hyperemesis sufferers unite!

[LizziesMama]

No, I can't get help like that, but I do have a ton of family. It's working out ok. Honestly, I'm not interested in socialized healthcare. There are down sides to the way we do it here, but there are lots of benefits too. I don't think it will ever happen in the u.s. I can get into any dr, specialist, surgeon etc. in a weeks time just by calling them directly fort an appointment. And in Houston we have one of the top medical centers in the country. Granted, I have always been blessed with an employer who provides excellent insurance and note everyone is that lucky.

I'm feeling decent today though. I actually had them reduce my dose of zofran and I'm going to try and get off the pump onto oral zofran.

 

[smacleod]

I've not been diagnosed with this... But I am sick every day. How does this effect baby developmentally?

 

[puppycat]

It doesn't affect baby hun. It affects mum as baby will take everything it needs from you leaving you with nowt. If you can't keep anything down for more than 24hrs you will need to visit your dr or local a&e. Look after yourself chick x

 

[smacleod]

Thanks, I've not lost weight and my 28 week scan was good. Just getting worried my poor diet will cause development problems for baby, just been started on iron and other supplements for anaemia and its got me thinking ...or worrying haha. I'm only sick maybe once a day and its usually heartburn tthat's the culprit!

 

[kirst76]

It can affect baby if you are left untreated for too long.
My dietician said it can cause all kinds of problems for baby if mum is malnourished.
Get yourself checked if you go longer than 24 hours without keeping food or water down at all.

 

[CarliCareBear]

No, I can't get help like that, but I do have a ton of family. It's working out ok. Honestly, I'm not interested in socialized healthcare. There are down sides to the way we do it here, but there are lots of benefits too. I don't think it will ever happen in the u.s. I can get into any dr, specialist, surgeon etc. in a weeks time just by calling them directly fort an appointment. And in Houston we have one of the top medical centers in the country. Granted, I have always been blessed with an employer who provides excellent insurance and note everyone is that lucky.

I'm feeling decent today though. I actually had them reduce my dose of zofran and I'm going to try and get off the pump onto oral zofran.

let me know how that goes!

 

[LizziesMama]

I'm feeling decent today though. I actually had them reduce my dose of zofran and I'm going to try and get off the pump onto oral zofran.

let me know how that goes!

I actually had a great day! Such a relief from barely moving and feeling like I was literally at deaths door for a solid seven weeks. I ate out for lunch and dinner, dropped off/picked up dd from school and popped in to look at some art work on display near my house. Stayed within 10 minutes off home too be safe.

I'm afraid to jinx it, but I think I'm getting better. I am nauseous now, but I'm chalking that up to a huge disgusting doses of milk off magnesia. The constipation is killing me! Ever since I took it I haven't felt really well. Hoping it's passed by morning!

I will go down in dosage every two days for about a week. If I get nauseous I'm supposed too take an oral zofran instead of a bolus. If that works we'll continue to weaning until I'm on completely oral meds. I'm at 0.500 as off now.

Please excuse the spelling errors. My phone calls that "autocorrect." Aka auto incorrect!

 

[CarliCareBear]

are you still feeling good lizziesmama? that would be awesome if you could get off the pump.

as for me i am in the hospital again. finally got my PICC line put in and am hoping to get the zofran pump hooked up to it so i can stop stabbing myself everyday.

the hospital has been a nightmare about getting continuous IV zofran and pain medicine for my pancreatitis. i have a stupid doctor who basically thought it was a good idea to give me 4ml of zofran and then wait 10 hours, withdrawling me from the medication i've built up in my system. not to mention took me off demerol because they "don't treat hyperemisis with pain medication", well duh, it's for pancreatitis.

i am getting so weary of having to explain myself over and over. trying to keep my baby in sight but this is all just getting to be too much.

 

[puppycat]

Sorry you're struggling so much chick. We're due date buddies

 

[kirst76]

Hugs Carlicarebear!

