She now takes precautions and has not suffered another clot since. Even though she has a clotting gene (as do I).
In my case I was diagnosed five years ago. Since then I have had seven surgeries, am on my eighth pregnancy and have made four transatlantic journeys. I always take precautions and have not had a reoccurence.

Unfortunately, I cannot comment on your pain. I was lucky in that my lung clots were painless. My leg was a bit uncomfortable but more because it was swollen behind the knee and I couldn't bend it.
I did find it easier to sleep propped up with several pillows. Lying flat made breathing harder.

I hope you start to feel better soon. Both physically and emotionally! It can take a while to recover but you should find moving around easier soon. Don't let your help go, though. Keep them for as long as possible!

 

[luz]

that is so scary!!! I'm glad you went and got it checked out.

 

[eve21]

Eve, it's very scary at first and it takes a while to get to grips with what happened
I think I went back to A&E four times in the following few months. They were very nice and checked me over each time. Apparently, it is very common to be anxious about it happening again. Also, there is of course the risk although when you are properly anticoagulated it is rare to suffer another clot.

I was very weak and short of breath at first and often got dizzy due to low blood pressure. I felt very slow and my concentration was terrible! I could barely make myself a cup of tea without being out of breath and I struggled with stairs.

I was signed off for four weeks and then went back to work but in retrospect I should probably have discussed a partial return as I really struggled physically when I went back, even though I was mostly sat at my desk

Things did gradually improve, though, and I became less anxious with time. I got married four months after my diagnosis (multiple bilateral pulmonary emboli) and that distracted me a lot!

I am sorry to read that your are so upset but in a way I think it is good that you are dealing with it head on. I was very blase at the time and it only dawned on me later in what danger I had been (I was misdiagnosed for a long time). I guess that explains why I kept going back to A&E... It took me a long time to deal with what had happened.
There are things you can do to help. If you have a DVT I can definitely recommend getting the right stockings prescribed and fitted. Research suggest that wearing them for two years significantly reduces the risk of a further dvt and also long term damage such as with post thrombotic syndrome. There are some pretty ones available, although they are pricey. Thank goodness Christmas is coming up
There is a wonderful charity called Lifeblood: The Thrombosis Charity, which you can connect with. They have a facebook presence, too, where a lot of younger people chat and give each other advice. Equally, there is a facebook group called pulmonary embolism survivors, which is very supportive. Just don't let the one or two extreme cases of recurrent clots scare you as those are very rare!
I like to think of my mother who suffered a dvt 33 years ago after giving birth. She now takes precautions and has not suffered another clot since. Even though she has a clotting gene (as do I).
In my case I was diagnosed five years ago. Since then I have had seven surgeries, am on my eighth pregnancy and have made four transatlantic journeys. I always take precautions and have not had a reoccurence.

Unfortunately, I cannot comment on your pain. I was lucky in that my lung clots were painless. My leg was a bit uncomfortable but more because it was swollen behind the knee and I couldn't bend it.
I did find it easier to sleep propped up with several pillows. Lying flat made breathing harder.

I hope you start to feel better soon. Both physically and emotionally! It can take a while to recover but you should find moving around easier soon. Don't let your help go, though. Keep them for as long as possible!

Thank you so much for ur lovely msg & taken the time to write it & explain ur story. Im feeling a lil less teary now, and trying to be hopeful that will heal soon. They are testing me to see if i have a blood clottin type of blood i cant remember the name but i got 10 blood tests to rule out stuff. My mam, sis (also when she was 24) my nannys, aunties all had clots so it is in my family. Its very scary keep thinkin what if i hadnt of went the hos, but very thankful i did. I hope u had a good recovery, must of been very scary for you too. How long ago was it when that happened to you? Thanks for suggesting the groups, i will look for them.

Hope u had a nice Halloween, Thanks again

xx

 

[eve21]

that is so scary!!! I'm glad you went and got it checked out.

Thanks you

 

[petitpas]

Eve, it sounds like your are getting over the initial shock
My clots happened a little over 5 years ago. I've been for a few checkups since and had two scares, most recently this summer when I had trouble breathing but apart from that I'm generally fine. As you can see, I'm cooking my second child since then and all I have to do is take my injections and aspirin as a precaution.

Wow, you must have a clotting gene in the family with that history! Has nobody else in the family been tested? It's probably worth asking around, especially those who clotted recently. They keep discovering new clotting genes, too, so maybe they will discover something with your tests that they couldn't test for when your family members clotted in the past.

Did they take the blood for your testing before you started on the blood thinners, btw? If not, then you may need more tests/retesting when you come off them.

 

[eve21]

Eve, it sounds like your are getting over the initial shock
My clots happened a little over 5 years ago. I've been for a few checkups since and had two scares, most recently this summer when I had trouble breathing but apart from that I'm generally fine. As you can see, I'm cooking my second child since then and all I have to do is take my injections and aspirin as a precaution.

Wow, you must have a clotting gene in the family with that history! Has nobody else in the family been tested? It's probably worth asking around, especially those who clotted recently. They keep discovering new clotting genes, too, so maybe they will discover something with your tests that they couldn't test for when your family members clotted in the past.

Did they take the blood for your testing before you started on the blood thinners, btw? If not, then you may need more tests/retesting when you come off them.

Ye i think im getting my head around it now. I can see, Congrats by the way, how are u feeling? Are u taken injections during ur pregnancy? I was told not to get pregnant for awhile until they know results of my tests, i had a m/c in the past & they think it could of been my blood type that caused it. But i did have a healthy daughter after it which im so happy about.

