hyperemesis sufferers unite!

[Pixoletta]

Feeling for everyone who has HG, for newbies i know it's horrible horrible stuff but as soon as bubs is born it goes away. *huge support to everyone*

 

[mummySS]

Having a really bad day, couldn't get out of bed this morning as felt so weak from not eating. My husband refused to bring me some cereal in bed as he said i'd spill it. We had a big row and he ended up picking me up and dragging me out of bed and really shouting at me for not eating enough. I have tried to explain so much that I simply cannot eat. He just doesn't get it. Feel so anxious and sick. So so weak, i can barely get up.

 

[shocker]

Having a really bad day, couldn't get out of bed this morning as felt so weak from not eating. My husband refused to bring me some cereal in bed as he said i'd spill it. We had a big row and he ended up picking me up and dragging me out of bed and really shouting at me for not eating enough. I have tried to explain so much that I simply cannot eat. He just doesn't get it. Feel so anxious and sick. So so weak, i can barely get up.

Big hugs hun, I'm sorry your having such a rough day and that your OH got angry, I still have these rows with OH but he's explained its just from worrying about my health and babies bit still you need him to understand your doing your best and who cares if you spill cereal in the bed!!! Him getting angry and dragging you out of bed is completely not on!!! Could you try some soup? I ate nothing but veg soup for weeks at one point and found it helped keep my strength up and also helped me introduce solid food again when I was ready (bread rolls with it etc) hope your feeling a little better

Today has been infuriating, I went to see my consultant today as the gp wanted me to have an iron infusion and also for them to prescribe more zofran as I only had a few days worth. First they left me waiting in the hospital for 3 and a half hours then I finally see her and she tells me she wants me off zofran straight away as there aren't enough studies done and she won't prescribe it, I told her my gp recommended it and I've done research myself!! She wouldn't have it so I said what are you pitting me on then and she said nothing, I want to take you off all the medications and see how you do wtf!!! Im still sick WITH the tablets, any time I've been off them I've ended up in the a&e! She said I'm much further along now its worth a try, she completely went against my gp! Then she refused the iron infusion as my blood test was 2 weeks old, she made me have another and said we'd do.it if that one came back low, wtf like, it'll take another two weeks to get the results of this one back and they know I can't keep down the tablets so how exactly is my iron supposed to magically improve!?! I'm so furious, I made an appointment with my gp for the morning to talk to her, this is a total joke! I hadn't been sick since I started them, still had bad nausea but not throwing up at least, and as soon as I got out I started being sick presumably from the stress!!

 

[mummySS]

Aww honey that is just not on! What a cow! Grrrr health care professionals who don't understand wind me up chronically. Was she young? it's usually the young and inexperienced ones who are scared to prescribe stuff. You need to call your GP asap! Can your gp not prescribe you with zofran or is it only available through the hospital?

Thanks for listening to my whinge. I will give veg soup a try! xxx

 

[shocker]

Aww honey that is just not on! What a cow! Grrrr health care professionals who don't understand wind me up chronically. Was she young? it's usually the young and inexperienced ones who are scared to prescribe stuff. You need to call your GP asap! Can your gp not prescribe you with zofran or is it only available through the hospital?

Thanks for listening to my whinge. I will give veg soup a try! xxx

and you mine! Do try, its hard to find anything you want to eat when its a bad day but anything at all helps as i find even if i am sick after eating something its a lot better than if i'd been sick from eating nothing as the empty retching really tears your stomach and if you can even eat it then lie down for an hour after you'll have gotten most of the nutrients at least!

My gp can prescribe it but I think she is also nervous of it as she told me shes only ever prescribed it once before as nobody really gives it out here and she said she'd only come across a handful of cases of hyperemsis her entire career! She cant do the infusion at her office thats why she had to refer to the hospital, I will speak to her in the morning about it all, both her and the consultant are quite young but at least the gp is willing to listen to me and actively seek out information on the topic to inform herself and her decisions, the other one clearly hasnt bothered to google it even!