 

[LizziesMama]

So sorry to hear your back in the hospital And I can imagine having to wait that long for your zofran was miserable. I do better on the pump since it's always a slow drip. Even in the hospital those last hours before the next dose get icky.

I'm doing fair. I've had two reductions in medication and I'm finding myself nauseous again, but no vomiting. I got really brave and went shopping today. I desperately needed a casual pair of maternity pants. It was definitely overdoing it and I needed both available boluses today. I now feel half dead lying in bed and I don't think I have the energy to walk to the bathroom to pee.

All that being said, the fact that I was in the car so much, active and ate out twice today with no vomiting does show improvement from where I was. Just not as fast as I'd hoped. I may not get off this pump as quickly as I originally thought.

 

[LizziesMama]

Well, they pushed my dose back up after another day feeling bad, in spite of bedrest all day. Guess I won't be off this pump anytime soon afterall.

 

[hopefulmama2b]

Hi ladies, I just found this thread. I am going on week 6 of h.g. Those of you that are not on your first pregnancy- SUPER WOMEN!!!!!!!! At this point I can't imagine how I could ever do this again. HG has been absolute hell as you all know. I have a Zofran pump through Alere and it is helping, but still pretty miserable most of the time. I'm on .6- they recommended I go up because I have still been very ill, but trying to stay here for now and see how I do. My tummy is filled with huge painful nodules- I'm sure like your guys' as well. Good to see there's other people going through the same thing.

Anyone dealing with excessive saliva on top of hg? I just started 2nd trimester & it still isn't gone. Candy, gum, & sunflower seeds do not help any other suggestions would be nice.

Me, me, me!!! Isn't it the worst!?!?! It gags me and makes me vomit. I keep a trash can by my bed so I can spit. It so stinking disgusting! One of the dieticians from Alere (do you US girls have your pump through them?) told me cinnamon gum helps and she's right! I have a really bad aversion to anything mint so I was glad when she said cinnamon. Problem is it just helps for a while, but still it brings some relief!! I had a scopolamine patch for one night. It immediately dried me up, but also made me dizzy with blurry vision so I took it off.

I'm feeling decent today though. I actually had them reduce my dose of zofran and I'm going to try and get off the pump onto oral zofran.

YAY!!! I can't wait to reduce my dosage and get off this dang thing.

It doesn't affect baby hun. It affects mum as baby will take everything it needs from you leaving you with nowt. If you can't keep anything down for more than 24hrs you will need to visit your dr or local a&e. Look after yourself chick x

Hi Pups sorry to see you here.

Well, they pushed my dose back up after another day feeling bad, in spite of bedrest all day. Guess I won't be off this pump anytime soon afterall.

 

[puppycat]

Hey hopeful, i was shocked to you'd posted here the good news is i'll be 15 weeks tomorrow and sickness has definitely eased up majorly. Hope you girls get the same relief soon x

 

[pinkladyangel]

Hi ladies
Have just found this thread and I'm hoping you can help.
Firstly here's my story.
In my first pregnancy I had severe HG. I ended up in hospital for a week on an IV drip to rehydrate. After I came out of hospital my pregnancy was great and I went on to have a healthy baby girl.
My second pregnancy wasn't so good. From 8wks I suffered again but was only in hospital at 13wks overnight for rehydration and was given cyclizine for the sickness. When I came out of hospital and for the next few weeks I felt a little sicky but not enough to outweigh the side affects of the cyclizine, feeling extremely drowsy and needing to sleep (I work with children.).
It eventually went but I gave birth to my second daughter at 25wks and she only lived for 15 very precious days.
I'm now on my third pregnancy and once again The horrible feeling of nausea has returned. I'm 7wks and since finding out I was pregnant I've been drinking loads. My pee is virtually clear so surely it cant be hydration that is causing the nausea. I'm eating what I want and when I want but its getting harder and harder to force things down. I definitely dont want to end up in hospital again amd wondered if there was anything my gp could give me to stop the nausea before its too late. I'v tried vit b6 but it didn't work for me and neither do the usual ginger or travel sickness wristbands. Am off work today but really dont want to start taking time off now as I know that at 12wks I'm having a cervical stitch and would rather have my time then to rest.
Any help or advice would be great.
Many thanks.