Yes, looks like my family have that gene alright, aswel as high blood pressure etc. I got the blood tests while taken the blood thinners, was only on them a few days. Im taken Rivaroxaban, have u ever heard of them? there only newish i believe.

 

[petitpas]

Yes, I've heard of the meds you are on. You don't need constant monitoring, like with warfarin What are they like? Do you notice any side effects?

I had to wait for a while before getting pregnant, too. They wanted to make sure I was healed enough before putting new stress on my body. I waited 11 months and then fell pregnant immediately. I already knew about my clotting gene as my sister and mother were tested in the past and then I got tested the year before my clots.
When I came off the warfarin I was retested for antiphospholipid syndrome. That's an acquired clotting factor, rather than a genetic one.

It depends on the outcome of your tests whether you can stop treatment after approximately six months or whether you need them long term. Because I have just one clotting gene I came off the meds but have to take precautions in risk situations such as pregnancy, surgery or long flights. Right now I am on injections twice a day plus aspirin.

Clotting genes can cause recurrent miscarriages but ironically the treatment is the same as preventative treatment after suffering a clot so it doesn't matter really what your tests say - you'll be on the same treatment anyway
I suffered from recurrent miscarriages for another reason (immune issues) so please don't let my story worry you. It is quite common for women to go and get pregnant after suffering from lung clots or dvts. In my hospital alone they usually have three or four at any one time. There is an NHS procedure for it. You can find it online by searching 'green top guidelines VTE prevention'.
I have a lovely son who was born at 38w by planned section and we are currently aiming for a 39w planned section with my current pregnancy. So far, I am feeling good and the injections really don't bother me at all. So, if you are planning more children for the future, then don't worry at all. It isn't a problem. Also, heparin doesn't cross the placenta so it won't even affect your baby!

 

[eve21]

Yes, I've heard of the meds you are on. You don't need constant monitoring, like with warfarin What are they like? Do you notice any side effects?

I had to wait for a while before getting pregnant, too. They wanted to make sure I was healed enough before putting new stress on my body. I waited 11 months and then fell pregnant immediately. I already knew about my clotting gene as my sister and mother were tested in the past and then I got tested the year before my clots.
When I came off the warfarin I was retested for antiphospholipid syndrome. That's an acquired clotting factor, rather than a genetic one.

It depends on the outcome of your tests whether you can stop treatment after approximately six months or whether you need them long term. Because I have just one clotting gene I came off the meds but have to take precautions in risk situations such as pregnancy, surgery or long flights. Right now I am on injections twice a day plus aspirin.

Clotting genes can cause recurrent miscarriages but ironically the treatment is the same as preventative treatment after suffering a clot so it doesn't matter really what your tests say - you'll be on the same treatment anyway
I suffered from recurrent miscarriages for another reason (immune issues) so please don't let my story worry you. It is quite common for women to go and get pregnant after suffering from lung clots or dvts. In my hospital alone they usually have three or four at any one time. There is an NHS procedure for it. You can find it online by searching 'green top guidelines VTE prevention'.
I have a lovely son who was born at 38w by planned section and we are currently aiming for a 39w planned section with my current pregnancy. So far, I am feeling good and the injections really don't bother me at all. So, if you are planning more children for the future, then don't worry at all. It isn't a problem. Also, heparin doesn't cross the placenta so it won't even affect your baby!

Have u? Im finding them grand, i was worried because everyone takes Warfain & these tabs are only newish but ive had no side effects so far (touch wood)

Im glad u got pregnant & everything is going well for u, i was afraid i mightin be able to get pregnant again. There testing me for Factor v leiden & other stuuf. Did u get that test? Im wonderin if i have it will i be able to get pregnant. I was just in shock that when the told me all this i didn really ask questions, all i said was will i be ok. but now ive questions, i will say it at my next appointment.

Im sorry for your recurrent miscarriages That couldnt of been easy for u. Hope ur planned section goes well for u I also had a section on Leah (she was breech) So knowing u had a clot & got pregnant again & having a section gives me hope i can do the same

xx

 

[petitpas]

I never had any problems getting pregnant and I am factor v Leiden heterozygous. As far as I know the clotting factors don't really affect fertility. I've read about the miscarriage risk but that is mainly if you don't know you have it. You'll be on the treatment anyway so your miscarriage risk will be the same as any healthy person.

The best really is to write all your questions down when you think of them. I had a very long list for my poor consultant when I had my first follow up

 

[eve21]

Oh really, The impression i got was not to have kids & i would really like another one. Im so glad ive talked to u xx

 

[petitpas]

Not at all! Unless you suffer from lasting damage/complications from the clots, of course. But otherwise, it is quite common. If you are on facebook I can really recommend joining the pulmonary embolism survivors page. (It's closed, btw, so your friends won't be able to see your posts)
Women on there often discuss the same question, whether to have a baby after or not, and the responses by women like me who have gone on to have babies are very useful!

You just have to plan it a bit more than you would a 'normal' pregnancy. You need to have your doctors on board and instructions sent to your Gp so you can start the heparin injections as soon as you are pregnant rather than waiting to be booked in and then referred. I am guessing that you'll also have to be off the anticoagulant you are on now as the safety in pregnancy is not known.

Suffering from clots sucks and it can take a long time to recover but it doesn't automatically mean your childbearing days are over