 

[mummySS]

Sounds like the gp is a good one and is your best bet. I can't understand how it's prescribed so freely in the US and not here, it doesn't make sense why it's deemed safe in one country and not in another.

Can i ask any of you who've been in hospital on IV fluids - does it help? Do you come out feeling better? I'm feeling so rough and i hate to admit it but i think i might need hospital. It doesn't sound pleasant but if it helps even temporarily.......

 

[PurpleBudgie]

Sounds like the gp is a good one and is your best bet. I can't understand how it's prescribed so freely in the US and not here, it doesn't make sense why it's deemed safe in one country and not in another.

Can i ask any of you who've been in hospital on IV fluids - does it help? Do you come out feeling better? I'm feeling so rough and i hate to admit it but i think i might need hospital. It doesn't sound pleasant but if it helps even temporarily.......

Hi, I went into hospital for iv fluids as couldn't keep liquids down when pregnant with my daughter, i had a bad headache and was so tired from constantly being sick. The iv fluids did get rid of my headache. They said I had ketones in my urine also. I would say if you ain't keeping liquids down go to hospital. I left it for nearly 2 days of not drinking and was hallucinating because of being so tired and dehydrated. I hope you feel better soon. When I came out of hospital I ate and drank little and often and didn't need to be admitted again. Also making sure you don't get over tired as I find sickness is worse. This pregnancy I still had the bad sickness but by staying in bed and eating drinking little and often I haven't needed hospital this time.

 

[mummySS]

Thanks purplebudgie. I have only been sick twice today, but I just cant seem to force much food down me. So i think i am managing to hold in some liquid. I dont know... it's hard to make the call isn't it.

How are you feeling now hun? xx

 

[shocker]

Sounds like the gp is a good one and is your best bet. I can't understand how it's prescribed so freely in the US and not here, it doesn't make sense why it's deemed safe in one country and not in another.

Can i ask any of you who've been in hospital on IV fluids - does it help? Do you come out feeling better? I'm feeling so rough and i hate to admit it but i think i might need hospital. It doesn't sound pleasant but if it helps even temporarily.......

That especially drives me nuts!! Because while I understand they don't want to prescribe anything potentially harmful there are soooo many women out there saying zofran helped them and I have yet to read a single story of it causing problems later on as I'm sure if there was even one google would bring it up!!!

I went to the hospital a few times in first tri, it does help and you know your own body it just gets to that point where its unmanageable on your own, in the early days i would go in for the odd afternoon and it stopped me from having to be admitted to the ward and also helped me keep hydrated, I can't say I felt massivly better after but always better than I had when I went in!!

 

[Micha2]

Oh ladies my heart is breaking for you! HG is a very, very serious thing and having experienced it several times i truly believe its one of the hardest things a woman can go through. What u need more than anything is people that understand/empathise/relate.
Sorry im terrible with names but to the poor lady whose husband dragged you out of bed and yelled at you...not on! I had tears in my eyes reading that. It is not what u need when youre already trapped in your own personal hell. I can only hope something or someone gets through to him & he finds a better way to help you. I feel almost guilty because my partner was a godsend when i was suffering so bad and bent over backwards for me.

To the lady who had the hospital stop your zofran...terrible! Yes tests are inconclusive but even my Dr said the benefits outweigh the risks. And from personal experience, those risks include losing your baby and even your own life! Please please please, i cant stress this enough, find a Dr/hospital that understand and will give u exactly what u need. I did that this time after several horrendous HG pregnancies & even tho i was still incapacitated from weeks 6-14 it was much better than the other pregnancies.

And to the lady who asked about IV fluids. YES it does help, but only till u dehydrate again which for me was always less than 24hrs. But it is still worth it as in that time u can get some fluids & even food down to your baby. If it means youre back in hospital every couple days, do it. Its not forever and even tho it feels like youre the only 1 I promise youre not.