 

[puppycat]

Hey hun. The ginger, wrist bands etc don't work for me either.
Can you get your gp to prescribe you some cyclizine as a preventative? I know you said it made you drowsy but you don't need to take quite so many if you aren't actually being sick yet and can take it before bed so the drowsy helps you out? I don't think anything really helps with HG, even the rehydration IV isn't to stop the nausea its to get the lost fluids back in so you don't suffer organ damage etc x

 

[coxy1978]

Hi ladies
Have just found this thread and I'm hoping you can help.
Firstly here's my story.
In my first pregnancy I had severe HG. I ended up in hospital for a week on an IV drip to rehydrate. After I came out of hospital my pregnancy was great and I went on to have a healthy baby girl.
My second pregnancy wasn't so good. From 8wks I suffered again but was only in hospital at 13wks overnight for rehydration and was given cyclizine for the sickness. When I came out of hospital and for the next few weeks I felt a little sicky but not enough to outweigh the side affects of the cyclizine, feeling extremely drowsy and needing to sleep (I work with children.).
It eventually went but I gave birth to my second daughter at 25wks and she only lived for 15 very precious days.
I'm now on my third pregnancy and once again The horrible feeling of nausea has returned. I'm 7wks and since finding out I was pregnant I've been drinking loads. My pee is virtually clear so surely it cant be hydration that is causing the nausea. I'm eating what I want and when I want but its getting harder and harder to force things down. I definitely dont want to end up in hospital again amd wondered if there was anything my gp could give me to stop the nausea before its too late. I'v tried vit b6 but it didn't work for me and neither do the usual ginger or travel sickness wristbands. Am off work today but really dont want to start taking time off now as I know that at 12wks I'm having a cervical stitch and would rather have my time then to rest.
Any help or advice would be great.
Many thanks.

Hi there!

Sorry to hear your story, particularly your loss, thats so very sad.
Im on my fourth pregnancy - all been HG! Was admitted for IV's for first 3 but this last pregnancy was very slightly better (though trust me I still suffered badly) I almost gave up on the cyclizine as could not keep my eyes open on it at first but thankfully someone encouraged me to keep going and reminded me that the cyclizine side effects wear off after a few weeks of taking it continuously. So i kept on and sure enough, a few weeks later i was able to function again whilst taking it. It only takes the edge off the sickness but any relief is better than none. Other than that, this time round, ive learnt that the blander and lower fat the food i eat - the less sicky I feel.
Even now, im 26 wks and if i have a day of binging out on crappy foods - guarentee not only awful heartburn but feeling nauseous again.

Good luck with this pregnancy and fingers crossed for a full term delivery! xx

 

[pinkladyangel]

Thanks puppycat and coxy.
Am really struggling at the mo. Will def make an appt to see gp for cyclizine. Didn't know that the side affects wear off after a couple of weeks. Have found that there are no foods imparticular that make it worse its just there constantly. Sometimes by 5pm I feel better but it always returns the next day. Have enough to worry about down the line without this. The only thing that keeps me going is that we'll hopefully have our rainbow at the end of it.
Thanks again ladies. It really does help hearing from others.
XXX

 

[puppycat]

I find it helps to take a cyclizine just before i get into bed and it makes the morning a little more bearable. I definitely notice if i havent taken it the night before x

 

[Pixoletta]

I really feel for you guys. I had Hyperemesis through all my pregnancy, i was in and out of hospital and pretty much lived on my sofa..Any motion made me puke. One thing i found that started to help was salt and vinegar crisps.

Fast forward to now, and i have a beautiful LO who keeps me on my toes. This is all worth it, though i know how hard and distressing it all is. PM me if you ever need support.

Hope you guys all get better soon.