Read blogs/research HG (when u have the energy!) You never know what tips will bring u some relief as each case is different. And if nothing else youll realise this is a real condition, it is serious, but you are not alone & there is light at the end of the tunnel.

Hang in there ladies. I am on 'the other side' of it now, for the most part, but i keep u all in my thoughts & prayers. xo

 

[puppycat]

Yes, dragging you out of bed?? WTF? He wants you t eat/drink tell him to bring it to you in bed. Stupid man.

IV fluids definitely help. I was in hospital 3times. The first time i was so bad i didnt even flinch when they put the canula in. They had to try 3 times to get a vein. Horrid.

 

[shocker]

I went back to my gp first thing yesterday morning and to make sure I was listened to I delayed taking my morning tablets til I'd seen her as the office is across from my house, by the time I went in to see her I'd only been awake an hour and so spent the entire time being sick in the sink in her office and a bin that the nurse was sent to fetch, I told her this is what its like when Ive not taken those tablets for one hour how do you think it'll go if I stop them all together! She completely agreed with me that it was madness and told me to ignore the consultant as she clearly didn't understand the severity or the condition itself, she said she would prescribe as much as I need for as long as I need and if the consultant had a problem with it she can contact her personally! Thank god! It was such a relief! I'm furious that I had to do that to prove a point tho but at least there's one doctor whos willing to help

 

[CarliCareBear]

shocker- thank god your gp has some sensibility! that consultant sounds completely insane, what an idiot! i truly take for granted how much more knowledgable and open to treatment the doctors are in the US regarding HG. and that's scary to say because many doctors here haven't even heard of HG and will also tell you it will go away at x amount of weeks (such BS)!!

if you continue to have issues i would definitely refer your doctors here: https://www.helpher.org/health-professionals/ and honestly it could even be very beneficial to ask your GP to take a look as well.

mummySS- your hubby is so out of line! really, he's worried about spilling cereal in the bed?! is he crazy? you should show him this site or others if he is having so much trouble believing how serious this is and how sick HG can make you. makes me mad!

Also, IV hydration was an EXTREMELY necessary part of my treatment. i actually got 3-4 bags of IV fluid every single day from 16 weeks till delivery- it made such a huge difference for me! believe me when i say- the more hydrated you are while having HG the better you will feel! do not be afraid to get fluids! do you guys have home care available in the UK?

 

[mummySS]

Shocker - bloody hell hun, that's some drastic measures you took and it saddens me to know you had to go to those lengths. I'm so pleased the GP finally sees sense!

Thanks for the outrage over my hubbie's behaviour. I got a very grovelling apology from him - he knows he was out of line and feels terrible about it. We'll see if it lasts...

I was back at the GP yesterday too, as clearly cyclizine is BS and doesn't work for anyone. They've put me on metoclopramide, which seems to be working slightly better, well it did initially, then I was very sick. who knows!

 

[Jesss123]

My GP officially said that there is nothing else they can try with me. Nothing that is safe for LO. This is horrible. I can't imagine this lasting until LO is here

 

[shocker]

My GP officially said that there is nothing else they can try with me. Nothing that is safe for LO. This is horrible. I can't imagine this lasting until LO is here

jess that is absoloutly terrible of your gp to say! A lot of people with HG only have it in first tri and many others find it trails off by 20 weeks, a girl on this thread just a few pages back had it really bad and shes been sickness free since 18 weeks! Even though Im still being sick now its nothing compared to what it was like in first tri, if someone told me I would still be sick now back then I'd have completely lost it, but between finding tablets that help and just learning what triggers it things are so much more manageable, I can actually order a takeaway with my OH on a friday night now and usually keep it down, I have to stay completely still all evening,not stay up late and be sure to take my tablets on time but considering the taste and texture of my own saliva made me sick before and water used to turn my stomach this is an absolute miracle in my eyes! Try not to think of it as lasting all those weeks, make mini milestones like 16 weeks then 18 and so on, and also are you getting any iv fluids regularly? There is always something that can help, its completely ridiculous of your gp to say hes exhausted all avenues at 12 weeks! I tried cyclazine and stemetil before the zofran and zantac and honestly none of them have made it go entirely, they just help a little and with plenty of bed rest and fluids it slowly got better, also if none of the tablets are working your needing to be admitted a lot you could look at home care where you get anti emetics and fluids IVs administered at home? I lived just behind the hospital during first tri so could just go in for afternoons then still sleep in my own bed, then after first tri I moved back in with my mum so she could look after me while OH was at work. Is there anyone who could look after you at the moment? It will be ok

 

[Jesss123]

It's horrible but it's true, she's tried me on 8 different types of anti meds now, one to which I had a pretty bad reaction today so won't be taking it again (agonising stomach pains!!) Others I'm allergic to I've been getting IV fluids twice a week, at least. OH has cut his hours at work a little so he's home to look after me more. I've been off work for over a month now too and it doesn't look like I'm going back in anytime soon.

There isn't an option for home care where I live, they have offered me to stay in hospital for a few weeks but it's not an option for me. I can't. IV fluids don't make me feel any better anyway. I've lost well over a stone in weight now too, at least I know baby is ok as I have a doppler and listen to the heartbeat everyday.

I thought it'd get better but instead it's been getting worse and worse. I'm more like 13 weeks now but not sure, I had funky scan dates and finally have my dating scan tomorrow so will know for sure. Instead of getting better at the end of the first trimester, it's gotten 10 times worse in the past few days.

The only things I can keep down are some fruit. That's it now. Not even water or juice.. I tried everything now. I'm out of ideas now.

 

[shocker]

It comes in waves I think, there were several times it got much much worse but it was like flare up and it would settle down again so if it feels like its getting worse right now do remember that because its not going to be this bad for long its just a case of getting this 'flare up' under control if that makes sense. I would definatly speak to the people at work, you may need to be signed off your entire pregnancy, I had just finished uni when I got my bfp so was lucky I didnt have any obligations but recently started helping out my sisters by babysitting a few days a week in my own house and even that had to be stopped as I wasnt able and it was making me get worse again. As for your weight loss do try not to worry about it, as absoloutly awful as your feeling baby will be doing just fine! In the last 8 weeks Ive managed to regain all the weight i lost plus a little more and have read that babies will actually take nutrients from any possible source like your hair/nails/teeth so it is actually incredibly rare for HG babies to be underweight! My little man measured smaller for a bit but has since caught up and is now a right little chunky munky For now eat whatever you want whenever you can, sometimes out of the blue you get these random cravings for something unhealthy when everything else has been turning your stomach for ages and when those strike you just have to go with them! I've gone through various dreadful phases like nothing but mcdonalds milkshakes for a week and so on but midwife said anything at all that you get an urge for jump at it, liquid calories really help at the start, so milkshakes and soups are great! smoothies are obviously a great help but i always found they burned my throat too much. Im sorry your feeling so down, It really is absoloutly dreadful and you never think that this is what your signing up for when you get your bfp and its hard when you love your baby so so much but you'd need to be made of steel not to feel a bit broken down. OH got me a mini fridge for next to my bed and brought the tv up for the bad days so theres always a little snack and drink there, you can get them quite cheap and i found it helpful as room temperature drinks dont sit well with me. A big stack of dvds/video games, a nice supply of liquids and snacks and dont try and do anything, focus on resting and hope theres a light at the end of the tunnel for you soon, the kicks are like having your own personal cheerleader on the bad days

 

[mummySS]

Aah bless you shocker your post cheered me up too. She's right Jess, the bad days are beyond horrible but it's likely this is just a flare up - you should fid you slowly feel better over the next few weeks or at least learn different ways to cope with it. I find my taste aversions are changing all the time, my safe foods only last a couple of days before I become averse to them, but my taste buds change and I can eventually find something else I can force down. Doesn't always work but hey that's what the bad days are for...

Xx

 

[mummySS]

Ps shocker where are you from in London?